Questran for d

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mojowo4
Regular Member


Date Joined Jul 2007
Total Posts : 137
   Posted 9/15/2009 2:19 PM (GMT -7)   
My doc put me on questran for my d and after finding the best way to choke it down I am happy to say that I have had "normal" poo's again.  (for the most part, some d breakthrough). I went from 7-20 d's a day to 3-5 normals a day!! Yahoooooooo!  Kinda surreal when in public tho and you are always fixated on where is the next bathroom and then you think....but I don't have to go....wierd.

Dx CD 2003 but probably had it 10 years prior

Dx Primary Sclerossing Cholangitis 2006

GB out '95, Appendix out '96, Kidney stent '02/stone removal '02, Resection '04, fistulectomy '06 2x, tubal '05

Currently on 100mg 6mp-50 mg,  and Remicade every 8 weeks, Ambien, predsnisone, humira 1x wk, flagyl, cypro, diflucan, probiotic, questran lite


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2690
   Posted 9/15/2009 2:35 PM (GMT -7)   
It's a nice feeling huh? LOL I've taken Quetran for years, and it's a life saver for me. Now when I really do flare up from my Crohn's, even Questran won't work. Which is good though, you want to know when your in a flare. But for me it was really needed from having so much bile in my system after the gallbladder removal.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Celexa.


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 9/15/2009 4:37 PM (GMT -7)   
Long term use of questran or the like causes deficiencies in the oil soluble vitamins. This has many resulting problems. See: http://medical-dictionary.thefreedictionary.com/Questran and look at "Adverse Reactions" under "Metabolic".

Ask your doctor about getting supplements to replace the lost vitamins A, D, E, and K. Vitamin K may be hard to find without a prescription, especially in Europe.

Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2690
   Posted 9/15/2009 5:28 PM (GMT -7)   
Yeah I take a women's multi-vitamin that you can get in any store, has Vitamin K. Not sure of any other country of course.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Celexa.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 9/16/2009 9:39 AM (GMT -7)   
Just so you know there is a pill form of Questran. I think it is Colestipid. You can't adjust the dosage quite as much, but it is a lot easier to get down. If it is really hard for you to get the powder down, you might want to ask about the pills.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 9/16/2009 6:09 PM (GMT -7)   
I've been on it for 2 weeks now and it is my wonder drug. I finally have normal poos, I can't even remember normal poos.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


mojowo4
Regular Member


Date Joined Jul 2007
Total Posts : 137
   Posted 9/22/2009 12:53 PM (GMT -7)   
I use sunny delight, small smoothie blender and a straw the make it drinkable. The combo of the 3 and it is quite tolerable.

Dx CD 2003 but probably had it 10 years prior

Dx Primary Sclerossing Cholangitis 2006

GB out '95, Appendix out '96, Kidney stent '02/stone removal '02, Resection '04, fistulectomy '06 2x, tubal '05

Currently on 100mg 6mp-50 mg,  and Remicade every 8 weeks, Ambien, predsnisone, humira 1x wk, flagyl, cypro, diflucan, probiotic, questran lite


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2690
   Posted 9/22/2009 10:22 PM (GMT -7)   
I haven't known too many people that found the pills to work as well. It didn't work very well for me. Something about all that powder soaking it up that seemed to really do the trick. Yeah it's not fun to take, but it's well worth getting over it. Just got to figure out what works best in taking it for you.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Celexa.

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