I have not been on Remicade myself, but many others on the forum have. Many who have had their luck run out with Remicade have been able to try Humira. Have you tried it yet? Sorry you are feeling so poorly, and I don't blame you for stopping it, I would too. Big Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles. We can take hold of it by the handle of anxiety, or by the handle of faith"*