I haven't posted for about two years - I had surgery in July of 07 to remove a skin tag and necrotic skin due to a low lying, superficial (skin only) fistula. 3 months with a draining seton and about 9 months of total healing (ulcers and all), I have been in total remission for almost a year and a half with no signs of ulcers, fistulas or the skin tag returning (woot-woot).
At the time I was diagnosed by a postive Prometheus 7 and specifically with peri-anal Crohn's because all of the CAT scans, MRIs, and some other imaging test showed no crohn's in the small bowel...problems were strictly rectal and slightly upwards into the descending colon.
ANYWAY - I have severe anemia that supplements are just not touching. I wouldn't think absorption should be interrupted if I have no evidence of small bowel disease, but I can't find anything that differentiates the types.
Any info would be helpful. Are there transfusions or something that could bypass the intestines? I can't take the anemia anymore. I keep thinking it might not be related to Crohn's at all. I will ask my doctor to do a blood lead level test because I have had (and may still have) exposure to lead through antique painted furniture and both houses (both of which I have refinished and remodeled).
I want to try to have a baby, also. Due to spinal cord injury and paralysis with my husband we had to go straight to IVF. The embryo didn't implant so I want to do a little more figuring on my side of things before trying again.
11 years w/ symptoms
Officially Dx'd w/ peri-anal Crohn's 2 years ago
Surgery in '07 to remove skin tag and damaged skin - partial fistulotomy with draining seton
Full remission since April of '08
No meds other than iron supps