School just emailed that swine flu is in the Universities and in town and will only be a matter of time til it hits the school.They are taking precautions etc. I have an email in to the dr.about it.I feel extremely anxious about her being on 2 immune-suppressors at the same time this is going on.Pred is temporary but not sure how long.This is her first time on it except in the IV before Remicade.I feel like we are playing russian roulette.I have not slept in 3 days wondering what to do.Does anyone have any advice-opinions on what the right thing here is. Any experiences at all with this flu and being in these meds.
I am trying not to freak out and lose it here. Thanks Disneyfan00
Well Im going to kind of answer my own question.Dr emailed me back within 20 minutes and said being on 3 immune suppressors at theropudic levels would require antibiotics prophylaxis-had to look it up-basically giving meds before you even get sick.He said she is very low on 6mp having just started so will only be at those levels for Pred. This is according to the CDC for what its worth. He said to treat it as you would any other flu.
Any opinions on this advice?
She is on Caltrate with vitamin D-have to argue with her to take it though(very stubborn-cant wait til the Pred kicks in-should be fun )
Also Florastor 2X a day(never felt it did much and very expensive)
I worry because she is small for her age and she has only grown 2 inches in 1 and a half years. I hope she finally goes into remission and has a huge growth spurt.We're not picky.If she makes it to 5 feet we'll be happy.
Then continued with:
Post Edited (Jen77) : 9/12/2009 9:19:45 PM (GMT-6)