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ExJohnson
Regular Member


Date Joined Feb 2009
Total Posts : 128
   Posted 9/11/2009 4:28 PM (GMT -7)   
Hey All,
 
It's been awhile, seton implants have improved quality of life DRAMATICALLY.  I love it. 
 
Anyways, been on SCD for about a week now, used the anagram on purpose so only SCDers would peek.  Had success, then D today, quite a lot.  Normal after a week?  Potential die off?  Just wondering.
I am a pre-30yr. old who has been diagnosed with Crohn's for 14 years.  Symptoms change from cramping and weight loss to severe anemia with fatigue and diarrhea. 
100mg mecaptopurine, 40mg Prednisone, Darvocet for dessert.  Starting Cimzia this week (fingers crossed).


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 9/11/2009 6:43 PM (GMT -7)   
oh yeah, you could have it way longer too. SCD took months for me to see real results so be patient:)
SCD since 01, remission since 01, occasional random junk food breaks :)
No meds ever.


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 9/11/2009 10:38 PM (GMT -7)   
Did you add anything new to your diet right before the D started?

If you're eating eggs, it's recommend to stop until the D lets up. You can also try eating really ripe bananas to see if that helps.

You'll have many ups and downs on SCD, but the downs will decrease in frequency and intensity. I saw some improvement right away, and then saw those improvements go away. This was back and forth up until around 3 months. I had the 3 month flare that's talked about in the book, and then things really looked up after that. I've had minimal setbacks since then, and the setbacks were mainly because I tried foods I wasn't ready for.

Hang in there, things get better!
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


ExJohnson
Regular Member


Date Joined Feb 2009
Total Posts : 128
   Posted 9/12/2009 7:43 AM (GMT -7)   
Thanks aoccc and spooky. I'm VERY excited about this diet, it makes me feel very positive about my future. I'm taking way to many meds right now, and recently have been coming off of hydrocodone dependency. Withdrawal is making my nighttime sleeping nearly impossible.

But I'm definitley going to stick with the diet. I guess I didn't realize eggs might cause D, they seem so innocuous (full of healthy fat and protien of course). Ah well, another day of chicken soup and jello.

The cheesecake is pretty good. I have made the yogurt, easier than I thought. I think what will work for me on this diet is that I love to cook anyways, and I'm willing to spend time in the kitchen. So now that it's necessary for the food, I don't mind so much.

I'm also thinking the D is caused somewhat by me coming off of the pain meds, those things block you up.
I am a pre-30yr. old who has been diagnosed with Crohn's for 14 years.  Symptoms change from cramping and weight loss to severe anemia with fatigue and diarrhea. 
100mg mecaptopurine, 40mg Prednisone, Darvocet for dessert.  Starting Cimzia this week (fingers crossed).


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 9/12/2009 9:31 PM (GMT -7)   
You could try cooking the eggs in different ways too. For whatever reason, some people can handle them cooked one way but not another. You could also try eating just the yolk or just the white to see if that makes any difference. But since you're coming off some meds, it may all just be your body adjusting.

I like the cheesecake too! Not everyone does. I've been experimenting with the amounts of DCCC I put in it vs. dripped 1/2 & 1/2 yogurt. More DCCC gives more of a "real" cheesecake texture, but I think I may like the taste of the more yogurt version better. They're both quite tasty though :-).

You'll have to try making the frozen yogurt sometime, it's one of my faves (that is, if you have a sweet tooth).

I didn't use to be much of cook, but I'm getting there. I just spent an hour making ice cream and squash pie filling. Since you like to cook, that's definitely a point in your favor. I think that's why some people give up on SCD. I've heard them say there's nothing to eat. Since there's a ton of stuff to eat, I think the real answer is that they just don't like spending time in the kitchen.
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods

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