Methotrexate--Please Help!!!

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Hisproudmom
New Member


Date Joined Aug 2009
Total Posts : 2
   Posted 8/27/2009 3:03 PM (GMT -7)   
Hi.  My son was diagnosed with Crohn's disease last March and he has been on steriods since then.  He is eleven years old.  Since his disease does not seem to be getting better (his is mostly located in the small intestines), his doctor wants to put him on methotrexate.  At first, the doctor wanted him on Remicaid, but I do not want him on that drug.  Has anyone had any luck on methotrexate?  What kinds of side effects are common with this drug?  Thanks!

lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 8/28/2009 12:59 PM (GMT -7)   
I was put on methotrexate just after I was diagnosed when I was 15 so I've been on it 7 years, I didn't respond to steroid treatment and was allergic to pentasa and as I also had arthritis methotrexate was the best (and at the time last) option for me. It dramatically improved my crohn's and arthritis and I was able to return to school and start being a teen again, a few months later remicade became available in the UK and I was given one dose of that which put me in full remission and after that was only on the weekly 25mg tablets of methotrexate which kept me in complete remission for 2 years (I flared as they decided to take me off the methotrexate and go drug free as I'd been inr emission so long) so went back on the methotrexate and got another 3 years remission until a year ago when I had malabsorption issues and got ill again (it took them 6 months to twig it was malabsorption and switched me to methotrexate injections) but now I'm on the injections I've been in remission for 6 months and so far still good!
 
Its definitely worth trying the methotrexate, with the tablet form I got really bad nausea and light-headedness for about 12 hours after taking it so I'd take it before bed to sleep through most of it and if I was still nauseas I found prochlorperazine worked brilliantly. With the injections I also take them at night but haven't noticed any side-effects anyway, the injections are supposed to cause less side-effects than the tablets as you don't digest them.
 
Remicade is a scary drug, I'm given it episodically so I only have one dose when I flare and don't get given it regularly, it is an absolutely fantastic drug though - to think just one infusion helped boost my methotrexate so I lived completely symptom free for most of my school years so don't write it off just yet but hopefully the methotrexate will be enough to help. :-)
 
 


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 8/28/2009 12:59 PM (GMT -7)   
Proudmom, I was taking methotrexate along with Humira for the arthritis that I have with my Crohn's.  The pills really hurt my stomach, so we switched to injections.  They really helped, but raised my liver enzymes pretty high after a couple of months, so they took me off.  Now that we've exhausted all other options, we are trying mtx again but on a lower dose.  So far, I can't tell that it's helping and I have a feeling it will still raise my liver enzymes.  So, that's one thing they will really need to watch.  Other than that, I haven't had any side effects. 

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 

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