fresh seton placed!

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youngun
New Member


Date Joined Sep 2009
Total Posts : 3
   Posted 9/9/2009 12:37 PM (GMT -7)   
Hi i am 18 years old and have been diagnosed with crohn's disease since february and have had abcess wounds since then also.

i thought things were going to get better but before i have any hope of that the doctors wanted to place a seton in me to fix a fistula that i have.

i have never had a seton before and so i am really scared and in tears. they placed the seton in on monday and it is now wednesday. I am scared about going to the toilet which i have not been able to do yet.

please someone give me some advice. how was it for you going to the toilet for the first time after having your seton put in? how do you manage to keep it clean?

i have managed to keep my abcess wounds clean but this time i am freaked out because there is this thing blocking the wound so how am i meant to keep it clean? i have had 2 baths since monday and have found it difficult to clean it even then and then to dry it was more gruelling. i saw the wound and it made me feel sick especially because what i think is some of the seton sticking out of the hole looks like a piece of skin hanging off horribly... i am so scared and need some consoling advice... please help me please i am desperate

Sore Tum
Regular Member


Date Joined Jun 2009
Total Posts : 144
   Posted 9/9/2009 12:48 PM (GMT -7)   
Hi, first off I'm sorry that you are having to go through all of this, at 18 these aren't the kind of things you should have to be worrying about.

I had a seton fistulotomy in June, so my experience is probably slightly different to yours, but I was bathing twice a day and showering my bottom every time I had a poo rather than scrubbing it with tissue.
I went to the toilet the next morning (4 times), I'm not going to fib, it didn't tickle! The pain killers made it more bearable and soaking in the bath does calm the discomfort down considerably.

There are some good links on here in the resources section that cover pretty much everything you need to know, the link is at the top.

I know it's really daunting and I'm fairly new to all of this too, I promise it does get easier, take it slowly, the folks on here are fab and have been a great help to me.

Oh and yes I'm sorry but it is meant to look like that, my backside looked like a horror film, it's healed now, I'm not saying it now looks like a piece of art, but it's definately not quite so scary.
30 year old, female.
Diagnosed with severe ulcerative proctitis, Mar 2009. (awating further tests to rule out Crohn's).
?2 fistulas, seton fistulotomy july 2009, 2nd fistula ?currently dormant.
Currently taking, 1200mg asacol TDS, 1g Pentasa supp, Probiotics, zinc supplement.
Prenisolone restarted 8th sept, for urgency, tapering dose.
Low residue diet, under the supervision of a dietician.
Past meds: prednisolone, colifoam ememas.

Post Edited (Sore Tum) : 9/9/2009 1:51:57 PM (GMT-6)


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 9/9/2009 2:56 PM (GMT -7)   
Welcome to the Forum Youngun!

I am so sorry you are going through all this! There are several people on this forum board who have a lot of experience (unfortunately) with abscesses, fistulae, and setons. As Sore Tum mentioned, one of our fabulous forum Moderators collected old and recent threads on these subjects and placed them under Crohn's Diease Resources, which is the very first Topic. I highly recommend you read those posts.

I nearly fainted when I first saw the open wound after my first abscess surgery. I had to keep reminding myself that it truly was necessary to correctly get rid of the abscess. I also knew that with every passing hour, every passing day, I was one closer to getting better and being healed. Honestly it will take much longer to heal than you think or hope. Things take longer to heal down there and Crohn's makes you heal more slowly too. But it will heal. You will get better. Really! Believe me!

As for cleaning, I get in the bath tub and use a hand-held shower sprayer. I strongly recommend you get one ASAP if you don't have one already. Hirer a plumber even. You will not regret the investment!! It is the most wonderful thing! I would go in the toilet but I wouldn't wipe -- I put one foot in the tub, one foot outside, and then sat down and gently sprayed it all clean. It works wonderfully to clean setons and clean out wounds! Nothing else works so well, and you don't even need soap. You can get a spray bottle but the shower sprayer is absolutely the best at gentle and thorough cleaning. Even now after I am healed, I still use the shower sprayer.

Also, take at least 3 15-minute sitz baths a day. I mean sit down in a tub of hot water. It stimulates blood circulation and all my doctors said there is nothing better to promote healing. So get in the tub with a good book or a magazine. Pretend you are at an expensive spa!

When I first started reading this forum, someone told me that the first year or two are often the worst. Once you get past the abscess and are on meds that help, you should see a lot of improvement. Are you on any meds?

Please remember you are not alone in dealing with this! Please read the old posts and then feel free to ask any questions you might have. The folks here are very friendly and helpful.

Take care!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


Laura G.
Regular Member


Date Joined Apr 2006
Total Posts : 121
   Posted 9/9/2009 3:43 PM (GMT -7)   
I am so sorry to hear about your seton. I have never had one but my son did at age 12. While he was hospitalized they gave him a perinium bottle to spray the area clean with and then gently pat dry. This worked very well. He was also told to take a sitz bath or warm bath 3 times a day.

I bought an entire case of the bottles and if you are in the United states I would be glad to mail you a couple. If so email me at wmg@surewest.net.

Hoping the best for you,

Laura

Sore Tum
Regular Member


Date Joined Jun 2009
Total Posts : 144
   Posted 9/9/2009 11:58 PM (GMT -7)   
Sorry, I forgot.
You need to keep your bowels moving, the last thing you want is to be constipated.
So lots of water and fibre (if you can tolerate it) to keep things soft.
30 year old, female.
Diagnosed with severe ulcerative proctitis, Mar 2009. (awating further tests to rule out Crohn's).
?2 fistulas, seton fistulotomy july 2009, 2nd fistula ?currently dormant.
Currently taking, 1200mg asacol TDS, 1g Pentasa supp, Probiotics, zinc supplement.
Prenisolone restarted 8th sept, for urgency, tapering dose.
Low residue diet, under the supervision of a dietician.
Past meds: prednisolone, colifoam ememas.


frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 9/11/2009 5:49 PM (GMT -7)   
Here are some ideas to help you out
Sitz baths..no salt
Shower sprayer
Tissues..cotton balls..soaked with Balmeol..to help you clean yourself..its super soothing..
Alcohol free wipes...don't rub the anus..just dab...
Camoseptine..ask your pharmacist..its behind the counter..says its an ointment for those with fistula drainage..its only .69 cents per small pack...its the best rash ointment ever ...its sooo soothing..you can put it all over...and it has this nice cooling affect..good for sore areas...trust me..you have to get this stuff
Also Vaseline..is a good protectant....
As far as soaps go..Ivory or Dove..is good for sensitive skin...and best tip ever
is wipe back to front..but not really..you have to reach down from the front and wipe ony the anus...don't wipe in the old way that you used to..this is the easiest way to get yourself clean..
Also you can buy a water sprayer...and fill it with warm water..or a peri-anal bottle...and fill that with warm water..
Guaze..you can use...it...just make sure you get the right stuff..that is not uncomfortable or sharp corners..that poke a sore rectum..Johnsons and Johnsons makes a roll of this stuff..you can just cut some off..that might prevent you from getting a diaper rash...
Last tip...a blow dryer..you should really try to dry yourself off..carefully..so you don't have extra moisture...

 


frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 9/11/2009 5:51 PM (GMT -7)   
Also drink water...take fiber if you are constipated...trust me..you can go to the bathroom..with this thing..it moves to the side..when you go...and don't worry about skin hanging...near the wound..its okay..it will heal...and scar into the seton..soaking...will remove alot of the stuff near the wound...take it easy..on foods that might give you irritable bowels...

 


youngun
New Member


Date Joined Sep 2009
Total Posts : 3
   Posted 9/20/2009 3:58 AM (GMT -7)   
Thankyou all for your support... it turns out the reason i was in so much pain was because my anus had fallen into the cavity that the doctors had made so i had to go back into hospital and get it cleaned out and have a stoma placed... it was difficult at first getting used to it but it is helping me out no end and i know that they will reverse it in a few months once everything down there has healed.

i have been told that they are also going to give me biological treatment to help calm the Crohn's down a little.

thankyou all =)
18 year old male
new to the Crohn's scene and pretty scared
i want to be able to help others but first need help myself


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 9/20/2009 4:44 AM (GMT -7)   
Hi Youngun,

You have been through a lot! I am glad to hear your doctors were able to find the problem. Healing down there takes more time than you would think, but I am praying you will heal up ASAP and can get the reversal.

Let us know how it goes!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.

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