My husband was diagnosed with Crohn's disease in 2007. He was doing well for about a year, then all the sudden things got out of control, and quickly. He had surgery and ended up with a colostomy bag. I think, naively, we both thought that would be the end of the disease--he'd have to learn to live with a bag, but he'd be able to live again. Well, here it is 9 months later, and he's getting sick again. He's in constant pain again (we use a rating system and he usually has a constant pain of a 3 but says now it's moved up to a 5). The pain used to just be after he ate, now it's all the time. He frequently throws up after meals (or dry heaves but manages to keep his food down) and he's started losing weight again. He's also bleeding again.
The doctor wanted to put him on Remicaide but is hesitant because he was exposed to TB as a child. Now he's seeing a lung doctor and they're running all sorts of tests, but it's taking so long. I know its good they're being cautious, but if he doesn't get on Remicaide soon, he'll be back in the hospital.
Does anyone have an experience being on Remicade if you've been exposed to TB? If he can't take Remicaide I don't know what we'll do :(