crohns/colitis/lupus/hyperthyroidism-seton fistula pentasa -Remicade in process
Hi frogelita, I completely sympathise, I am in the same boat with this fistula…… but I just have to have confidence in my surgeon and GI, I know they are the leaders in their field in this disease, so I am confident they know what they are doing….. it is sooo scary though, I hear about all of these side-effects of remi and I freak out…… but I figure I will start it and see how it works for me. If I get the side-effects I will just have to explain to my GI that I am not happy and want something else. I think we just have to try and take it one day at a time. But it is scary. I am having the same thoughts as you. I’ve had the TB test and it came back all clear so that’s all good I just hope this remi is a lifesaver for me as it has been for others, although as my GI says, there is always the risk that sooner or later your body will build up a resistance to it. hopefully I qualify for it and it works, and the same for you…… let us know when your first infusion is (when you find out) so we can keep tabs on you!!