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Purpleiris
New Member


Date Joined Sep 2009
Total Posts : 11
   Posted 9/14/2009 7:01 AM (GMT -7)   
Hello everyone,  I just joined today.  We don't have any groups around here for Crohn's, and I thought this would be a nice way to talk with other people with some of the same problems.  Since I was in my teens I suffered from severe diarrhea at times and they said it was irritable bowel.  I started losing weight and had severe pain to where I couldn't hardly function.  Finally testing done in 2005 showed Crohn's.  I've had multiple flare ups since then.  Hospitalized 3 times in the past year and a half.  I've been on low dose of prednisone for awhile now.  Everytime I try to stop taking it I end up having another flare.  I'm on a high dose again now for a recent flare,  caught it before it ended in a hospital visit.  Some of my meds for Crohn's are Pentasa,  Prednisone,  Omeprazole,  Flagyl when needed, Phenergan when needed.  I recently added a probiotic which seems to help with diarrhea.  Some of the probiotics are costly, but I found one not expensive.  Sometimes it feels like a roller coaster ride, never knowing when the next flare is going to hit.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/14/2009 7:44 AM (GMT -7)   
Sounds like you need to talk to your doctor about different meds. Maybe something like 6mp might work better to quiet things down for you. It does take about 3 mos to reach full efficacy, but it has worked well to put many in remission and get them off the Pred rollercoaster. Good luck!


Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 9/14/2009 6:33 PM (GMT -7)   
Welcome!

Shynz
Regular Member


Date Joined Aug 2008
Total Posts : 37
   Posted 9/14/2009 9:07 PM (GMT -7)   
Welcome Purpleiris, Your definitely not alone on that roller coaster ride :)
20/f - Diagnosed with Crohn's for 6 years. ~ Waiting to backpack through Europe ~
Western Medication - Imuran & Entocourt
Remicade (First Infusion January 26th/09 - Next Infusion Oct 8/09)
Natural Medication - Probiotics
L-Glutamine
Chinese Herbs for Inflammation
Acupuncture


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 9/14/2009 9:14 PM (GMT -7)   
Welcome to HW - I agree with Nanners - you need a maintenance med other than prednisone - you should probably bring this up with your GI at your next visit.
Jo
Crohn's Disease
Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone


Purpleiris
New Member


Date Joined Sep 2009
Total Posts : 11
   Posted 9/15/2009 4:13 AM (GMT -7)   
Thanks for the suggestions everyone, I'll mention it to the doc next visit.

frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 9/15/2009 9:46 AM (GMT -7)   
welcome HI! whats up? I know..its hard...all of a sudden...boom...you are having a flare...thats why we MUST appreciate the times..when we feel good!

 


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 9/15/2009 1:34 PM (GMT -7)   
Hi, you have found a great site this is my life line everyone is so supportive and friendly hope to see you posting Bev x

Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma.  reversal sheduled for Nov09 Meds:Pentasa 500mg 3x day,  B12 shots, every 3 months, iron syrup,loperimide,folic acid, Back on citalopram 40mg (for Anxiety.)

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