Think it's crohn's?

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jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 8/28/2009 8:30 PM (GMT -7)   
I have been hanging out on the UC forum for a few months now. I was diagnosed with diverticular colitis in Jan 09. They put me on colazal and I have been doing OK if I watch my diet. about 6 weeks ago, I started getting these splits in my skin around the perianal area, they hurt and bled. I went to my gyn and PCP, they though it was yeast, treated it, would not go away. After a few weeks of this, I noticed I had a fever and also got this awful burning sensation in my mouth and some ulcers in my mouth. Then, I got conjunctivitis in my left eye, then the right eye but it went away on its own.
 I used some cortifoam after finally thinking it might be fissures and it cleared everything right up. I am thinking I may have crohn's, don't you think?   yeah It sounds classic to me. Also, a few months ago, I had my PCP do the prometheus tests and the crohn's test came back positive. I am already on colazal, should I go back to my doc to ask him what he thinks? The ?fissures got better after 2 days of cortifoam and using tons of cortisone cream and antibiotic cream down there. Thanks for any advice. I am 54 though, I didn't think people got crohn's at this age.
diagnosed 1/09 with "diverticular colitis" ?? location, sigmoid colon
localized scleroderma & IBS, low thyroid
 50 +  female
 colazal, fish oil, synthroid, zoloft, VSL#3 probiotic.
Blood test positive for Crohn's for whatever that is worth-:)
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 8/28/2009 9:36 PM (GMT -7)   
All those symptoms could be UC related as well, fissures (the splits on your skin in the anal region), the eyes issues and the mouth sores so the only way to know for sure is if you've had a colonoscopy to find out what the pattern of inflammation was like, patchy (with healthy tissues in between inflammed) is crohn's, having an entire area inflammed with no patchy sections of healthy tissue is UC, also the depth of the inflammation, with CD it can go through the many layers of the mucosal lining, with UC it's limited to the surface of the lining only.


:)
My bum is broken....there's a big crack down the middle of it! LOL :)


littlemissmuffet
Regular Member


Date Joined Feb 2009
Total Posts : 269
   Posted 8/29/2009 1:06 AM (GMT -7)   
I have crohns and my partner has UC. From what you are saying you are describing his problems and not mine. Have u had a colonoscopy yet?
Diagnosed 2005.  41 year old female living in UK
 
Current medication  -  infliximab infusions, ranitidine, ferrous sulphate, Vitamin B12 injections.


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 8/29/2009 6:12 AM (GMT -7)   
Yes, back in January, they said it was diverticular colitis, a rare form of colitis associated with diverticular disease that was diagnosed by the biopsy. After the colonoscopy, my doc said he couldn't tell by the scope what kind of inflammation I had for sure. I am suspicious of the diagnosis b/c four years ago when I got sick I had a CT scan and colonoscopy. The CT scan showed inflammation and the colonoscopy was negative w/ biopsies although they said I was not cleaned out very well. So, all we can say is that I had inflammation first. Recently, my prometheus blood test was positive for crohn's. So, I don't know what to think. I guess it is all academic but I have been so sick, the diagnosis doesn't seem to fit all the symptoms. With the diverticular colitis, you shouldn't have all these other symptoms. I am so glad I found this forum though, I get such great information and support. Thanks so much.
diagnosed 1/09 with "diverticular colitis" ?? location, sigmoid colon
localized scleroderma & IBS, low thyroid
 50 +  female
 colazal, fish oil, synthroid, zoloft, VSL#3 probiotic.
Blood test positive for Crohn's for whatever that is worth-:)
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/29/2009 7:05 AM (GMT -7)   
PB4 I didn't know you could get the mouth sores with UC? I always thought UC was just in the colon, and Crohns was anywhere from mouth to anus.

Jeanneac, I think I would ask for more tests to clarify your situation. I would get with a GI for the testing. I wonder if you have Crohns Colitis. As for your age we have a few folks on the forum that have gotten diagnosed later in life. I myself was diagnosed at 18, and I have heard that folks are either diagnosed between teen years and 25 and then the second set is later in life i.e after 35. Welcome to the forum and I look forward to hearing what the docs say.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 8/29/2009 7:11 AM (GMT -7)   
Thanks Gail. Yea, I have quite a mixed bag of things going on. Perhaps it is coincidental, but I have a lot of other symptoms of crohn's with the eyes, joints, sores in mouth and perianal area. So, I dunno. I wish I had gotten in to see my GI when those fissures were there. As soon as I started using the cortifoam, they healed up in 3 days! I guess it is academic but when you feel bad you want to know why. The other thing is that they only want me on meds for a year. I am afraid of when they cut off the colasal. But we'll cross the bridge when we get there. Thanks so much for being here! I always say it, but I'll say it again, these forums are the best.
diagnosed 1/09 with "diverticular colitis" ?? location, sigmoid colon
localized scleroderma & IBS, low thyroid
 50 +  female
 colazal, fish oil, synthroid, zoloft, VSL#3 probiotic.
Blood test positive for Crohn's for whatever that is worth-:)
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/29/2009 7:13 AM (GMT -7)   
Jeanneac, I would still go see a GI even though the fissures have cleared. I would explain all that you experience, and tell them what the family doc found and tell them you would like to find out for sure whats going on. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 8/29/2009 10:29 AM (GMT -7)   
I know Nanners, I didn't think it was associated with UC either but virtually any of the extra-intestinal manifestations that are seen with CD are also seen with UC....

Extra-intestinal symptoms that are not directly related to the inflammation in the colon and include eye inflammation, joint pains, skin rashes or lesions, and mouth ulcers. Scientists are unsure why symptoms outside the colon occur, but they often decrease in severity along with flare-ups.

Eye conditions that can occur with UC include conjunctivitis, episcleritis, uveitis, and iritis. Most eye conditions will improve when progress is made in treating the underlying UC, but some may require treatment. Conjunctivitis, or “pink eye,” is an inflammation of the tissue covering the eye and inner surface of the eyelid and may be treated with antibiotics. Uveitis is the inflammation of the middle layer of the eye wall and symptoms include light sensitivity, pain, redness, blurred vision and headaches. Uveitis is commonly treated with corticosteroids; if left untreated it could result in glaucoma or detached retina. Inflammation in the white of the eye is called episcleritis, symptoms include pain and reddening, and treatment is with a vasoconstrictor or corticosteroid. Iritis is inflammation in the iris and symptoms include pain, light sensitivity, blurred vision, redness, decreased pupil size, and floaters. Steroids and antibiotics may be used to treat iritis.
 
This is the link where I found the above info...    
 
http://ibdcrohns.about.com/cs/faqsuc/a/ucfaq.htm     (might have to copy and paste link into your search engine)
 
What shocks me even more is that some UCers can get fistulas too, I still have a hard time believing that one.
 
 
 
 
:)


My bum is broken....there's a big crack down the middle of it! LOL :)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 8/29/2009 10:39 AM (GMT -7)   
Here's another interesting link...
 
 
:)
My bum is broken....there's a big crack down the middle of it! LOL :)


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 8/29/2009 6:29 PM (GMT -7)   
Very interesting. It is hard to get in to see my GI even when you are sick. They usually just order some meds over the phone. Right now, I feel fine and those awful things have healed after weeks! Thanks for the chat! It's like if one more thing goes wrong, I am gonna feel like I have been jinxed!
diagnosed 1/09 with "diverticular colitis" ?? location, sigmoid colon
localized scleroderma & IBS, low thyroid
 50 +  female
 colazal, fish oil, synthroid, zoloft, VSL#3 probiotic.
Blood test positive for Crohn's for whatever that is worth-:)
 

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