Not feeling well

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 8/29/2009 7:57 PM (GMT -7)   
Hi all, Sorry I haven't posted in a while. I have been lurking though.
Well I had been feeling pretty good until about 3 weeks ago and then all H_ll broke loose. I've been having alot of "D" lately, it started about 3 weeks ago and has been getting worse. Today I feel like absolute crap. I've been to the bathroom at least 6 times and it is all liquid. I took an imodium this morning and had a bannana, yogurt and whte toast. Tonight I started having bad cramps and have been to the bathroom twice already . My diet has been some what the same but I hadn't had any problems before with eating anything else. Any ideas as to what is going on? I'm kinda regretting the resection right now as i thought that i was going to be as close to normal again.
This is really taking me down emotionally and physically. I pray that the Crohns is not back again..
I need some help!!!
Thanks!!
Wolfie
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Protonix,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 8/29/2009 8:32 PM (GMT -7)   

Hi Wolfie, I was wondering how you were doing. Like you, just lurking as I am feeling good.

Sorry to hear you are having problems. I hope this is a temporary thing and you can get things back in control.  Maybe the Asacol isn't enough for you?  Could it be some kind of flu bug? 

Maybe others can be more helpful but I am thinking about you and hoping for the best.


57 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/29/2009 9:58 PM (GMT -7)   
There are several possibilities. First would be a food intolerance. If you are eating something that you are intolerant of, it will cause the kinds of problems that you are experiencing. You should be able to find a naturopath or other alternative medical practioner who can test you for food intolerances and help you plan a diet to avoid them.

Second is C difficile. It can cause your symptoms, but unless you have been on antibiotics around the time of your relapse, it is less likely.

Third is SIBO (Small Intestine Bacterial Overgrowth). It is usually caused by reduced peristalsis and can be caused by strictures or other problems that slow peristalsis to a crawl. One known cause of SIBO is PPI's like Protonix. They reduce your stomach acid pH to the point that your stomach digestive enzymes don't work. When the undigested food is passed to the small intestine, sensors there slow down peristalsis so that the food can be digested. This normally is not a clinically important situation, but if your digestion has other issues - like scarring from your surgery - it can cause problems. SIBO can result in either C or D and its symptoms look just like Crohn's. You might want to ask your doctor about using an older type of stomach acid blocker. The older H2 blockers work on inflammation and do not prevent proper digestion.

You doctor may want to use antibiotics to kill off the bacterial overgrowth. That is fine, but it can cause its own set of problems. You can get relief quickly by just doing a colonocopy prep - laxative and liquids (avoid sugary drinks) for a day. That should move the bacteria out and give you the chance to restore peristalsis. To do that, avoid PPI's (get some of the older H2 blocker meds), use digestive enzymes (especially lipase) and drink lots of water. In the event of acid reflux, eat an apple.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/30/2009 7:10 AM (GMT -7)   
Since this has been going on for three weeks, I would suggest seeing your doctor. If it was something bad you ate, it would have gotten better in a few days. I just was treated for SIBO and I didn't have diarrhea with it, I had ALOT of gas and bloating anytime I ate anything. For a bit I was freaked out thinking I was blocking again, but it turned out to be SIBO. I have been doing great since I got off the anti-b's and changing up my Probiotics. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 8/30/2009 7:21 AM (GMT -7)   
Thanks Bammer! I was wondering how you were doing also. Glad to hear your feeling good.
Keeper, thanks for the info. I did not know that about Protonix. I'm going to call my doctor first thing in the morning. I started Protonix while on Pred. My doc said that I have acid reflux and need to be on something. Once off the Pred I quit the Protonix and when my doc found out he said that I need to be on it for the rest of my life . I wonder if he knew about this before hand? I do take Probiotics and I rotate from Align to Floragen3, I thought this is supposed to keep the bad bacteria in check! I should probably try and stay away from sugary foods but it is hard to do so. I'll work harder on that. I don't drink soda and I quit coffee but on ocaasions have de-caf. I drink lots of water about 8-10 bottles per day. I think I'm doing all the right things other than the surgar problem, but who doesn't like cookies and a candy bar.
Thanks for info and I'll post what my doc says.

Thank you!!
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Protonix,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/30/2009 7:27 AM (GMT -7)   
You know Wolfie I had another thought. I got a stomach bug awhile back, my hubby got it too. There's one going around in our area right now. Hubby was fine the next day, but I felt like crap for weeks afterward. I think part of it was the beginning of SIBO, but part of it was just recovering from that stupid bug. Sending healing hugs your way.
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 8/30/2009 9:13 AM (GMT -7)   
I have a huge sweet tooth too Wolfie! Being on SCD hasn't changed that, unfortunately. Maybe when it strikes, you could have a spoon of honey? It's absorbed quickly, so the bacteria don't get a chance to feed on it. You can also make cookies and whatnot with honey instead of sugar.

Hope you feel better soon!
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 8/30/2009 1:57 PM (GMT -7)   
How do the doctors check for SIBO and what are the treatments?
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Protonix,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/30/2009 2:19 PM (GMT -7)   
The only test that they might do is a breath sample which they test for gases. If they think that SIBO might be involved, they may want to just put you on a trial course of antibiotics, rather than do the tests. The tests are not very specific.

Blossom
Regular Member


Date Joined Mar 2008
Total Posts : 176
   Posted 8/30/2009 7:34 PM (GMT -7)   

Hi Wolfie40,

So sorry to hear you're having problems so soon after your ileocecectomy!  I certainly can understand your concern.  I just had my first surgery too on 7/30, and am hoping to never have to go through that again.

I agree with Nanners that you should definitely contact your doctor.  Hopefully it's nothing serious; has an easy fix; and contacting your GI may put your mind at ease.

Am anxious to hear what your doc has to say.
 
Take care!
54 year old female;
 
Have had Crohn's of terminal ileum for over 9 yrs.   My first small bowel surgery was on 7-30-09.
 
On Humira since Dec. 2008.  Allergic/hypersensitivity to Pentasa, Entocort, and 6-MP.  


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 8/30/2009 10:36 PM (GMT -7)   
I was just reading that the antibiotic Xifaxan is really good for SIBO. Is that what you took Nanners?
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/31/2009 7:00 AM (GMT -7)   
No they gave me Cipro, Spooky. For the SIBO it worked really well for me and didn't give me diarrhea like some anti-biotics do.

Wolfie, my doc didn't do any tests, but I do understand their is some kind of breath test they can do. My doc just said he thought thats what it was and decided to treat it. Said if I had any problems just to call him back and we would go from there. But the Cipro did its job and I feel sooo much better now.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 8/31/2009 3:52 PM (GMT -7)   
Well, I feel a little better today I only have gone to the bathroom once at my usual time , i'm hoping that it was something that I had eaten. I'm still going to call my doctor and let him whats going on and see if he has any ideas. I've been leaning towards going on different medication and see if that helps any. Maybe the Asacol isn't doing it's job and time to move on to something else.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Protonix,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 8/31/2009 4:22 PM (GMT -7)   
Glad to hear you are feeling better.

57 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 8/31/2009 11:06 PM (GMT -7)   
Glad your better today!

I used to take Asacol, and when I got a new GI, he switched me to Pentasa. I think it was probably a good idea, since the Asacol doesn't break down till it hits lower in the intestines.
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 9/1/2009 3:20 AM (GMT -7)   
Spooky, How are you doing on Humira? That was one of my options along with Methotrexate and Imuran.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Protonix,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 9/10/2009 5:33 PM (GMT -7)   
Well I went to see my doctor and here is what he said.
We are going to do the step back approach. I was on 8 Asacol per day now he wants me on 4 per day. Stop the Protonix and switch to Pepcid complete. Start Questran every day.
Test's include: Stool sample to check for bacteria and immflamation, blood work CBC, liver and Thyroid.
The reason for doing all of that is because Asacol on high doses could cause "D". Long term use of Protonix is the same way. Questran will help bind the bile salts and slow the "D".
I'm happy with this approach and that he is not pushing Imuran, Metho or Humira just yet. He said that if there is any immflamation  he will then have to do a colonoscopy and see whats going on.
If you have any advise, I'd really appreciate it.
Oh by the way, I have been feeling better the last 2 days.
Thanks!!
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Protonix,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 9/10/2009 5:38 PM (GMT -7)   
Sounds like your doctor is being thorough, which certainly is a good thing. I hope the new approach really works for you. And I am glad you are feeling better!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 9/10/2009 6:57 PM (GMT -7)   
Wolfie40 said...
Spooky, How are you doing on Humira? That was one of my options along with Methotrexate and Imuran.


I've done pretty well with Humira. I've been taking it over a year now. However, once I have surgery (to remove some scar tissue), the surgeon thinks I should be able to stop taking it. At that point, I hope to get my GI to prescribe LDN.
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 9/10/2009 7:14 PM (GMT -7)   
I wish my GI would let me try LDN. He's not sold on it yet.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Protonix,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 9/10/2009 9:42 PM (GMT -7)   
Have you shown him the studies done on it? I printed off the info at http://www.nature.com/ajg/journal/v102/n4/abs/ajg2007152a.html and some of the stuff from http://www.lowdosenaltrexone.org/ldn_and_ai.htm and gave it to my doctor. She said she would look into it, so I have my fingers crossed.

Also go to http://www.ldninfo.org/ldn_trials.htm to find info on the clinical trials that are going on.

Hopefully some of can sway your doctor!
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 9/11/2009 3:36 PM (GMT -7)   
I did print alot of info on LDN and gave it to my doctor. He has not said anything yet.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Protonix,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 09, 2016 4:35 PM (GMT -7)
There are a total of 2,735,547 posts in 301,315 threads.
View Active Threads


Who's Online
This forum has 151417 registered members. Please welcome our newest member, porkdot.
291 Guest(s), 13 Registered Member(s) are currently online.  Details
imagardener2, hypoHashimoto, middleaged1, getting by, magoo2, Charmed3, NiceCupOfTea, ChickNorris, U B Tough, Fairwind, exqualls, Tall Allen, UCmas


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer