Evaluating my GI doctor - Is he good enough?

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cardinal
New Member


Date Joined Jul 2009
Total Posts : 13
   Posted 8/26/2009 4:55 PM (GMT -7)   
I often don't feel like calling or going to see my GI doc when I'm having problems because I don't think he has any more tricks up his sleeve. He doesn't say or do anything very different from time to time. He's not much help with nutritional issues either. Each time I go see him, I don't have very high expectations for him being able to improve my situation.

Do any of you really like your GI docs and if so, what makes a good one? I've seen a few different people over the years, but I've never felt that they were more than just OK.
Living with CD for the past 36 years, diagnosed in college. Long periods of remission
1 resection in 7/2007 - no pain since then, but struggle with diarrhea, poor absorption, weight loss
Taking Asacol, Flagyl (sometimes), Vitamin B12 injections monthly, Vitamin D, Fish Oil, Calcium


medchrt1
Veteran Member


Date Joined Sep 2005
Total Posts : 517
   Posted 8/26/2009 5:39 PM (GMT -7)   
Doc visits are so regimented. I understand your point. On the other hand you need to have some idea of what your direction is, would like from your visit, extra meds. another referral etc. be smart get to know a good surgeon too. Ive had primarys that had better plans than some GIs. I asked a GI for some more lomotil once, and didnt get it, so I can tell you what a not so good GI is. This was after i had like 7 pills and thought it was somewhat beneficial.

craizy_daizy
Regular Member


Date Joined Feb 2009
Total Posts : 50
   Posted 8/27/2009 1:28 AM (GMT -7)   
I live on an island in southeast Alaska and the only doctor I've seen since being diagnosed is my surgeon (the only surgeon in town). I don't even have a primary doctor anymore and there are no specialists. I flew down to Seattle in March and was very disappointed in the GI I saw, she hardly looked at my chart, talked to me, or anything, just handed me a big packet of information on Humira....I decided not to even go that route because I didn't trust her. Then this month I flew up Anchorage and saw a GI who was supposed to be really good, I had to wait a month to get in on a cancellation, and it was basically the same! Only he said, "You need to be on Remicade". And that was that. It's actually very frustrating to have to fly out of town, and pay $650 to feel like I'm being jipped. Although this time, I was already set on Remicade so I got what I wanted really... but I don't even know who I will turn to next for future issues. I don't have a lot of options, although I'm considering moving to Anchorage for several reasons, one is just so I can have peace of mind about being near specialists. (However my mom is concerned about the billing part - I have a pretty good payment plan set up where I am...)

Anyways, a good doctor is hard to find, not to mention a GI. I think it would be nice if you could meet the doctors before you go paying to see them just to be disappointed. Or at least get a more realistic biography, other than where they went to school. I know there are websites out there where you can rate doctors and read other peoples' reviews, but you have to take those with a grain of salt.
craizy_daizy

-22 y/o alaskan
-resection oct '08
-diagnosed nov '08
-vitamin b12 shot
-starting remicade soon


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/27/2009 6:22 AM (GMT -7)   
I really like my GI. I never feel rushed. Sometimes I have to wait a long time in the lobby, but that is because he always spends quality time with each of his patients. Sometimes you have to see alot of different docs until you find the right one for you. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

ISF13+
Regular Member


Date Joined Jun 2009
Total Posts : 202
   Posted 8/27/2009 7:14 AM (GMT -7)   
I absolutely LOVE my GI doc.  The first one I had was horrible.  But then I found my current one who came highly recommended and she has not been a disappointment.  She takes the time to listen and discuss my various issues.  She gives me options so that I can help participate in my own health care choices.  She is always available by phone and will often call just to check on me.  She knows her stuff and is very competent in her patient care.  In fact, I'm a little afraid that I'm becoming too dependent on her.  I panic when she leaves on vacation for longer than a week at a time because it never fails, I always have a flair while she's gone.  A good GI doc is essential for us Crohnie's.  I hope you can all find one that's as good as mine.

Crohn's Disease. 
Diagnosed 13+ years ago. 
Been in remission for short periods of time but each time I come out of remission my disease seems to have spread.  No longer isolated in my ileum, now from stomach down to rectum. 
Current Medications for the Crohns:  Humera 40mg injections every other week, Imuran 150mg, 3xday, Hyomax, Welchol 625mg, Vancocin HCI 125mg (generic for Vancomycin), 4xday for C-Diff, Calcium, Acidophilus & Potassium
Previous Medications I've been on:  Asocal, Pentasa, Cipro, Prednisone, Flagyl & Entocort


Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 8/27/2009 8:35 AM (GMT -7)   
I like my Gi but I had to learn how to talk to him. If he asks how I am doing I need to be ready with a lot of details. He is always super concerned and I can tell he really cares. He has set up his office so his nurse is the one you call when you schedule an appointment and she is also the person who checks you in during your doctor's visits. This way she gets to know you very well and never minds when you call with a problem.

Elizabeth
Dx'd with Crohns 1984 and polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, folic acid, and Enalapril,
 


cardinal
New Member


Date Joined Jul 2009
Total Posts : 13
   Posted 8/29/2009 4:39 PM (GMT -7)   
Those of you who love your GI docs, are any of you in the Boston area?

I think my doctor cares, but he's not the most communicative and phone calls aren't encouraged that much. He also seems so mystified by my symptoms that I am losing confidence. I hate it when I don't know what's going on and the doctor doesn't know either, but I suppose that is a common occurrence.

In my last visit I made buddies with the nurse who takes the calls, so that I feel I can be a bit more connected at least. But if anyone has a doctor in and around Boston who they love, I might just go meet with someone else and see if there is potential for a better relationship than this one.
Living with CD for the past 36 years, diagnosed in college. Long periods of remission
1 resection in 7/2007 - no pain since then, but struggle with diarrhea, poor absorption, weight loss
Taking Asacol, Flagyl (sometimes), Vitamin B12 injections monthly, Vitamin D, Fish Oil, Calcium


ISF13+
Regular Member


Date Joined Jun 2009
Total Posts : 202
   Posted 8/29/2009 9:47 PM (GMT -7)   
Unfortunately for you, no, I'm not in your area.  I'm in the mid-west.  Hang in there, you'll find a good one eventually.
Crohn's Disease. 
Diagnosed 13+ years ago. 
Been in remission for short periods of time but each time I come out of remission my disease seems to have spread.  No longer isolated in my ileum, now from stomach down to rectum. 
Current Medications for the Crohns:  Humera 40mg injections every other week, Imuran 150mg, 3xday, Hyomax, Welchol 625mg, Calcium, Acidophilus & Potassium
Previous Medications I've been on:  Asocal, Pentasa, Cipro, Prednisone, Flagyl, Vancomycin & Entocort
"LIFE IS NOT HOW YOU SURVIVE THE STORM, BUT HOW YOU DANCE IN THE RAIN...."

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