question for SCD dieters

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Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 9/3/2009 6:40 AM (GMT -7)   
I had a question for people on the scd diet. it seems there in no one on the UC line who is doing the SCD diet. Is there anyone on this line.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication-  500mg pentasa,  250 mg  asacol (every evening)
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity
 

MoobyDoo
Regular Member


Date Joined Sep 2009
Total Posts : 212
   Posted 9/3/2009 6:44 AM (GMT -7)   
I have considered trying this diet for my diet, should her symptoms get worse... Would be very difficult since she is only 9 years old. I am familiar with the diet tho. My son (no Crohn's) has autism and I have been reading about this diet and its potential to help children with ASD for years. I have friends who have done this diet for their ASD children. It helped significantly with their bowel issues.

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 9/3/2009 7:10 AM (GMT -7)   
Yes, there are several people here who follow the diet!!! Others follow a gluten-free, junk-free, dairy-free diet, which IS essentially the SCD. In the two years I've been checking in here on this forum there have been many people who have come and gone who had excellent success on the SCD. Osprey is just one who comes to mind...

So, HelloKitty, what is your question?

If you care to read some previous SCD discussions, click on the links in my signature below!

MoobyDoo, are you familiar with pecanbread.com? It is a site geared to parents of younger children on the SCD. I see they've just updated their site. It's awesome! There are also yahoo support groups! Good luck to you!!!
Mom to 17 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium, vit. D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too. Med-free.
http://www.healingwell.com/community/default.aspx?f=17&m=984588
http://www.healingwell.com/community/default.aspx?f=17&m=1533705
http://www.healingwell.com/community/default.aspx?f=17&p=1&m=1262312


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/3/2009 8:04 AM (GMT -7)   
Not only the links Emom provides, but in our Crohns Resources above we also have links discussing Crohns and diets. I myself follow the low residue diet and it work well for ME. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 9/3/2009 9:08 AM (GMT -7)   
Thanks guys. I have been doing the raw foods diet with some sucsess. how ever i have just encouontered a problem. I was eating sprouted beans thinking its ok as they are raw, how ever the next morring after eating the beans i felt terribal. I was in the loo and went about 4 times which is a lot since being raw. I think these are baned from the SCD diet. is that true, no beans even if raw.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication-  500mg pentasa,  250 mg  asacol (every evening)
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity
 

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 9/3/2009 9:45 AM (GMT -7)   
Yes, you are right. In general, beans are illegal on the SCD. Elaine does allow certain beans such as navy and kidney beans if prepared as explained in her book, and ONLY if you are symptom-free.

What kind of beans did you eat?

When I was checking a couple of things to answer you, I ran across this from Wiki. Scroll down and read what it says under "Toxicity". I never knew!!! shocked You didn't soak or sprout kidney beans, did you???

http://en.wikipedia.org/wiki/Common_bean
Mom to 17 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium, vit. D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too. Med-free.
http://www.healingwell.com/community/default.aspx?f=17&m=984588
http://www.healingwell.com/community/default.aspx?f=17&m=1533705
http://www.healingwell.com/community/default.aspx?f=17&p=1&m=1262312


MoobyDoo
Regular Member


Date Joined Sep 2009
Total Posts : 212
   Posted 9/3/2009 11:30 AM (GMT -7)   
I do know all about the SCD diet and have Elaine Gottschall's books, and have been on the website many times. I will consider this diet as a last resort for my daughter. So tough to get a 9 year old to participate in something so restrictive.

Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 9/3/2009 12:02 PM (GMT -7)   
No i didnt have kidney beans. I know they are poisons. I had lentils actually. Today ive now eaten all fruit and feel great no pain only been to the loo twice. I know im doing an extrem diet, but there are alot of people on the raw foods line who have chrones or uc. I seem to be able to handle a fruitain diet. Although i do eat fish occsionaly. I also eat lots of greens, and some nuts.

Mooby Doo the raw foods diet may be too extreme for a 9 year old, but you can take some ideas. i pesonaly would have let your child do the scd as she may become malnurished if not. It seems to be that ibd people or at least what ive been learning now, can not digest complex carbohydrates. Also refind food is a problem.

There are alot of raw food ice creams that your daughter could have, and they are healthy. Ice creams are not healthy for any one, even with out ibd. There are also raw food cakes you can make. Its a complex diet to learn but fruit and veg have all the vitimans iron amino acids you need. I now wish I was brought up on a healthy diet. Ive always had problems with dairy products.

I wish your daughter the best. I wish this awful desiese did not happen to children, i think its unfair.

Sorry i dont have time to spell check.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication-  500mg pentasa,  250 mg  asacol (every evening)
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity
 

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 9/3/2009 9:01 PM (GMT -7)   
Raw foods sometimes don't work well with Crohn's. The problem comes from the extra work needed to digest raw foods. If your gut is not 100% healthy, eating raw foods is going to potentially cause slowing of peristalsis and that can allow more bacterial growth. The problem with bean (lentil) sprouts is that they have a lot of fiber and a lot of starches being converted to sugars. Fiber (at least fiber that is easily fermentable) can cause bacterial growth and so can starches that are already partly converted to sugars. Your digestion does not work well at digesting some kinds of starch and does not digest fiber at all. I had a similar experience with alfalfa sprouts - not an obvious source of sugars/starches and so on, but sprouting does create a lot of partly converted food sources which bacteria like but we don't digest.

Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 9/4/2009 2:09 AM (GMT -7)   
Ok keeper thanks for your info. I havent seen any blood or mucus since being raw, but now i have seen some blood. so im looking at the scd diet and waiting for my scd diet book to come through. Ive felt so much better on the raw foods diet though, what ive expericed is

more energy, better blood tests, better eye site, and no bleeding when me and my husband have it on, (i used to get that which is another sign of something wrong)

its a shame that i have not seen any sign of blood until now this morrning. well its a shame that i saw blood.

the other thing im wondering is why then does david klien and paul nison claim the raw foods diet works.

Thanks for all you help on this line. i got alot of grief for exressing this on the uc line.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication-  500mg pentasa,  250 mg  asacol (every evening)
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity
 

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/4/2009 2:42 AM (GMT -7)   
f.y.i., I read that alfalfa is a big no-no for people with lupus - apparently it contains chemicals that can exacerbate lupus symptoms & inflammation. Seeing as so many of us have multiple (and often undiagnosed) secondary auto-immune conditions, it might be a good idea to be aware of this and to be careful to watch for any worsening of symptoms if you do eat it.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/4/2009 5:57 AM (GMT -7)   
Hellokitty, I will tell you that if "I" ate that raw food diet, I would probably wind up in the ER. I have the stricturing (scarring) type of Crohns and I would for sure end up with obstructions and major pain. I personally think at least for most Crohnies, its best for us to follow either the SCD type diets or Low residue diets. I think these are gentler on the system. Many of us cannot eat raw veggies at all. Though can I say, we are jealous, I would love to chomp on a big salad:) IMO
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 9/4/2009 6:24 AM (GMT -7)   
Hellokitty said...
No i didnt have kidney beans. I know they are poisons. I had lentils actually. Today ive now eaten all fruit and feel great no pain only been to the loo twice. I know im doing an extrem diet, but there are alot of people on the raw foods line who have chrones or uc. I seem to be able to handle a fruitain diet. Although i do eat fish occsionaly. I also eat lots of greens, and some nuts.

Mooby Doo the raw foods diet may be too extreme for a 9 year old, but you can take some ideas. i pesonaly would have let your child do the scd as she may become malnurished if not. It seems to be that ibd people or at least what ive been learning now, can not digest complex carbohydrates. Also refind food is a problem.

There are alot of raw food ice creams that your daughter could have, and they are healthy. Ice creams are not healthy for any one, even with out ibd.


Well, just to clarify further, dried lentils prepared properly ARE LEGAL on the SCD. We eat them fairly frequently. Maybe it was something else you had with your lentils? Or maybe they were not soaked long enough?

I agree with your opinion on ice cream, too. Especially with the added potential for a MAP infection. I'm fairly certain they are not making ice cream from ultra-pasteurized milk... not that that's even a 100% guarantee... and then the further junk they put in most ice cream... it's unbelievable... shakehead

Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 9/4/2009 9:14 AM (GMT -7)   
Dont worry im not suggesting any chrones people do the raw foods diet. I suffer from UC. the self healer david klien and paul nison had uc as far as im aware. At present i do not have chrones or as far as I know. I know how serious chrones is, well uc is pretty serious too, my weight drops really easily. Im only asking about SCD as i tried the raw foods as i cant tolerate alot of meat. The scd diet tough should let me know what i should and should not eat. I have bought the book but has not arrived yet. no one on uc line is doing scd i asked. well it was dumb of me to eat the lentils especially raw. its my own fault i got bleeding. i was doing really well and had none for ages, for the entire 3 months form when i stated. i freak out when i see blood it scares me.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication-  500mg pentasa,  250 mg  asacol (every evening)
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity
 

juliaraquel
Regular Member


Date Joined Sep 2009
Total Posts : 20
   Posted 9/5/2009 5:25 PM (GMT -7)   
Hi I am on the SCD diet. 5 days now. This is also my first ever "chat" submit. I am usually just a guest!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/5/2009 5:40 PM (GMT -7)   

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 9/5/2009 5:41 PM (GMT -7)   
Well, hello and welcome, juliaraquel! smilewinkgrin Best wishes as you embark on this journey! Please keep us posted on how it's going on the SCD...yeah

juliaraquel
Regular Member


Date Joined Sep 2009
Total Posts : 20
   Posted 9/5/2009 9:16 PM (GMT -7)   
Thank you! Unfortunately I've embarked on this journey many many times. I was diagnosed 6 months after my second baby was born. Spring 1999. I had noticed some light bleeding. (I was on Immunoglobulin and 65 mg. prednisone during my pregnancy because my fetus had no platelets) I had no idea what colitis even was. The surgeon who did my colonoscopy told me I had it over the phone, called in a cortesteroid enema, and I never heard from him again. I almost hemmoraghed to death - the nurse told me to try it one more time - same thing. I found the diet 5 months later (and several drugs later). I stayed on it for 5 weeks - stayed in remission for 3 lovely months (while eating anything and everything) but of course it came back. I have tried all the drugs and 8 specialists 1 who wanted to remove my colon (I had only had this disease for 6 months.) All say eat anything you want. I know the diet works. I am giving it a whirl again after being on an antibiotic for an unrelated thing and it has put me in the WORST flare ever - I could not live like that so I am determined to try it again. The first 7 days are the worst (with the die off of many unpleasant hosts in the body). I think if people can stand the first little bit it's worth it! Anyone else tried this longer than a few weeks?

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 9/6/2009 8:22 AM (GMT -7)   
I've been eating SCD for 9 months. It is so worth it! I've had many problems clear up (fistulas, fissures, rectal bleeding, seasonal allergies, acid reflux, constipation, eczema). My blood work is better, and I'm eating healthier than I have in years. I'll probably stay on this diet for life :).
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 9/6/2009 9:34 AM (GMT -7)   
I have no idea whether it's true or not, but one former SCD poster here said he'd read that it takes a minimum of three years of "fanatical adherence" (Elaine's words) to the diet for maximum benefit... All of my son's blood work returned to normal after about 9 months on the diet. Now, two years after starting the diet, he still follows it very closely, "cheating" only when we were on a family trip this summer.

Yes, my son's docs also told him to eat anything he wants...

As I may have mentioned earlier, there are followers of this diet who have come and gone here... You might want to check out/join the BTVC-SCD yahoo group. They are a large, supportive group of SCDers! Of course, there's lots of support here too! wink

juliaraquel
Regular Member


Date Joined Sep 2009
Total Posts : 20
   Posted 9/6/2009 9:10 PM (GMT -7)   
Thank you for your replies! Today I have a new and bizarre symptom. My left thumb and my left foot is all swollen and painful. I can not even walk on it or move the thumb. No injury or anything else like that. Anyone have this? Are they nasty critters coming out? So far the stomach feels great for the first time in weeks. Made the soup w/ squash,carrots and leeks on the nomorecrohns.com website (the best for recipes) - and the lemon muffins in the lucy's cookbook - good but not as good as the carrot ones - Maybe I added to much food to quick but all feels good in that department and i was Starving - a good sign for me! I hope my body's not switching one problem for another. Any ideas?

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 9/6/2009 10:05 PM (GMT -7)   
It could be from toxins the bacteria/yeast release when they die. According to Pecanbread (http://pecanbread.com/p/how/temporarysymptoms.html), the following are things that can happen as your body detoxes:

* Flu Like Symptoms
* fever
* extreme hunger
* nausea and vomiting.
* dizziness
* achy joints and back
* change in bowels (diarrhea or constipation)
* strange skin rashes
* runny nose and funny cough
* headaches
* behavior changes/irritability/tantrums/short tempered
* sleep disturbances

Personally, I get the skin rashes when this happens. Things that can be helpful during these times are taking epsom salt baths and drinking green tea. The baths would be especially good if your joints hurt.
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 9/7/2009 9:47 AM (GMT -7)   
Thanks for everyones advice on this line. I have just got my SCD diet book. it is a really great book, and ive already learnt about mistakes i was making on the raw diet. like no sprouted beans or corn. I want to also give it to my sister in law who has celiacs. I worry as she eats dairy that she may get uc or chrones. Any way it looks amazing, i know i will never go back to the SAD diet. Its not healthy for anyone.

for me im hoping that raw helps me to gain weight. I lost 10lb on the SAD diet as i had diahrrea and blood. I havent gained this back yet.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication-  500mg pentasa,  250 mg  asacol (every evening)
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity
 
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