new tests, old prob.,info anyone?

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granna
Regular Member


Date Joined Nov 2007
Total Posts : 41
   Posted 8/26/2009 6:31 PM (GMT -7)   
Good evening to all. I really really hope everyone is feeling ok!
Here's the deal:  Went to fam. doc. today. He wouldn't even discuss fibro or CFS. He just said that the treatment for either is anti-depressants which I can't find one I can take. Then as we talked about all the symtoms, he suddenly said "but you don't have any nausea do you?" I replied, "If you would take a min. and look at my chart, you'll see that nausea is second only to severe fatigue". I was not very happy with him. He also doesn't belief that I need any estrogen or testoterone replacement therapy, said that post menapause us women aren't supposed to have a high level. I said (sorry for the direct approach here) so my vagina feels like new, thick sandpaper and my sex drive is totally non-existent, I'm supposed to feel this way at my age???? He said he would just let my GYN take care of that, as if I would let him!!!
He finally talked to me about "ADDISON'S Disease". Ever heard of it? I looked it up,  I have had all the symptoms for 3 years----with a detour of Crohns.  My blood pressure this morn at his office at 9AM was 80/52.  Everytime I have gotten sooooo sick in the past 3 years, my bp drops.  Then eventually like last time, the crohns gets going.
Main question is.....what kind of doc or specialized doc should I be thinking about if the tests are abnormal?  Takes about 4 days to get results, so I won't know til about Monday. He's checking the "serum cortesol".  If abnormal-He wants to do another, I give blood, take a shot of ?, then give blood. Then take it from there.
I'm sorry for talking so much!!!!
Thanks for all your help (again!) wink

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/26/2009 8:21 PM (GMT -7)   
Addison's is an adrenal problem - if you looked it up, you will see why your doctor is trying a blood cortisol level test. Since diarrhea can be a symptom of Addison's, maybe you don't even have Crohn's? Low blood pressure is another symptom of Addison's as is fatigue and vomiting. The appropriate specialist would be an endocrinologist, but it looks like your doctor will do some tests and then refer you.

granna
Regular Member


Date Joined Nov 2007
Total Posts : 41
   Posted 8/26/2009 9:19 PM (GMT -7)   
Thanks Keeper, just so frustrated, and a little scared too. More steriods? Probably. It'll be worth it know what is wrong with me. Tell me something, when your crohns is in remission, do you "feel better"? Like your energy level and well, everything I guess, do you just generally feel better? Except for the absense of intestinal pain, I feel as bad or worse than I ever did. Thanks again!!! Granna

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/26/2009 9:36 PM (GMT -7)   
I am not typical. I am fairly OK when I am not flaring, but my version of a flare is other people's normal Crohn's remission. I do get odd joint swelling and other digestive problems that I have tracked down to Crohn's, but it is pretty tame stuff by comparison. In your case, assuming that it is Addison's, you won't feel any relief from fatigue and nausea until you get something to replace the missing cortisol.
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