Remicade for a year, now adding MTX?

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tlhipp
New Member


Date Joined Jun 2004
Total Posts : 5
   Posted 8/26/2009 1:39 PM (GMT -7)   
Hi, I "now" after 20+ years with colitis, have Crohn's, fisutlizing is the concensus.  I have a persistent perianal abscess/fistula.  I've been on Remicade for a year, and it's a blessing while it works.  I was taking 5mg every 6 weeks and was able to "make it" the last 2 weeks when it started wearing off.  My ins. co. decided that 6 wks was too often, so they would only approve 10 mg every 8 wks.  Surprise surprise, it starts wearing off after 4--5 wks, so I have 3-4 wks. of misery.  First the low grade fevers start, then generalized body aches.  Well, this time, I got some kind of migratory joint pain in my fingers, wrists, elbows, knees and feet.  To make things worse, no ibuprofen due to upcoming cataract surgery.  My crp level was 4+.   The day after my Remicade infusion there was NO pain or inflammation.  My GI now wants to add Methotrexate injections every 4 wks.   I've never taken MTX and can't find anything about the combo except for using it for RA.  Even then, the people were usually on it prior to the Remicade.  I'm kind of scared to take something else.  I'm hoping it's not a problem with the Remicade (the pain I mean).  The low-grade fevers were there before starting the Remicade, but I just go through the worst "withdrawal" before the next dose.  It's like heroin, except you feel better, not high, after gettomg the next infusion. (no, I've never taken heroin, it's just an analogy).
 
 

lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 8/26/2009 5:33 PM (GMT -7)   
I've never heard of methotrexate being given just once every 4 weeks? I've been on it 7 years (25mg once weekly) but I started out on methotrexate and then get given the odd infliximab/remicade here and there when I get a flare up. The advantage of taking methotrexate along with remicade is that it helps prevent you building up a resistance to it, you're less likely to get reactions and helps prolong the effects - the last definitely being true for me, the effects of one dose of remicade can last up to 3 years with me before I need another.
I know it can sound like a scary drug but its been around for a long time and many people benefit from it, its pros and cons at the end of they day, if it manages to help improve your quality of life at the end of the day surely its worth it?
 
 


tlhipp
New Member


Date Joined Jun 2004
Total Posts : 5
   Posted 8/26/2009 7:14 PM (GMT -7)   
Thanks! I'm definitely willing to try it. Maybe the shot was once a week....I see the doctor on Sept. 12th, so I'll find out then. Wow! That would be great if it would help the Remicade last! Thanks for the input. I started out with Colitis (age 13) that was managed with sulfasalazine tabs for a long time, then I got to college and went downhill really fast. They did a high dose of Prednisone for a while, and then removed my colon and gave me a J-pouch(age 22). I never really got to cycle through all of the normal meds, so it helps to hear from people who have. I'm 42 now and would really like my life back. The last 5 years has been a doozy, although it can always be worse, so while I lament I am also thankful for what I DO have. ;) I'll probably pop on when I start if something weird comes up! Good evening (here)! Lori
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