I am thinking that his biopsies last time showed very high eosonophil counts which could indicate an allergy. If we tried elemental and did a methodical food re-entry, would he be allergic to the formula?
Steven is currently taking a double dose of Remicade every 6 weeks. He is also on 9mg Entocort. His sed rate is elevated and he feels sick and doesn't have much of a life. He does have some improvement for a few weeks after his Remicade dose, so I am thinking that it is helping even though it is not inducing remission. He is not nearly as sick as he was pre-diagnosis, but he can't even go to Walmart without feeling ill.
We just don't know what to do at this point, but I am very afraid of trying the Tysabri.
I am sorry that I have rambled so much. Any advice at this point will be appreciated and considered.
Laura G./ Steven & Jenny/ both CD
P.S. He is also steroid refractory