Thoughts On Pain...?

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craizy_daizy
Regular Member


Date Joined Feb 2009
Total Posts : 50
   Posted 8/25/2009 9:56 PM (GMT -7)   
The way I see it, pain is a way of your body telling you something is wrong, and that you should stop whatever it is that's causing the pain. But, if you know what is wrong (you have inflammatory bowel disease), can you just ignore it (as best you can)? Or could pushing through the pain make things worse, because you didn't listen to what your body was telling you?

I don't usually have very bad pains, this is just something I've been wondering about...but I do feel like I've been holding back on doing a lot of things that I would like to do (outdoor activities mostly) because I'm paranoid about my condition - right now I have an abdominal fistula, but sometimes have very 'sore guts' as I call it. I'm so out of shape now from not doing much (even though I look fit having lost 30lbs), as I've had this fistula since January, that I'm afraid to start working out or being active and stressing my abdomen...which may be silly, I don't know.

What do you all think?
craizy_daizy

-22 y/o alaskan
-resection oct '08
-diagnosed nov '08
-vitamin b12 shot
-starting remicade soon


ozonehole
Veteran Member


Date Joined Dec 2006
Total Posts : 559
   Posted 8/25/2009 10:44 PM (GMT -7)   
Exercise alone should not make your Crohn's disease any worse. However, if you feel lousy, you may not feel like exercising. Actually, moderate exercise could be beneficial, so if you feel well enough, then I would suggest at least walking or maybe bicycling.

Diet, on the other hand, can have a significant effect on the disease. The wrong foods can indeed make it worse. There have been lots of discussions on this board about what to eat.

best regards,
Robert
Crohn's since 1988
3 resections


MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 8/25/2009 10:52 PM (GMT -7)   
I also have an abdominal fistula, its located about an inch directly above my bellybutton.  Because of my wonderful 50lb weight gain while on Pred I joined a gym to work it off.  I asked my GI and surgeon before I did this.  They said that exersice is absoluely fine.  I told them my workouts would consist of about 500 sit ups a day 4 days a week, as well as other core strengthening exersices (pilates and such) They simply said what I can handle....I can do, but if I were to feel weird pains or pulling to stop obviously.  As far as pushing through the Crohns pains in general...I think most of us do this on a daily basis.  But certainly if your feeling worse then usual one day don't push yourself.  I refuse to let this disease take control of my life...but some days it has the upper hand on me.

 

EDIT: daisy, I just have some questions for you.  How did your abdominal fistula come about?  Mine happened after I had a resection, I developed an abscess twice, which then turned into a fistula. I don't know much about them...or have seen anyone else here with one. How do you deal with it? Does yours drain a lot (do you have a bag) or do you just pack it? Are you having surgery to correct it or are you on meds to try to heal it. I've had mine since December, I thought I had come to terms with it, but I'm starting to get really depressed about it. You're the same age as me, so I bet we can relate a lot, if you want to email back and forth let me know and I'll send you my email!!


Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed, 3 Abscess Cleanings
Current Meds: Cimzia, Methorexate, Vitamin B12 (injections), Nexium.
Next Surgery: Sept 4, 2009 to Take Down Abdominal Fistula!!  (On hold until current flare is under control, boo!)
 
www.myspace.com/mastermelissa

Post Edited (MAG102886) : 8/26/2009 12:00:01 AM (GMT-6)


craizy_daizy
Regular Member


Date Joined Feb 2009
Total Posts : 50
   Posted 8/26/2009 1:00 AM (GMT -7)   
MAG:Go ahead and give me your e-mail! I had a resection in October, and a couple wound infections, then a fistula in January...although I'm thinking those 'wound infections' may have actually been the fistula all along...Mine doesn't drain enough to need a bag, I just have a 2x2 or 3x3 bandage on it at all times, sometimes I have to change it only once a day, sometimes around 12 times...and sometimes it sure is nasty :S I've been approved from the patient assistance to get Remicade but am currently very impatiently waiting for everybody to get the paperwork faxed so I can start it!! And if that doesn't work, then I'll have to try the surgery, but I've been told that it would basically be another resection to get rid of it...And I too have been pretty down about the whole thing, it's hard to deal with. I never leave home without my tape and bandages. Anyways, send me your email and we can talk more about it! Did you do your exercise program while you had your fistula?? I was wondering how an ab workout would affect drainage...

Robert: I suppose it does make sense that what you put into your guts would have more of an impact that they way they move with your body during physical activities. Thanks for the reply.
craizy_daizy

-22 y/o alaskan
-resection oct '08
-diagnosed nov '08
-vitamin b12 shot
-starting remicade soon


MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 8/26/2009 1:29 AM (GMT -7)   
OMG, seriously when I read your response I felt like I was reading my own story word for word!!!!!  Its like the EXACT same thing.
 
  I dont know how to send you a private message with it, so I'll just post it here no biggie!
 
 
*Sorry had to remove your email as the spammers will go hog wild on you otherwise*  For your safety please post it in your profile so that others can contact you if they need too.*

Post Edited By Moderator (Nanners) : 8/26/2009 7:15:25 AM (GMT-6)


tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 8/26/2009 2:36 AM (GMT -7)   
I used to be a work out junkie and paid for it because I did not learn when to stop when my body was telling me to. Before I was diagnosed I was into weight lifting and exercise and then after I got married I got out of the habit.(must have been the usually deal already sealed syndrome) Then my wife(who was also a huge work out junkie and former competition dancer) decided that I needed to get back in the gym with her. I agreed and we both started going to Golds with my old work out buddies. My wife really benefited and was right back into her old routine and it amazed me how long she would go on the Eliptical and treadmill. I tried my best to go with her but the arthritis in my knees only allowed me to use the bike with the peddles that are infront of you. I was able to start lifting with the free weights and machines and felt amazing even when I was sore. I began to see immediate results and decided that I should start back on my old program with my friends. The reps were high and we all knew what we were doing but I did not realize what had taken place in my joints. I was seeing the muscle mass and rotating my muscle groups but due to the disease our bodies need more time to recover. I was there every day and ended up blowing out both rotator cuffs and reinjuring my back.
Now after 2 surgeries to repair each rotator cuff and multiple epiderals in my back, I would love to get back into the workout habit but it is hard because of the onset of major arthritis. At 29 I should not feel like I am 70 but that is part of the disease. I tell this story not to dissuade you or scare you out of working out, but to realize to take it slow and build into a comfortable routine. Exercise can never be a bad thing and our abdominal and back muscles need all the work and strength that they can get. You would think that with all the tense tightening from cramping and bending over that we would all have killer six packs. I swear that ever bathroom experience is an abdominal workout that would take out the top athletes and we do it multiple times each day. I would kill to have my six pack back ( I am sure my wife would love to have my six pack back too) but for now I will have to live with my keg. This disease makes use look a little bloated whether we are skinny or bigger. The funny thing is that my legs are actually really lean from all the squatting to use the bathroom.( atleast that is my theory)

MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 8/26/2009 9:18 AM (GMT -7)   
Thanks Nanners!
 
Daizy my email is in my profile now.
Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed, 3 Abscess Cleanings
Current Meds: Cimzia, Methorexate, Vitamin B12 (injections), Nexium.
Next Surgery: Sept 4, 2009 to Take Down Abdominal Fistula!!  (On hold until current flare is under control, boo!)
 
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