A huge setback?

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Sore Tum
Regular Member


Date Joined Jun 2009
Total Posts : 144
   Posted 9/3/2009 8:38 AM (GMT -7)   
I've also posted this on the UC forum
There I was thinking things were improving, we were on holiday in Paris, the entire duration of the trip felt like I needed to go to the toilet, and had a couple of close calls.
So Wednesday we were wandering around the Louvre, I had that persistent nag in my tummy, but that had been there all week, then it happened I had a huge accident, with 60 seconds warning and unable to find a toilet. I was mortified, my other half was fantastic, but why is this happening? He'd had an upset stomach during the week too, I think it may be because of the mineral water as I had not altered my diet at all during the trip.
Why can I not hold on? Does this mean there is still inflammation? I had 2 accidents in April when my symptoms were at their worst, before my treatment started.
I don't know what else I can do, my diet is as bland as it can be. Any suggestions.
I've cried for almost 2 days straight and I am so lucky that my other half is wonderful, but I feel that I've taken a huge jump backwards. I don't want to go outside.
30 year old, female.
Finally diagnosed with severe ulcerative proctitis, Mar 2009. (Doc unsure if it's Crohn's).
?2 fistulas, seton fistulotomy july 2009, 2nd fistula ?currently dormant.
Currently taking, 1200mg asacol TDS, 1g Pentasa supp at night, Probiotics, zinc supplements, Cod liver oil.
Past meds: prednisolone, colifoam ememas.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/3/2009 10:09 AM (GMT -7)   
Can you take Immodium while out and about to quiet things while you are travelling? Just a thought:)
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Sore Tum
Regular Member


Date Joined Jun 2009
Total Posts : 144
   Posted 9/3/2009 12:38 PM (GMT -7)   
I took a double dose to get me home, now I'm well and truly bunged up!
I do noy usually have an issue with diarrhoea. That's why this is so upsetting.
30 year old, female.
Finally diagnosed with severe ulcerative proctitis, Mar 2009. (Doc unsure if it's Crohn's).
?2 fistulas, seton fistulotomy july 2009, 2nd fistula ?currently dormant.
Currently taking, 1200mg asacol TDS, 1g Pentasa supp at night, Probiotics, zinc supplements, Cod liver oil.
Past meds: prednisolone, colifoam ememas.


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 9/3/2009 8:34 PM (GMT -7)   
Maybe it is a light case of traveler's diarrhea? You mention that your H had a stomach upset also - maybe for you it was the problem that caused your accident? Your gut will be more sensitive than his, so your reaction would be more extreme.

Sore Tum
Regular Member


Date Joined Jun 2009
Total Posts : 144
   Posted 9/4/2009 1:01 AM (GMT -7)   
I still do not understand why I can not hold it, I understand that the area is inflammed, but I had 2 other very urgent toilet visits earlier in the week that I managed to hold on to untill I got to the toilet.
It just felt like I had no warning and no control whatsoever. No warning spasms, just a slightly grumbly tummy all morning.
30 year old, female.
Finally diagnosed with severe ulcerative proctitis, Mar 2009. (Doc unsure if it's Crohn's).
?2 fistulas, seton fistulotomy july 2009, 2nd fistula ?currently dormant.
Currently taking, 1200mg asacol TDS, 1g Pentasa supp at night, Probiotics, zinc supplements, Cod liver oil.
Past meds: prednisolone, colifoam ememas.

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