Why a relapse?

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73monte
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Date Joined Mar 2007
Total Posts : 1499
   Posted 8/30/2009 7:01 AM (GMT -7)   
I check in here daily, but haven't posted here in quite some time. My daughter has been seemingly doing extremely well, since this past Christmas when she was Hospitalized with an abdominal abscess, and plenty of inflammation in her TI.  Since the initial Prednisone and drain line treatment, she was put on Imuran. She has recovered totally with no issues, and living a normal life.
This morning she woke up in excruciating pain in her lower right side. (Terminal Ilium). Minor diarreah and lots of gurgling throughout. 
She's quite worried about relapsing. I guess I could just ask her question. Is it possible to have everything apparently fine, then have a sudden onset like this? Can the Imuran which seems to be working for her, suddenly stop working? School starts next week, and she just got her first job. To quote her, "I don't have time for this"
Thanks for listening.
 
Tom
 
My daughter was diagnosed Feb. 19/07, (13 yrs. old at time of diagnosis), with Crohn's of the Terminal Illium. Has used Prednisone and Pentasa. Started Imuran (02/09), had an abdominal abscess (12/08). 2cm of Stricture.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/30/2009 7:06 AM (GMT -7)   
Sometimes something we eat will stir up trouble for a couple of days. Is there something maybe she ate that she shouldn't have? For example for me, I wanted chinese food one time, this was back when I ate red meat. I love the broccoli and beef, I ate it and by the next morning I was in so much pain, had alot of gas and gurgling, and terrible diarrhea. It took a few days for this to work thru me, but after that I was fine. Maybe the samething happened to Holly? Even in remission, I still have a few bad days when I have eaten something I shouldn't have or had alot of stress. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

73monte
Veteran Member


Date Joined Mar 2007
Total Posts : 1499
   Posted 8/30/2009 8:23 AM (GMT -7)   

Hi Gail,

Yes, that's what I'm hoping it is. I wasn't sure whether that's wishful thinking or not. I did put a call in to the clinic and left a message with nurse to get her recent bloodwork looked over just in case. She has her first day at her new job, (indoor water park), tomorrow.

Tom.

 


My daughter was diagnosed Feb. 19/07, (13 yrs. old at time of diagnosis), with Crohn's of the Terminal Illium. Has used Prednisone and Pentasa. Started Imuran (02/09), had an abdominal abscess (12/08). 2cm of Stricture.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/30/2009 8:53 AM (GMT -7)   
Poor baby! I can really relate to be excited to do something then having a bad day(s) and getting so bummed. These are times you really hate the disease. Just watch her for a few days. I usually allow myself about a week, if not better, then I know its time to talk to my doc again. Sure hope its just a bad day or two and she is feeling right as rain soon.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 8/30/2009 9:20 AM (GMT -7)   
Stress can aggravate crohn's. A new job and school starting could possibly be part of the reason for a sudden flare.
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 8/30/2009 11:06 AM (GMT -7)   
Yes, that's the nature of the disease unfortunatley, it's one ugly rollercoaster ride...I hope she finds relief soon and is able to nip it in the bud.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/30/2009 3:02 PM (GMT -7)   
You might want to raise the stress issue with her. Learning some methods for handling stress may offer some benefit in the longer term. In the short term, it may be necessary to have a course of prednisone. Food can certainly be a factor due to food intolerances (which differ from person to person) and may be part of the problem also. Regular doctors don't seem to want to get into intolerance testing, so you might want to look for a naturopath or someone who will do it. There is a medical blood test called RAST which tests for blood reactions to food allergens, but doctors often don't use it because it can indicate food sensitivities where no noticeable reaction is caused by eating that food. My idea of why this is so is that it does not trigger an allergic reaction unless the gut wall is compromised. The gut wall performs a barrier function that keeps bacteria and other foreign substances away from the immune cells thereby avoiding constant immune episodes. In the case of stress, the gut lining becomes more permeable and bacteria/bacterial products or food proteins can then trigger any existing immune reaction. There are a number of other causes of permeability, but stress is the most common and hardest to avoid.

73monte
Veteran Member


Date Joined Mar 2007
Total Posts : 1499
   Posted 8/30/2009 5:26 PM (GMT -7)   
Thanks for all the responses. I guess it could be alot of things. It's so difficult trying to second guess this disease at times. I suppose sometimes it could just be a plain run of the mill stomach ache, or flu bug. She seems fine at the moment. Going to try a few days of bland foods though. The past six months, you wouldn't even know she had this disease. I guess you should never get too over confident. 
 
Tom.
My daughter was diagnosed Feb. 19/07, (13 yrs. old at time of diagnosis), with Crohn's of the Terminal Illium. Has used Prednisone and Pentasa. Started Imuran (02/09), had an abdominal abscess (12/08). 2cm of Stricture.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/31/2009 7:06 AM (GMT -7)   
Tom,

Your daughter is going to have many bumps in the road. I am in remission right now, and I still have those bad days. As I said before if I am really stressed, or even when I eat something I shouldn't have it will get me down everytime. Also, I had a stomach bug about a month ago that took me about 4-5 days to get over, while my hubby had it at the same time and was fine the next day. Hope she is feeling better soon.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

AyurvedaHeals
New Member


Date Joined Aug 2009
Total Posts : 7
   Posted 8/31/2009 7:24 AM (GMT -7)   
Naturupathic doctors are great. There is a big difference from a true licensed Naturopathic doctor and these other people calling themselves naturopaths though. Not that the other naturopaths are bad, I just want you to know there is a difference in education level. Environmental medicine doctors also do good allergy testing. That's who I used to see. I agree about stress being a likely cause though. Daily meditation can do wonders. Something like yoga classes would be extremely beneficial for calming the mind and soothing the gut.
Crohn's since '98. All I take consistently are Ayurvedic herbs. Exercise is essential. I do Qi Gong and lift kettle bells. I study Ayurveda and a little traditonal Chinese medicine.


Illini
Regular Member


Date Joined Dec 2007
Total Posts : 298
   Posted 8/31/2009 1:33 PM (GMT -7)   
Could be stress or something she ate. I think you should try not to be alarmed by one bad day--it may raise the stress level unnecessarily. If she continues like this for a few days, then it would be more serious (or if she is running a fever, then it's worth talking to her doctor).

Also worth mentioning since this is your daughter... I feel OK most of the time, but during "that" time of the month everything goes downhill FAST. Fine one day and then the next I have pain, lots of gurgling, and D no matter what I eat. At this point I swear off solid food entirely for 3-4 days every month because of it. It resolves on its own and then everything's fine.
July 2007 Drug-Induced Liver Injury
January 2008 Crohn's Ileitis
Currently trying... Enteral Nutrition, VSL#3, Primadophilus Reuteri, Folic Acid, Vitamin E


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 8/31/2009 3:34 PM (GMT -7)   
I've woken up with days like that. It's just a normal part of living with this disease unfortunately. I stick to soft food or only liquid and make sure not to overexert myself. It generally resolves itself in time as long as I'm careful.
I hope your daughter feels better soon. Don't let her boss overwork her!
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 5 mg, pentasa 2 pills 4x a day, omeprazole in the morning, and a women's multivitamin. I'm also trying a B vitamin complex, but it doesn't seem to be working so I'm considering the shots.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


medchrt1
Veteran Member


Date Joined Sep 2005
Total Posts : 517
   Posted 8/31/2009 4:29 PM (GMT -7)   
I recommend consistent support but not overpowering. Her response is indicative of dealing with typical influences at her age plus the frustration of the reappearance of the disease,and unfortunately crohns can appear even if the meds are taken, so acclamating to this might take a long time. I believe that work and school might be too much for some people with this disease, but this doesn't necessarily point to the reason for the flare or new symptoms. I check in here alot too and would listen to any of her concerns.

73monte
Veteran Member


Date Joined Mar 2007
Total Posts : 1499
   Posted 8/31/2009 6:10 PM (GMT -7)   
I really want to Thank-You all for taking the time to offer some advise and assistance. I did forget to mention that it was that time of the month as well for her, (Illini). I'm not sure if that is significant or not. She doesn't have any fever and today she feels quite good with no discomfort. 
I have really been banking on the Imuran being a Godsend. I wouldn't like to think that it could stop being effective so soon. The nurse should be calling in the next couple of days with her recent blood test results.
Her next appt. is in October. We get to meet her new GI. Then next May, she goes to the adult clinic, where she will get yet another GI. 
 
Thanks,
Tom.
My daughter was diagnosed Feb. 19/07, (13 yrs. old at time of diagnosis), with Crohn's of the Terminal Illium. Has used Prednisone and Pentasa. Started Imuran (02/09), had an abdominal abscess (12/08). 2cm of Stricture.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/1/2009 6:14 AM (GMT -7)   
Oh Tom if it was her time of the month, then that is the likely culprit. I ended up getting a complete hysterectomy at 36 (already had my 3 girls) because I would be so miserable from the time I ovulated to the time my monthly came. It seemed like back then I had one good week a month. I hated how sick I always felt at that time of the month. When I was younger I felt that the birth control pill really helped to offset all that misery each month. After I got my tubes tied and went off the pill is when each month became so miserable. Hope that helps a little and hoping she gets feeling better soon.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 9/1/2009 6:37 AM (GMT -7)   
I also think stress and time of the month can be strong contributors to it. Starting school and a job might be a little much, but time of the month causes swelling around the uterus as well. Which can put more pressure on your guts and generally give d and pain to even non-crohnies. I mean look at all of what midol treats.  Just from being on this board and listening to my fellow crohnie females... I think endometriosis might be also a little more prevelent in crohnies.


Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 9/1/2009 7:41:50 AM (GMT-6)


lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 9/1/2009 7:43 AM (GMT -7)   
Even in periods of remission I have days like that - usually down to stress or before I got my 'time of the month' sorted, I often do not even realise I am stressing about something until I get the stomach issues, but I do tend to find that if I make myself relax/deal with the problem and give it a day it does tend to clear up. Glad she's been doing so well hopefully it is just something minor that can be dealt with easily.

 
 


73monte
Veteran Member


Date Joined Mar 2007
Total Posts : 1499
   Posted 9/1/2009 6:40 PM (GMT -7)   
Yes, perhaps stress is the culprit, or stress combined with that time of the month. The Nurse did call today, and told us that her blood work was quite good, but because she's had an abscess, she wants us to come in if this recurs. At our next appt. she will likely have to have the metabolites checked again, to see if the Imuran is at an optimum dose.
 
Thanks,
Tom.
My daughter was diagnosed Feb. 19/07, (13 yrs. old at time of diagnosis), with Crohn's of the Terminal Illium. Has used Prednisone and Pentasa. Started Imuran (02/09), had an abdominal abscess (12/08). 2cm of Stricture.

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