Quitting Entocort EC cold turkey?

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Laura G.
Regular Member


Date Joined Apr 2006
Total Posts : 121
   Posted 9/9/2009 11:42 AM (GMT -7)   
My 15 year old son's Dr. decided that he should quit cold turkey due to possible adrenal insufficiency.  Quitting cold turkey can be a cause of adrenal insufficiency.  I don't know what to do, but am leaning towards a taper until he can see an Endocronologist.  Any thoughts on this would be helpful.  He is currently taking 9mg (3 capsules) a day.
 
Laura G.
 
 

Post Edited (Laura G.) : 9/9/2009 12:59:45 PM (GMT-6)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/9/2009 12:08 PM (GMT -7)   
How long has he been on the Entocort?
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Laura G.
Regular Member


Date Joined Apr 2006
Total Posts : 121
   Posted 9/9/2009 12:32 PM (GMT -7)   
He has been takin Entocort  for 9 months.

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 9/9/2009 1:23 PM (GMT -7)   

What kind of a doc is this? A gastroenterologist?

People should NOT go cold turkeyof Entocort. 9 mg is a high dosage, and he has been on it a long time, so could face strong repercussions - not only a flare, but also, of course, adrenal insufficiency.

I'm not sure why he was at such a high dosage for so long. The manufacturer recommends 9 mg only up to 8 weeks to induce remission, and then after that, 6 mg for another three months to maintain mantenance.

My daughter's GI recommended a taper down to 6 mg for 2-4 weeks, then 3 mg for a month, then off but ONLY if no symptoms.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/9/2009 1:27 PM (GMT -7)   
Whoa, I am with njmom here, he has been on it way too long to just cold turkey off. I haven't taken Entocort in so long, I don't remember the taper, but I think her suggestion sounds reasonable. Boy, these docs sometimes just blow my mind in some of the stuff they tell people. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Laura G.
Regular Member


Date Joined Apr 2006
Total Posts : 121
   Posted 9/9/2009 3:36 PM (GMT -7)   
Those were my thoughts exactly! I did talk to his regular physician today and told her my concerns and she agreed with me. Steven will be doing bloodwork in the morning to check for possible adrenal insufficiency anyway. If he stopped cold turkey it would be possible for him to go into adrenal crisis. He is also going to start an elemental formula. Maybe we will finally see remission.

Thanks again,

Laura
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