Rectal stump removal

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lynes
New Member


Date Joined Aug 2009
Total Posts : 3
   Posted 8/29/2009 3:27 AM (GMT -7)   
After many abcesses in the rectum i have now been told that its highly likely i will have to have the stump removed early 2010. i have had an illeostomy since 95 where i then have a reversal which unfortunately didnt work, i had my stoma back again in 98 and on and off have had abcesses appear in the rectum ever since.

i was wondering if anyone out there had had this procedure done after having a bag (not altogether as i have found in the past) and if they could tell me what to expect, pain, healing. i am very worried as ive been told 10 days in hospital then another 6mths recovery, also in the past i havent had a good heal rate for the skin to close over and i am panicking now that i will be left with a huge hole!!! any info would be appreciated xx.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/29/2009 7:16 AM (GMT -7)   
We have an ostomy forum here on Healingwell you might want to check out. Click on the forums and chat tab above and then scroll down and you will find the ostomies forum. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 8/30/2009 12:54 AM (GMT -7)   

Hi Lynes,

Welcome to healing well, I also post on the ostomy board since I have recently become an ostomate myself, but drop by here too cause I have suffered many years of crohns/colitis. I'm guessing since you posted here that you too have crohns.

I have an ileostomy that was done in early march this year and on july 30 i had to have my rectal stump removed as I has severe crohns/colitis there as well. I was only in hospital for that surgery for only 4 days and I am still recovering and healing and I wont lie to you it did hurt but I am now feeling much better and am glad to have had it done. I dont have a huge hole there but I do have a small one that apparently is healing from the inside to outside, there is still small amounts of blood but nothing for me to worry about. I promise there is no need for panic over this op, like all surgeries they arent pleasant but its for the best. If you have any more questions about this dont hesitate to ask away, but if its to do with your ostomy perhaps it would be best to post questions on that forum since you will then get many more replies there. Hope it all goes well for you. Keep us posted. Take care


lynes
New Member


Date Joined Aug 2009
Total Posts : 3
   Posted 8/30/2009 8:39 AM (GMT -7)   
Thank you i also have crohns/colitis and its a total pain in the butt literally!. thank you for your sharing i am awaiting biopsy results but its looking more likely to have the rectal stump removed. i too have an illeostomy. any advise will be appreciated. x

andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 8/31/2009 6:32 AM (GMT 0)   
Look on the bright side lynes once u have recovered from that surgery there will be no more pain or abcess in that area. good luck, and let me know how the biopsy results go

Marlowe
Regular Member


Date Joined Aug 2009
Total Posts : 31
   Posted 9/2/2009 9:03 PM (GMT -7)   
HI!

I had an ileostomy for 2 years but my rectum never healed so I had my rectal stump removed 2 years later when I was 34. It wasn't nearly as painful as having my large intestine removed. Since my surgery my crohn's has been in remission and I am off all medications. I work out with a personal trainer, I eat what ever I want, and no one knows I have an ostomy unless I tell them. I like to say I know have Barbie's butt since I am as anatomically correct as her butt!

I was in the hospital for 4 days. Yes it does take up to 3-6 months the wound to completely heal but you really don't notice it after 4 weeks. I have one friend who went cliff diving 10 weeks after surgery!
Marlowe
Crohn's disease, currently no medications, 2 surgeries, ostomy since 2004


lynes
New Member


Date Joined Aug 2009
Total Posts : 3
   Posted 9/4/2009 12:23 AM (GMT -7)   
Thanks for the replies everyone good to have support and understanding. WELL where do i start................... my biopsy came back monday and i was called into the hosp yesterday, i have cancer!
i have to wait ten days or so for an apt to come through for scans to see how far its spread and where it is, then the results take a day or so then another few days to see doc again! feel like my world is upside down not knowing how bad i am whether ill see my kids grow up or not. they said i have to have chemo and radio straight away, and then they will be removing the rectum, unfortunately due to the extent i have to lose some buttock too so have to be sent to a specialist hosp for reconstructive surgery. anyone out there had this or know anyone. please let me know as i am being sick with worry and only managed 3hrs sleep last night.

gemini kiwi
Veteran Member


Date Joined Nov 2006
Total Posts : 1136
   Posted 9/4/2009 7:14 PM (GMT -7)   
Lynes, I'm so very sorry to read your post. I'm sending lots of positive vibes all the way from New Zealand, stay positive I'm sure others will jump in with heaps more messages of goodwill. Please keep us updated if you can going through this ordeal of chemo and radio we're all pulling for you.
Hugs,
Tess.

medchrt1
Veteran Member


Date Joined Sep 2005
Total Posts : 517
   Posted 9/4/2009 8:02 PM (GMT -7)   
Sorry to hear this news. the cancer is the bigger issue. Here are my responses to the other stuff.
I had the stump removed around 05 it is easier than the illeostomy surgery, however there will be other procedures and perhaps scars from whatever needs to be done to eliminate the abscess problems so this might take longer than just the stump removal healing time.
Suggest Fairfax Colon and Rectal Surgery PC Fairfax Virginia. After the removal they know the reconstructive people. I did not have the reconstruction yet. Im back in NY.
One of the concerns is sequence... should the stump and abscess surgery and problems be addressed, completely,.. before the chemo....done concurrently with the chemo... or after as you indicate.
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