MAP and Crohn's - 10th ICP Presentations posted online

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chocolate_stains
Regular Member


Date Joined Dec 2008
Total Posts : 61
   Posted 9/3/2009 8:03 AM (GMT -7)   
Just posted presentations from the 10th ICP online at www.youtube.com/ibdvideos (the "i" in IBD standing for infectious of course :)

Easiest way to view the videos would be to go to the playlists page: http://www.youtube.com/profile?user=IBDvideos&view=playlists

MAP causes some Crohn's. Need to demand more research from the government agencies responsible for funding such research and the same goes for the foundations.

Cheers

Post Edited (chocolate_stains) : 9/3/2009 9:13:57 AM (GMT-6)


chocolate_stains
Regular Member


Date Joined Dec 2008
Total Posts : 61
   Posted 9/3/2009 8:28 PM (GMT -7)   
Just bumping.

Also, my opinion on why patients should take an interest in MAP.

1- It causes some cases of Crohn's. So maybe your case of CD is caused by MAP.

2- Antibiotics and other anti-MAP compounds have either been developed and need to be tested or are being developed (and need to be tested).

3- Patients getting involved and pushing for MAP research on screening/diagnosing/detecting and treatment (antibiotics, vaccines, chemicals) is necessary to push and support the research community.

You may also want to push for improved food safety standards, seeing as basically 100% of US dairy herds are infected with MAP.

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 9/3/2009 8:40 PM (GMT -7)   
Thanks for posting that, chocolate! I will watch them as I have time! I am a MAP follower, for sure!

Also, maybe one of the moderators could activate the link? smilewinkgrin

ryan_jordan
Regular Member


Date Joined Jan 2009
Total Posts : 45
   Posted 9/3/2009 9:20 PM (GMT -7)   
Awesome!!! Thanks so much for posting these links, I've been looking forward to hearing about this conference.

blitz
New Member


Date Joined Jun 2009
Total Posts : 9
   Posted 9/7/2009 6:55 PM (GMT -7)   
Great post!  I have seen a lot of data that shows MAP to be present in most Crohn's patients.  I am very frustrated to see (what looks to me) like very little research in the US to find a treatment for MAP.  Instead the drug companies keep researching new ways to suppress symptoms.  I would love to start pressuring our US government to start funding research for a CURE. If anyone has information on the dollars spent by the feds to research a cure for Crohn's vs. the dollars spent to research other diseases, perhaps we could get something going. I'm still new to this, so I'm willing to help in any way I can. I'm so happy the Australians and Brits are taking a search for a cure more seriously, but the US is a huge resourceful country and we should be doing our part.

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 9/7/2009 7:46 PM (GMT -7)   
Fantastic! Let me know when they come out with the cure. :)
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!

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