I got some great news the other day - I ended up in hospital recently for a query obstruction and a colonoscopy showed that the CD was back which was very upsetting. But....had full
range of tests and found it is localised at TI and not severe so don't need big meds at this time
The 'obstruction' and regular pains/spasms I am getting would appear to be more IBS - bowel's a bit sensitive and cramping/twisting: mega painful but at least my gut wall isn't being eroded!
I know many of you have sensitivities towards certain foods and I too have naturally altered my diet over the years. There are things now that I can't eat because of the surgery I think e.g. fatty foods, but for some time I haven't been able to have high fibre or pulses, coffee, beer and so on. I've never quite understood why this is so when I haven't had widespread inflammation.
My question is - does it matter if symptoms are attributed to IBD or IBS? Am I right in saying the IBS is because of the Crohn's and because I had surgery? I need to be able to explain simply to my employer and family what it means - I usually explain that I have less bowel now and so it reacts differently to certain foods than it did before. So many people say they have IBS and I don't want them to think everything will be totally ok again if I just change my diet and I don't want to downplay the severity of IBS either.
As always I appreciate anything to help me understand things better!
Diagnosed aged 31 in 1996 - emergency surgery (right hemicolectomy). Thought I'd only get 'it' once and have lived in relatively blissful ignorance, apart from a couple of hospital stays for obstructions (scar tissue), until March 09....major surgery, 2 resections, fistula and now only 195cm small bowel left.
Not on any meds at present except B12 injections but know there will be some. Just getting used to my 'new' body and it's limitations........ July 09 hospital stay for obstruction & tests show disease back: now on Asacol and waiting to see which treatment I'm put on