crohns/colitis/lupus/hyperthyroidism-seton fistula pentasa prednisone cipro flagyl vicodin Ultra
waiting on Remicade
HI frogelita, I’m feeling ok, but I am literally too scared to look at my mushroom drain and seton and fistula at the moment – call it denial, but I just don’t want to look back there, it scares the hell out of me….. so for now I am just waiting it out to hear about when I might get my remicade….. and after that I will see the surgeon about my mushroom drain and seton and ever-widening fistula-that-scares-the-poop-outta-me….. I don’t want to look.
When I was on 3 flagyl a day I noticed a LOT more adverse side-effects than when I was on 2 a day…… on 3 a day I experienced anxiousness, and from your posts I feel you may be experiencing that too…… it makes everything worse and really compounds the problem and sometimes you don’t even realise that its happening, its all part of the internal struggle of the anxiety. I would freak out over the smallest things and get paranoid, and I just didn’t feel like myself inside my own skin if that makes any sense. When I explained this to my GI I was told to go back to 2 a day. I became very anxious and depressed on 3 a day so just be wary of your moods and how much you are freaking out, because it might just be the meds. Setons take a bit of time to get used to but you CAN do it, it just requires a lot of patience and try to stay calm. I know it’s easier said than done but I only had 2 days off and had to return to work with this excruciating gaping hole in my butt, and it wasn’t easy, but If I can do it anyone can!
I would definitely see a dr about your side-effects, the hairloss could be from the pred? I’m not sure…. I don’t have a lot of experience on pred and have only been on very low doses for only a few weeks at a time….. but you definitely need a professional opinion on that one…. I hope you feel better soon ^__^
crohns/colitis/lupus/hyperthyroidism-seton fistula pentasa -Remicade in process