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king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 9/8/2009 7:44 PM (GMT -7)   
How is this typically tested?
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34 yr old female/GERD dx 3/07/Migraines with Aura/IBS
SYMPTOMS  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 
New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 
 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR
 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
2/09-UPPER LEFT SIDE AB PAIN MID CENTER BURNING "DX" AS MILD PANCREATITIS-STILL UNDERGOING FURTHER TESTING.
 
 
 
 
 
 


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 9/8/2009 7:59 PM (GMT -7)   
Depends on the person, I was diagnosed from a barium enema then a colonoscopy. Colonoscopies are considered the gold standard, however Crohn's can appear anywhere from mouth to anus, so it won't necessarily pick it up. I also had an endoscopy prior to my diagnosis (came back normal). A SBFT or a pill cam can be the only way to diagnose in someone who only has Crohn's in their small intestine.

king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 9/8/2009 8:08 PM (GMT -7)   
Ahh thanks. I had a scope (both) over the past 2 yrs-fine. I have had constant inflammation of my pancreas yet scans have been fine. Hoping to find a reason for it outside of something horrible like pancancer (dad died of it)
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34 yr old female/GERD dx 3/07/Migraines with Aura/IBS
SYMPTOMS  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 
New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 
 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR
 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
2/09-UPPER LEFT SIDE AB PAIN MID CENTER BURNING "DX" AS MILD PANCREATITIS-STILL UNDERGOING FURTHER TESTING.
 
 
 
 
 
 


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 9/8/2009 9:51 PM (GMT -7)   
Pancreatitis is commonly associated with SIBO (Small Intestinal Bacterial Overgrowth) due to the slowing of peristalsis resulting from incomplete digestion of food (due to insufficient pancreatic enzymes). (see: PubMed)

The overgrowth of common gut bacteria can result in the bacteria infiltrating the pancreas and perpetuating the problem. The abstract linked to above cited 13 of 14 chronic pancreatitis patients as having SIBO, so it is very likely that you have it. I don't know if you are being treated for your pancreatitis, but you should ask about SIBO and get treatment for that as well. SIBO by itself has a number of bad symptoms besides being a likely cause of continuing your pancreatitis.

That said, several of your symptoms have been known to be extra-intestinal manifestations of Crohn's. The bone/joint pain, eye pain, spine soreness, fatigue, dizziness and even migraines have been related to Crohn's. Some people have a hard time getting a diagnosis - it may take persistence to get the pill cam test to check your small intestine, but that sounds like the likely place to find it for you.

ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 9/9/2009 10:03 AM (GMT -7)   
I went through test after test for 7-8 years and then we started over and did all the tests again.  Even took out my gallbladder.  Finally switched GIs and the new one did a capsule endoscopy and diagnosed me that way. 

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 

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