Crohn's in the the esophagus

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Sarah1116
Regular Member


Date Joined Nov 2004
Total Posts : 55
   Posted 9/3/2009 7:31 PM (GMT -7)   
Wondering if anyone else has Crohn's in their esophagus?  How long did it take the ulcers in there to calm down/go away?
Sarah
Diagnosed Sept. 2004 (two weeks before my wedding)
Currently on Humira, Pentasa, Prevacid, Prenatal Vitamins and Folic Acid
Have also taken Entocort, Remicade, Methotrexate and Imuran


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/4/2009 1:10 AM (GMT -7)   
Yes, I've had it. I think it took about 9-12 months for things to settle down in that area... but it's a very long time ago now, so I can't remember accurately.

Why do you ask? Are you experiencing the joy of ulcers there now?
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


sukay
Veteran Member


Date Joined Feb 2003
Total Posts : 1432
   Posted 9/4/2009 2:39 PM (GMT -7)   
Just curious.  What are the symptoms of CD in the esophagus?  confused
~sukay~
 Bipolar - 2004
     Crohns disease - 1995 
Arthritis & Fibromyalgia 
 
Leo Buscaglia


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 9/4/2009 6:57 PM (GMT -7)   
When I flare, I often get ulcers and sores in my throat. I recently had an upper endoscopy and they found a stricture in my esophagus and they dilated and stretched my esophagus. GI just said it's common with Crohns, GERD, and all the other fun GI stuff we deal with.

The sores make eating really difficult. Sadly, it's the only time I truly lost any weight was when I was flaring.

sukay
Veteran Member


Date Joined Feb 2003
Total Posts : 1432
   Posted 9/4/2009 8:06 PM (GMT -7)   

does you throat hurt or is it just difficult to swallow?

 


Sarah1116
Regular Member


Date Joined Nov 2004
Total Posts : 55
   Posted 9/5/2009 8:31 AM (GMT -7)   
Ivy-Yes I have the joy of ulcers there now. I will never again take for granted how wonderful it is to eat and drink things without wanting to scream my head off!!! It is bad enough that our diet is limited because of this disease but to have to limit it further to things can be swallowed easily and hopefully without much pain is really complicated.
Sukay-my throat hurts and it is very difficult to swallow.
Sarah
Diagnosed Sept. 2004 (two weeks before my wedding)
Currently on 80mg Humira, Prevacid, Methotrexate 25mg and Folic Acid
Have also taken Entocort, Remicade, Pentasa and Imuran


sukay
Veteran Member


Date Joined Feb 2003
Total Posts : 1432
   Posted 9/5/2009 10:38 AM (GMT -7)   

ok, because I have been having difficulty in this area.

First it started to feel like I was choking at times.  Then it became hard to swallow my normal meds.

Now if feels like something is constantly stuck in my throat.

I keep swallowing and drinking water thinking that whatever it is will go down but no success.

I'm not in any pain...just feels like something is stuck there.

shakehead I dunno!
~sukay~
 Bipolar - 2004
     Crohns disease - 1995 
Arthritis & Fibromyalgia 
 
Leo Buscaglia


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 9/5/2009 11:56 AM (GMT -7)   
First, your meds can cause dysphagia (difficulty swallowing), so check them for side effects. Then, Crohn's of the esophagus is possible - but you would probably have other problems like ulcers there. Then there is acid reflux which can cause scarring of the esophagus and this causes dysphagia. It also would be a long-standing problem. Then we get into less likely alternatives - eosinophilic gastritis causes Crohn's-like symptoms and has dysphagia as a symptom. There are dozens of other possibilities, but these are the more relevant ones.

Sarah1116
Regular Member


Date Joined Nov 2004
Total Posts : 55
   Posted 9/5/2009 6:51 PM (GMT -7)   
When I had this problem back in March the Dr scoped me and found ulcers in the throat and stomach. If I do not feel better by next week he is going to scope me again. He is hoping by upping my humira to 2 shots weekly and adding the methotrexate it will start to get better.
Sukay-that is how mine started, by feeling like I swallowed something and it is stuck right in the middle of my chest.
Sarah
Diagnosed Sept. 2004 (two weeks before my wedding)
Currently on 80mg Humira, Prevacid, Methotrexate 25mg and Folic Acid
Have also taken Entocort, Remicade, Pentasa and Imuran


bella3250
Regular Member


Date Joined Aug 2008
Total Posts : 351
   Posted 9/6/2009 6:08 AM (GMT -7)   
Hey i have crohn's in my mouth, esophagus(sp)?, and all the way down into the top part of my stomach and intestines.  I was having trouble swallowing and i felt like everything was getting stuck in my throat.  I went for an upper endoscopy and the gi doc said i have ulcerations all the way from my mouth to my stomach.  It's getting better though.  keep us posted on how you're feeling.  good luck.

potatoqwn
Regular Member


Date Joined Jan 2006
Total Posts : 355
   Posted 9/6/2009 11:22 AM (GMT -7)   
I have been having trouble for the past few months with swallowing too. It does not happen all the time though. I always try to chew thoroughly, but sometimes it feels like the food gets stuck right in the middle of my chest. I have to keep swallowing and wait a while until the feeling and food, I suppose, passes. This all began with a flare up after 3 years of remission on Humira. I am also having a huge increase with the mouth sores and for the first time in my life, I feel like I may have heartburn? It's so odd. I would think that if there was some narrowing or something like that, it would happen all the time. Hmmm....

isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 9/6/2009 1:29 PM (GMT -7)   
oh my god I think I have this :S

I have been feeling like crap since June this year in the esophagus hard to swallow feeling like I cant breath and so on.

I have to mention this to my doctor fast this is like killing me so painful.
24 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
Crohn's disease in December 2008 Then they changed it to UC in June 2009.
and Autoimmune Hepeatitis in July 2009


Medication - Asacol, Remicade, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~


rrtac070811
Regular Member


Date Joined Dec 2011
Total Posts : 38
   Posted 8/13/2012 6:45 AM (GMT -7)   
i have started to noticed that i have hard time to swallow, but i do not have any ulcers or anything. last endoscopy was in 2006. it been like 3 days now. but I am hoping they will go away. and will have a doc appointment tmw, for x-ray briaum for the uh, adbominal mass. and i will ask about the difficult swallowing by eatting the food.. and i have to have a drink next to me to drink it does helps little.. ugh... i hope i dont additional problems...

UCFKnight
New Member


Date Joined Feb 2015
Total Posts : 5
   Posted 2/3/2015 5:42 PM (GMT -7)   
I have been diagnosed with Crohn's for about 7 years now. At the beginning of my Crohns, I do not remember if I did have ulcers in my esophagus or not, but I do remember having them in my throat & mouth.

7 years later, however, I've been getting them frequently in my mouth & throat.
This is my third time having ulcers in my esophagus.
The first time I had them for about a week or two. I had ulcers in my throat, mouth & esophagus. For this week I did notice I had abdominal pain, pain from the ulcers, pressure in my chest when I ate or drank. The pressure would last for hours too. Feeling of something in my throat too. The ulcers went away by themselves thankfully in 7-10 days.

The next incident wasn't until months later. I experienced the ulcers in the mouth, throat & esophagus. Same symptoms as above only worse. The abdominal pain & spasms were worse. I also experienced diarrhea. My doctor gave me steroids for 4 weeks which worked. Two steroids every morning for two weeks and one every morning for the last two weeks. I was having a mild flare up & thankfully the steroids helped. My advice is to see your doctor and talk to him to see if you are having a flare up & to ask him about steroids.

Unfortunately, a month after using the steroids, the symptoms are back. I am wondering if I am experiencing symptoms of acid reflux or crohns because I have the tightness and pressure in my chest again, ulcers in my throat & mouth, intense stomach pain, trouble breathing, diarrhea, & sore throat.

I am wondering if anyone had acid reflux & if these are symptom*****

I am also on Remicade

minnietoty
Veteran Member


Date Joined Dec 2010
Total Posts : 2418
   Posted 2/7/2015 2:55 AM (GMT -7)   
UCFKnight, I have long-standing GERD (16 years now). Did the biopsy show Crohn's in esophagus? What meds are you on? I don't have Crohn's in esophagus, yet get sore throat and lately get many episodes of chocking and a sweet and bitter taste in mouth. I get a lot of mouth ulcers, too. I was told these are caused by GERD. Control your GERD and hopefully you get better soon.
GERD, gastritis, ileitis, chronic proctitis, IBS and persistent mouth ulcers and fissures
Current meds: Pentasa sachets 4g, Entocort 7.5 mg, Nexium 40 x 2, Ensure, Imuran 175 mg, Baclofen 10 mg x3, Famotidine 40 mg x 2,Gaviscon 1 x 4, Calcium and magnesium supplement, multivitamin, B complex
Pred 40 mg from Oct. 2010 till Jan.2012
Failed:Azathioprine (generic), Methotrexate
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