My MRI from last week "showed nothing conclusive." There may or may not be a 1 cm lymph node, but this is not in the area I am feeling pain.
I have two bumps, one pea sized on the left of my anus (very hard and painful when pressed on) and the longer one (2 cm by 3 cm) that runs on the right side of my rectum, up towards my tailbone. The back side of my rectum between these two bumps is very tender. Even though I can FEEL both of these, as can my surgeon, they do not show up on the imaging. Not a surprise to me really, my abscess didn't either. He put me back on the antibiotics- for how long we don't know.
What should I do now? I can't give up, the pain and pressure returned one day after being off the antibiotics... and he's saying he is not sure, but thinks this is "just" scar tissue. This has already gone on 3 1/2 years, I'm not sure how much more of this I can take... Scar tissue doesn't create pus does it? I'm so confused. He also said that while he is not taking it totally off the table, he does not think this looks like Crohns of the rectum... it doesn't look like anything he's seen before. Yay me.
I've made an appointment with another CRS for another opinion. And one with my primary care doc just in case she has any new insight. I just feel like I almost certainly still have an abscess or fistula, it FEELS just like the other one. Do I trust my gut :) or keep "waiting and seeing" like my doc wants me to? Should I make an appointment with the GI specialist who I haven't seen in 3 years?
Are there any other imaging studies they can do? I wonder about vaginal ultrasound, however looking back towards the rectum... or how to confirm that the hard painful tissue is in fact scar tissue and not another abscess? I asked about needle aspiration but he did not think that was appropriate. It feels like a hard little balloon on my right side of my butt...
Sorry for the rambling, just not sure where to go from here.