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Regular Member

Date Joined Jun 2009
Total Posts : 46
   Posted 9/10/2009 8:58 AM (GMT -6)   
The Doctor wants 2 start me on Remicade. But from what I read about it im scared 2 do it. Causing Cancer is the biggest fear factor and liver failure....  Just wanted 2 get some feed back on people who have or are on remicade.... Thanks A Lot! Kelly

Regular Member

Date Joined Jan 2003
Total Posts : 224
   Posted 9/10/2009 12:54 PM (GMT -6)   
Hi Kellznpc8784. I was on Remicade for about 7 years with no problems. I recently switched to Humira because the Remicade wasnt being as effective as it was before. I didnt respond to most medicines when I was diagnosed but after starting Remicade I went into full remission after only a few months and got to live my high school years Crohns FREE!! I used to call Remicade my miracle drug! I was started on Remicade when I was too young to make that decision for myself and my mom was jsut so desperate to get me feeling better, at the time they didnt know the long term effects of Remicade so she said ok. Knowing what I know now, if I hadnt of been on it for so long already I would probably be very scared too. I hope things work out for you. Keep us updated.
 "The Lord wont give me more than I can handle,i just wish he didnt trust me so much!"
  "let people be people before they are patients"

Veteran Member

Date Joined Aug 2007
Total Posts : 884
   Posted 9/10/2009 1:05 PM (GMT -6)   
I was on it for about a year and it put me into remission.  I ended up losing response to it and then started having allergic reactions to it and had to stop.  But, then I got on a trial for Cimzia, then switched to Humira and am now switching back to Cimzia because nothing is taking care of the arthritis.  Before having reactions, I loved the Remicade, but having allergic reactions to it (even after premedicating and going to the hospital for slower infusions) was very scary and I would never try it again because of them.  But, many people do great on it without any reactions. 

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 

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