Thank you, both of you, for responding to my post. At the time of her diagnosis, I remember asking her doctor specifically about dietary restrictions and he told us to stay away from nuts, seeds, rye, etc. No problem, we said...she's only 9 and doesn't like those things anyway.
Other than that, he said diet does not play a part in Crohn's and did not trigger this disease in her. I find that a little hard to believe. When she eats pizza and/or anything tomato sauce she gets an almost instant stomach ache. Fried foods like french fries seem to be a trigger too. Other than that, I'm just not sure...maybe chocolate? Ice cream? Hard to figure out just yet, but we are trying.
I do have a younger son, 6 yrs. old, who is not diagnosed with an IBD but who does have classic autism. I feel strongly there exists a gut brain connection with these spectrum disorders and do feel there's somehow a link between my son's autism and my daughter's IBD now. I am familiar with the special diets associated with both, i.e. gluten free-casein free, SCD, Body Ecology, etc. Being only 9 years old and not wanting a huge life change for my daughter, we were very happy when the prednisone seemed to kick Crohn's in the butt and she got better so quickly. But honestly, I'm not a great fan of these heavy duty meds and am nervous now that she will need them too often for comfort. Can either of you share your experience with dietary intervention? My daughter is extremely resistent to SCD and is a very very very picky eater which would make this all the more difficult.
Thanks so much.
I'm in agreement with most of what curedcrohn's said, except:
Raw foods can be very hard for Crohnies to digest. In fact, as the SCD diet recommends, with active inflammation and especially strictures, it's often best to cook vegetables like carrots, broccoli, etc., until they are soft...otherwise, particles can become stuck or cause lacerations in inflamed intestinal tissue.
Furthermore, our bodies are often better able to digest cooked, rather than raw, foods. For instance, the vitamin A in carrots is more bioavailable when they are cooked - also, cooked carrots should be served with fat added....olive oil, butter, etc...because vitamin A is fat-soluble, so the fat helps to absorb it.
Post Edited By Moderator (Nanners) : 9/11/2009 8:06:07 AM (GMT-6)
Post Edited (Crohn's Kid :() : 9/12/2009 11:33:08 PM (GMT-6)
Thank you. It took me awhile to get here. I've always been a whimp when it comes to my kids....overly smoochy, hopping in bed with them in the morning and singing goofy songs to wake them up....lot's of kisses and hugs.
It's cliche', but true, I'd give my health, my pension, my home......all of it, to have a healthy son. I fight the urge to be jealous of healthy friends of my son (hey, I'm human).
But at the end of the day it comes down to an old story I heard about a man who found himself in a dream standing in a big room of crosses (fill in the blank for Stars of David, etc). He tried lifting several and couldn't. Finally, when he found one he could lift he looked on the back and there was written his name. Right then a voice could be heard and it said: "Those other crosses weren't yours to carry. The one with your name was given to you because I knew you could carry it."
BIDE TIME. Live life. Hug, hug, hug.
Post Edited (joe m) : 9/18/2009 4:36:33 AM (GMT-6)