Afraid of Swine Flu and Flu Shot

New Topic Post Reply Printable Version
29 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

LisaLee37
Regular Member


Date Joined Apr 2005
Total Posts : 384
   Posted 9/7/2009 11:24 AM (GMT -7)   
I have had Crohn's for 10 years. I oversee two private schools and believe it or not, I have never had a flu shot. The last time I had the flu was about 15 years ago...way before Crohn's. In spite of severe Crohn's, I am otherwise extremly healthy! My co-workers are always so shocked that I never get sick.
 
I have been on Remicade, and have been on Humira for the past three years. With all of the the predictions of how bad this outbreak is supposed to be......I am scared to death!! I realize that the common sense thing to do would be to get a flu shot and when the Swine flu shots are available have them too, especially since I am on Humira.....
 
However, there is something wrong with my stubborn little brain! As afraid as I am of getting the Swine flu, I am equally afraid of having the flu shots (especially since I have never had them and will not know how I could react). Yes, all of my doctor's think that I am crazy for never having a flu shot!!! And I am sure that plenty of other's thinks so too.
 
Is there anyone else out there on Remicade or Humira who do not take the flu shots too?
 
 

pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 9/7/2009 11:30 AM (GMT -7)   
Flu shots are nothing major. You might have a little stiffness in the arm you get the shot in (I usually do) and some people get body aches for a day or two. I don't really know what to expect from the H1N1 shot, but I presume it would be a similar type of side affects. Oh, and you need to get 2 shots for H1N1, a few weeks apart.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.

Amor fati - Nietzsche


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 9/7/2009 12:49 PM (GMT -7)   
I feel the same way, Lisa. I am not going to take them while I'm on immunosuppressants...I am making sure to take a multivitamin and plenty of vitamin c though.

I would ask your doctor (or two) as well.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 5 mg, pentasa 2 pills 4x a day, omeprazole in the morning, and a women's multivitamin. I'm also trying a B vitamin complex, but it doesn't seem to be working so I'm considering the shots.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


Not2Spunky
Regular Member


Date Joined Feb 2008
Total Posts : 165
   Posted 9/7/2009 3:37 PM (GMT -7)   
I always get the flu shot, but I will not be getting the swine (H1N1) flu shot. If you read up on it you will see why.
 RIP my beloved Chihuahua: Roxy
DX with CD of the TI in 2004 by colonoscpy biopsy, with partical obstructions x 3. Anemic, constant elevated ESR & WBC. Constant abd. pain and fatique.    
Meds: Vit B-12 shots monthly, zinc, multi vit, Vit E, Pentasa.    


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 9/7/2009 4:25 PM (GMT -7)   
Not2Spunky said...
I always get the flu shot, but I will not be getting the swine (H1N1) flu shot. If you read up on it you will see why.

http://www.dailymail.co.uk/news/article-1206807/Swine-flu-jab-link-killer-nerve-disease-Leaked-letter-reveals-concern-neurologists-25-deaths-America.html
 
No one in our family will be getting it. 

pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 9/7/2009 4:27 PM (GMT -7)   
Not2Spunky said...
If you read up on it you will see why.

Don't believe everything you read on the internet.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.

Amor fati - Nietzsche


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 9/7/2009 6:05 PM (GMT -7)   
pimfram said...
Not2Spunky said...
If you read up on it you will see why.

Don't believe everything you read on the internet.


Several different places reported this, and not just on the internet. I would rather not just dismiss it, but do the research, and decide off of that than immediately reject it because it's on the internet. Many reputable news companies access customers via internet...that's the only way I read news anymore.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 5 mg, pentasa 2 pills 4x a day, omeprazole in the morning, and a women's multivitamin. I'm also trying a B vitamin complex, but it doesn't seem to be working so I'm considering the shots.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 9/7/2009 6:19 PM (GMT -7)   
To each their own.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.

Amor fati - Nietzsche


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 9/7/2009 7:48 PM (GMT -7)   
I have never had a flu shot and I work with children and the homeless population on a regular basis. Never had the flu, either!

But, this year seems different... my health is not good, I'm flaring, fighting infections already and failing, and the swine flu is complicating things. I've decided to get the flu shot this year. It's a shot in the dark as well since it doesn't help all strains but maybe I'll luck out.

I think I'm going to also get the pneumonia vaccine. It seems that many die from that if they get seasonal or swine flu so maybe that will protect me enough.

I'm undecided on the swine flu vaccination but am leaning towards no on that one. I've talked to too many medical professionals advising against it at this point. We'll see what my docs have to say when the time comes.

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 9/7/2009 7:57 PM (GMT -7)   
Medical professionals have advised you NOT to get the vaccine? Can I ask why? What type of medical professionals have you consulted with?

Mike
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 9/7/2009 8:03 PM (GMT -7)   
EMom said...
Not2Spunky said...

I always get the flu shot, but I will not be getting the swine (H1N1) flu shot. If you read up on it you will see why.

http://www.dailymail.co.uk/news/article-1206807/Swine-flu-jab-link-killer-nerve-disease-Leaked-letter-reveals-concern-neurologists-25-deaths-America.html


No one in our family will be getting it.


This is a weird article. It says that there is correspondence between doctors to be on the lookout for GBS symptoms. Sounds reasonable enough to me. It then talks for many paragraphs about the vaccine from 33 years ago and how they suspect it caused GBS. This is pretty common knowledge. It's also common knowledge that this vaccine and that one are very different. It then talks about a lady who got GBS.....but it doesn't say how. Plus, she got it in 2006, so obviously her case has nothing to do with the swine flu vaccine....
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/8/2009 7:34 AM (GMT -7)   
Guys, the flu shot is not a live virus so you can take them with the biologics or immunesuppressants! Also, the swine flu virus is made the same way as the regular flu shot, from eggs. So if you are allergic to eggs, then don't get the shot. I will get the shots, with my compromised immune system, in my opinion, it is the smart thing to do.
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 9/8/2009 7:35 AM (GMT -7)   
I have never had a flu shot. Not sure if I will get one this year or not.
27 Year old married female.  Graduated law school this year and waiting for results of the bar exam.  Start a new job sometime in September.  Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


Chelle's Sick
Regular Member


Date Joined Mar 2006
Total Posts : 61
   Posted 9/8/2009 8:41 AM (GMT -7)   
I too am being stubborn about getting any type of flu shot. I have been on Humira for 3 years now, never had any shots and have yet to get the flu. Hope to keep it that way. I will be seeing my doc next week and plan to ask him about it as I've never asked him before and he's never mentioned it.
Diagnosed w/ Crohn's Nov '05.
Current med's = Humira (Every 2 weeks) started in April '07.
 
 


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 9/8/2009 8:43 AM (GMT -7)   
I asked my doctor about it today, and he said to wait on the flu shot but to get the H1N1 if I could. It's supposed to be available soon anyway.
It is going around my school so...he said to wear a face mask too.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 5 mg, pentasa 2 pills 4x a day, omeprazole in the morning, and a women's multivitamin. I'm also trying a B vitamin complex, but it doesn't seem to be working so I'm considering the shots.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


jsk218
Regular Member


Date Joined Jan 2009
Total Posts : 29
   Posted 9/8/2009 1:54 PM (GMT -7)   
My doctor recommended that I get the flu shot every year, the pneumonia shot (once every 5 years), and vaccines for Hepatitis A & B. When I asked her about the swine flu shot, she said that one's a good idea, too.

I've gotten the flu almost every year for the last 15 or so years- yes, the flu shot does cause me to feel down for a few days, it's much better than being OUT for a week.

... call me the human pin-cushion this week!
Diagnosed with Crohn’s Disease in Jan 2007, though sick since mid 90’s. Currently on Humira and Protonix. Have had success with Entocort and Cipro; negative experience with Methotrexate.


pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 9/8/2009 4:20 PM (GMT -7)   
My G.I. personally gave me a flu shot 10yrs ago and I've been getting them ever since.
It's been well over 10yrs since I've had the flu.(knock on wood)
I too was stubborn,and avoided the flu shots.My doctors pretty much forced me to get them.
Whats nice for me is my work makes it easy to get them.(college campus)
B-12injections,Pentasa,Loperamide,Entocort,6mp,Hydrochlorothiazide,8 week
Remicade,vitamin-D,Terbinafine,
Remission since surgery
and 8-week Remicade.


LisaLee37
Regular Member


Date Joined Apr 2005
Total Posts : 384
   Posted 9/8/2009 7:26 PM (GMT -7)   
Thank you all for taking the time to respond to my posting and for your honest input.

I spoke with a parent at my school today, who is a physician and asked her about the flu shot. She thought that I was crazy for never having a flu shot! She asked me (sweetly) how could I be responsible for educating children and so stupid with my own health?? As I walked away sheepishly....I decided to reconsider.

Thanks again!

ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 9/9/2009 10:12 AM (GMT -7)   
I got the flu shot yesterday and only noticed my arm muscle being sore last night...no other side effects.  My Drs. recommend the pnemonia shot (got it last year) and the flu shot for those of us with suppressed immune systems.  Haven't really heard them say much about the H1N1 yet, but I know their office will be offering them later. 

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 9/9/2009 2:59 PM (GMT -7)   
Had an appointment with my GI yesterday and the first thing he said was that I was to get a flu shot and H1N1 as well my husband should too.
Have never had a flu shot and have not had the flu for years. Have been on an immunosupressant for a year now so will look into it.
57 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009


andrealeigh71
Regular Member


Date Joined Sep 2009
Total Posts : 96
   Posted 9/20/2009 7:50 AM (GMT -7)   
By not getting either of the flu shots, you are putting your students and family members in danger (as well as yourself). How would you feel if you got H1N1 and gave it to one of your students and they died? It's not just something to think about for yourself---it's a public health issue. The only side effects from the inactived flu shots are muscle soreness--you cannot get the disease from the vaccine. Please consider getting the vaccines----stories posted on the internet usually do not have clinical or scientific backing; they are usually from uneducated people that do not have all of the facts.

chrisnsteph1022
Veteran Member


Date Joined Apr 2003
Total Posts : 973
   Posted 9/20/2009 10:32 AM (GMT -7)   
Last time I got the flu shot, I got extremely sick for a week. And I was in remission that time. Already being sick, I'm not doing it again. And the H1N1 shot has NOT been out long enough for me to be comfortable with it. We will not be getting shots.
Stephanie, 29, married for 10 wonderful years and mommy to two awesome toddlers
dx with Crohn's 4/2003, in remission from 11/2003 to 7/2009
omeprazole 40mg, zoloft 100mg, apriso 1500mg, dicyclomine 3/day
dx with bipolar II 8/2009, re-diagnosed with bipolar I 9/09
Apparently allergic to lamictal...waiting on next rx


chrisnsteph1022
Veteran Member


Date Joined Apr 2003
Total Posts : 973
   Posted 9/20/2009 10:33 AM (GMT -7)   
Oh, and I still got the flu that year. It was a different strain that the vaccine, so it added insult to injury for me.
Stephanie, 29, married for 10 wonderful years and mommy to two awesome toddlers
dx with Crohn's 4/2003, in remission from 11/2003 to 7/2009
omeprazole 40mg, zoloft 100mg, apriso 1500mg, dicyclomine 3/day
dx with bipolar II 8/2009, re-diagnosed with bipolar I 9/09
Apparently allergic to lamictal...waiting on next rx


PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 9/20/2009 10:40 AM (GMT -7)   
Actually GBS is one of the rare side effects of the regular seasonal flu shot as well. A friend's father landed in the hospital after a regular seasonal flu shot with GBS, so yes, this is a very rare side effect that is possible from the jab. That being said, I think it's very rare, and since my husband and I have been getting the seasonal flu shot for years now with no incident, we will continue.

Also, I'm pretty sure that the swine flu shot is formulated the same way as the seasonal flu shot - and my husband's GI agrees. So, I think the risk of GBS with the swine flu shot is probably the same as for the seasonal flu shot. Since we do fine on the regular flu shot, we'll be getting the swine flu shots as well.

--
PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, until Sep 2, 2009
Fighting c-diff, I guess for life


BrandyWine
New Member


Date Joined Sep 2009
Total Posts : 16
   Posted 9/20/2009 11:13 AM (GMT -7)   
My GI has pretty much demanded that I take the 'flu shot and pneumonia shot. The pneumonia shot is given every 5 years, and I'm thinking I have to get one this year again. I take the flu shot every year, since I am considered "high risk" because of the Crohn's. With a compromised immune system, I would much rather be safe than sorry.
I usually feel achy and draggy for a couple of days, but have never gotten the 'flu from the shot. My doctor here told me that the only way you will get the 'flu from the shot itself is if the 'flu bug is already in your system when you get the shot.
This disease will NOT defeat me!

Diagnosed with Crohn's in December, 2004, at the ripe old age of 52. Currently on Remicade and in remission.

New Topic Post Reply Printable Version
29 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Sunday, December 04, 2016 5:31 AM (GMT -7)
There are a total of 2,732,452 posts in 301,021 threads.
View Active Threads


Who's Online
This forum has 151186 registered members. Please welcome our newest member, debbixij.
206 Guest(s), 6 Registered Member(s) are currently online.  Details
Nana 2, Psilociraptor, 73monte, reminder, Big Mac, Graytech


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer