Update on my surgery, my Crohn's and Low Dose Naltrexone :)

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janicea
Regular Member


Date Joined Feb 2009
Total Posts : 350
   Posted 9/1/2009 8:47 AM (GMT -7)   
Last friday I had surgery for adhesions that had formed around my intestines and bowel, which made them all stuck together and prevented me from eating. I also had my appendix located (no one had been able to find it in CT scans etc) and removed. The surgery was a total success I was in surgery at 7:30am and out shopping at 3pm without pain meds.

In the process of going over every inch of my colon and intestines -- this surgeon was very through and experienced with crohn's patients - he said that I either did not have crohn's or was in complete remission.

I m assuming I am in complete remission because of the Low Dose Naltrexone -- as I was unble to tolerate ANY other crohns medication. and also since I have pyoderma gangrenosum which is associated with crohns -- which is now 90% healed in the 3 months since starting LDN.

I thought as my last topic on this board it woud be a good public service to let you all know that 3 months on LDN put my colonoscopy/endoscopy diagnosed Crohn's into complete remission, according to my syptoms and also according to the visual inspection by the surgeon. Apparently active crohn's can be seen also from the outside of the intestines, via the thickening and general ill health of the intestine itself.

Flame on, or not for my post, however I'm sure someday, via a search of this board, this post will come in handy for someone.

All the best wishes for all the best health for all of you -- and Adios.
-janice
strictures, crohn's, adhesions, endo. Pyoderma Gangrenosum.
LDN 4.5mg ~ Boswellia Serrata ~ Olive Leaf extract ~ SCD yogurt. Done using silver sulfadiazine on Pyoderma, changed to steriod cream, PG 60% healed in 3 weeks . B-12 shots. Juicing veggies!

Post Edited (janicea) : 9/1/2009 9:56:53 AM (GMT-6)


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 9/1/2009 1:29 PM (GMT -7)   
Good going! Maybe you could drop by after a year or so for another update? Three months is not that long a test for a life-long ailment

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 9/1/2009 2:35 PM (GMT -7)   
I'm glad your surgery was a success and that you are feeling well. But, Crohn's works on a microscopic level. So unless the surgeon was doing a microscopic inspection, I would not consider myself cured.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 9/1/2009 10:09 PM (GMT -7)   
The next time you get a colonocopy, make sure they take lots of biopsies. That's the only way to know if you have microscopic inflammation.

But great news! I can't believe you recovered so quickly from them prodding you like that. I'm thinking of getting LDN too. My surgeon says I should be able to stop Humira after my surgery. I gave my GI info about LDN at my last appointment, and hope she'll be open to prescribing it.
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 9/2/2009 4:05 AM (GMT -7)   
Glad your feeling well and the surgery went well. I'm trying to convince my doctor into LDN. I hope he gives in and lets me go on it.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Protonix,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

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