SSI/ Disablitlity

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beca123
Regular Member


Date Joined Jan 2003
Total Posts : 224
   Posted 8/31/2009 4:16 PM (GMT -7)   
I have a phone interview with them on Wed. I am very nervous. Any advice?
 
I really need this, as well as the medicaid that comes along with it.
Beca
 "The Lord wont give me more than I can handle,i just wish he didnt trust me so much!"
  "let people be people before they are patients"


medchrt1
Veteran Member


Date Joined Sep 2005
Total Posts : 517
   Posted 8/31/2009 4:54 PM (GMT -7)   
Jot down some facts for yourself, when diagnosed, job situation , last work date etc. ... information so you feel comfortable talking on the phone but have some notes in front of you in case you get asked. Some general questions might come up and so you have some general info written down in advance. If not, take notes for what info they want, and ask to call them back to provide them with the info they requested.

dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 8/31/2009 5:51 PM (GMT -7)   
The medicare takes 2 years after the date they claim you to be disabled. My medicare just kicked in in august since they retro'd my SSDI to Aug 2007. the phone interview I had was basically asking meds I was on issues I have last time I worked, types of work I did education etc
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 9/1/2009 3:31 AM (GMT -7)   
Just tell the truth and don't try to make it more than what is really is or less than what it really is. I love the quote from Brigham Young " A person does not need a good memory if they always tell the truth". I say this because I am currently on SSDI and was approved after only a few months due to my lawyers help. One of the things that my lawyer told me was to not to not try and make it sound like I am dying if I am not but to let them know what this disease has done to my lifestyle. I agree with taking notes for things like dates and enourage you to make sure that you get the person that interviews you to give you their information so that if things come back you know who you spoke with. If you have a way of recording the call I would also do that. Do not be surprised if your are turned down a few times and do not take it personal. I was turned down the first time and the letter even said that I did not have crohns and was perfectly healthy.(at this point I had been on remicade for 3 years and had multiple surgeries, and been determined fully disabled by my employer and the doctor they hired) They do this because they want to weed out all of the people that are not really that sick or sick at all and want a free ride. Do not be afraid to tell them the good things that you can still do on good days, but let them know what bad days are like. That way when you are approved they can not come and video you doing something or observe you doing something you said that you could not. I made sure to put that I love to hunt and fish but now have to use an ATV instead of hiking, an RV instead of a tent, and can not go out but once or twice a year. I let them know that even though I am disabled I am not dead or in a coma.
Do not try to play off of these people and their sympathy because it will not be there. They may be great people in their personal lives, but remember they are paid to listen to people talk about their problems and pains and then judge who gets help. They are paid to see who is lying and who is not deserving and they know who is playing it up. You would be shocked the lengths that some people go to get on disability even though they are not even sick. If you can hire an attorney, I would do so but if not then don't give up.
As for the medicare situation, if they determine that you are permanantly disabled, they can make special exceptions to get you medical benefits right away. I know this because my lawyers made this possible for me even though I chose not to use it because i have benefits through my wife. If you have any questions I would be more than happy to help you through the process any way that I can. Plan on it taking a few years and maybe you will luck out and get approved in a few months. My lawyer told me their average client gets approved after 2 years and with Crohn's disease it usually takes a hearing to get approved. This was not the case for me as I was only turned down 1 time and others here have even been approved the first time. Plan for the worst but hope and pray for the best.

Jin_Rou
Regular Member


Date Joined Aug 2009
Total Posts : 24
   Posted 9/1/2009 3:39 AM (GMT -7)   
Always be honest with objective facts, but the doctors that are hired by the state get paid to weed people out and turn people away rather than to rubber stamp your complaints. It is perfectly fine to play up your subjective feelings and painful experiences, but do not make up symptoms that dont exist or alter the timeline.

Also, you need to make the case that you are not only unable to work during a flare but that you will continuously be unable to work for at least 12 months straight.

tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 9/1/2009 5:01 AM (GMT -7)   
good advice Nick_Jinn. That is what I was trying to say but you said it even better

beca123
Regular Member


Date Joined Jan 2003
Total Posts : 224
   Posted 9/1/2009 6:40 AM (GMT -7)   

My thing is is that if there was a program through medicare that i could get and was able to get the medical attention i need, I wouldnt need SSI ya know? My crohns came back bad because I got off my moms insurance and couldnt get my remicade....now I am sick, and now that I have been off the Remicade for so long, I had one infusion when I was in the hospital and its not effective. Its just a big emotional and physical mess and i am not so sure I am strong enough to not give up. I cant afford a lawyer and I dont have 2 years, by then I will have withered into a ball of nothingness with a pile of hospital bills(that are already piling up).....can I just say....I HATE THIS DUMB DISEASE!!!!!!

thank you all for your advice.


Beca
 "The Lord wont give me more than I can handle,i just wish he didnt trust me so much!"
  "let people be people before they are patients"


tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 9/1/2009 6:57 AM (GMT -7)   
Do you attend a university? Most university will offer free basic medical care and the opportunity to buy insurance through the University. I had to do this when I first started school and my dad retired. It was not always cheap but was less expensive then cobra. Cimzia also offers medication assistance programs even for those with insurance. It is called cimplicity. Most of the different pharmeceutical companies offer some type of programs. As for the pile of medical bills I completely understand and you need to go and talk to one of the financial counselor at the hospital to get set up on a payment plan. Due to all of the tests that I have done, my hospital has set me up on a payment plan at 0% interest that I have been on for 6 years now. They even let me set my minimum payment amount and the day I pay it. Most doctors will also work with you about these same payment plans as long as you follow through with the payment.

Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 9/1/2009 7:22 AM (GMT -7)   
Beca,,should you need a lawyer , most of them take a portion of your back pay and not a set fee. For example, you apply in Jan. and he gets your SSDI in Oct. he will take a % of the 9 month back pay you will receive. It should not cost you out of pocket. I know the wait is crappy but this is the way it is. Meanwhile, talk to your doctors. There are programs that will help with med cost and medication. Hang in there and keep us up to date. We are pulling for you....
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


tnvolunteer
New Member


Date Joined Jun 2009
Total Posts : 14
   Posted 9/2/2009 5:42 AM (GMT -7)   
You should prepare yourself for an initial denial.  This is standard practice for SSDI.  No worries, you only need to appeal and will likely get accepted.  If the 1st appeal does not work, you have not exhausted your options, a 2nd appeal would be in order and your case would be heard before an ALJ (administrative law judge).  The ALJ almost ALWAYS will reverse any prior opinions.  Additionally, you will be a MEDICARE recipient, not MEDICAID.  You will not immediately be accepted for Medicare.  You will be eligible for Medicare 29 months after being accepted for SSDI, but may not actually be a Medicare recipient until 24 months after you receive your FIRST SSDI payment.  Hope this helps

TNVolunteer Mom
-------------------------------------------------------------------------------------------
Mother of 8 yr old w/CD
DX: 4/09
Pentasa 500 mg/bid, Remicade, Prevacid 30 mg/day
Fish oil, Probiotics, Miltivitamin, Liquid Aloe, Folic Acid, B6, B12

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