ANYBODY THAT CAN HELP!!!!!

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Kellznpc8784
Regular Member


Date Joined Jun 2009
Total Posts : 46
   Posted 8/31/2009 4:26 AM (GMT -7)   
I went to see my doctor on aug 18th. I am still taking the pentasa 500mg. 8 a day... im having a bad flare so she uped my pred. but wanted to put me on iv drugs but I dont have any insurance so she wrote me out for Imuran but once again I cant afford it. I get help with my pentasa 500 mg. but they wont help me with any other medication. I dont know what to do. I checked into Insurance but all of them want $500 and over a month and I cant afford it. I cant work because of my joints are so swelled and hurt 24/7.. and I broke my back when I was 12 in 5 diff. places and every since then I have had problems with it... but I read on the net that crohns can affect your back also. I dont know if the pain and problems are coming from crohns or from breaking it. But my bones in my back or detearating. I have scoliosis and arthritis in my back. I was getting shot treatments for my back but had 2 quit them 3 years ago. b/c they fired me for being off work with my back. so I had 2 drop my insurance and havent had any since... My husband works at a 18 hole Golf Course but they dont have any insurance because only 3 guys work there. He makes a lil over 19,000 a year.... I have been trying to get disability for 3 years now got denied once filled out again and got a lawyer to fight it. but have been waiting for a court date for 3 years now. I also tried 2 get a medical card and got denied for that also. I dont know what else 2 do. I am up 2 my heels in doctor bills and im trying to pay what I can on them... but I dont know what else to do or who to try and get some help from. I live in West Virginia so if anybody knows anything that can help me please let me know............
 
Thanks, Kelly

Post Edited (Kellznpc8784) : 9/1/2009 5:18:27 AM (GMT-6)


AyurvedaHeals
New Member


Date Joined Aug 2009
Total Posts : 7
   Posted 8/31/2009 6:00 AM (GMT -7)   
Hi Kellz, I have Crohn's. I've had symptoms for over 10 years. I use only holistic medicine to treat Crohn's. I have nothing against allopathic medicine, it just didn't work for me. Acupuncture works great, herbs do too, but they can be expensive as well. My first experience with holistic medicine was with Ayurveda, India's ancient medical system. At the time I had been taking 16 pills of Pentasa a day and was taking 1-2 Immodium a day to give me solid bowel movements. So I went to this alternative medicine expo thinking most of the people at the expo are probably crazy, but I was willing to take a chance at that point. I was having digestive problems when we went to the expo so I was a bit uncomfortable for that reason too. I find this Ayurveda practitioner who takes me into a breathing exercise called pranayama. You may have heard of this, they use it at a lot of yoga studios. This was a special kind though, it was more complex. He had me taking extremely deep breathes at a fast pace for what felt like half an hour, but probably was only 10 minutes. I felt amazing when the exercise was over. People who watched commented on my complexion and brightness in my eyes.

The next day I had to stop taking Immodium because I was constipated for a change. I practiced the breathing exercise by myself but couldn't do it with the same intensity. After a few days of solid bowel movements without Immodium I also stopped taking Pentasa. I continued to have solid bowel movements for 2 weeks until I ate soy or spicy food, something I usually avoid. This healer moved far away shortly after and I haven't been able to see him since. I've seen many other healers since then and none could do what he did. But I've still found good healers. I take an Ayurvedic herbal formulas, do Qi Gong, and some other things but I don't want to go on too much.

Anyway, that breathing exercise is a cheap way to go. I still do it from time to time. But to be honest, now that I don't HAVE to do it, I get lazy about it. It is a challenging exercise. So my recommendation to you is to look for an Ayurveda practitioner or a really good yoga instructor who may be able to teach some powerful exercises. Call the yoga studios and ask them how much pranayama they know. Tell them about your condition. Also ask them if they know of any Ayurveda practitioners in the area. Many will work on a sliding scale. You may also want to look for a community acupuncture clinic in your area. Their prices can be very low. You'd probably need to get a few treatments a week at first if you're having a really bad flair up. Then after a month or so go down to one treatment a week probably for a long time. I had acupuncture almost every week for a year. It may not have been absolutely necessary, but it speeds up the healing process so why not. There is a website with community acupuncture clinics listed. But seriously, give the pranayama a good try. There are some amazing yoga and qi gong teachers out there, and which one you see can make all the difference. I've met people with amazing qi gong healing stories. Pentasa helps, if you can afford to stay on it, then do. By the way, I study Ayurveda and had studied a little traditional Chinese medicine first. Good luck.

EDIT: I can't believe I almost forgot to mention raw food diets. They aren't used in eastern medicine. They are tricky to transition to, everyone's body is different. I haven't tried one myself, but I've read a ton about them and in the end they seem to work almost 100% of the time for reducing inflammation and healing the GI tract completely. They often make people weak. Personally, I think that no matter what the down side is, following the raw diet during the healing phase is worth the weight loss and weakness if kept to a minimum. There are many different raw diets out there and some are more controversial than others.

Post Edited (AyurvedaHeals) : 8/31/2009 7:18:20 AM (GMT-6)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/31/2009 6:45 AM (GMT -7)   
Hi Kelly,

Have you tried contacting the makers of Imuran and seeing if they have some kind of patient assistance program? That might be a suggestion to help you get the meds you need.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Kellznpc8784
Regular Member


Date Joined Jun 2009
Total Posts : 46
   Posted 8/31/2009 9:36 AM (GMT -7)   
Nanners said...
Hi Kelly,

Have you tried contacting the makers of Imuran and seeing if they have some kind of patient assistance program? That might be a suggestion to help you get the meds you need.

Hugs
Gail*Nanners*

 

 

I contacting the makers of Imuran and they dont have any type of assistance program. They said there is nothing they can do..... Kelly

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