severe diaper rash

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crohn's pt mom
Regular Member

Date Joined Nov 2008
Total Posts : 86
   Posted 9/16/2009 3:36 PM (GMT -6)   
My daughter has developed a severe case of diaper rash.  She was in the emergency room Sunday the pain was sooooo bad.  Now she is on diflucan and nystatin powder as well as diulauden(sp?) for pain.
Since she has to wear pads all the time because of the 5 seton drains it promotes irritation, but this is horrible.
I just spoke to her on the phone and she says it isn't any better.  She can't walk, she screams in pain when she pees.  We don't know what to do any more. 
Which specialist should she see now?  I'm actually thinking about her gynocologist.

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Date Joined May 2007
Total Posts : 1220
   Posted 9/16/2009 4:57 PM (GMT -6)   
Oh I feel for her!! I had a bad case but didn't know what it was. I assumed I was dying. People may laugh when then think diaper rash can't send you to the ER but I certainly understand!! My doc said the skin literally breaks down, which is why it is so amazingly painful -- I so feel for babies who get it!! My doc put me on diflucan for seven days. I used baby diaper rash creme -- liberal applications of a zinc oxide creme like Balmex (smells better than Desitin). The creme really soothed my poor skin and protected it from the moisture and drainage. You can also use vaseline for a day or two in a pinch until you get the real diaper rash creme (if used too long, vaseline can soften the skin too much).

Please tell her she will get better! It will take time for the skin to heal, but with the diflucan and the creme she should be on her way to healing.  I occassionally use Balmex even now when I start to see a little irritation.

Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 9/16/2009 9:24 PM (GMT -6)   
I have a suggestion for the peeing pain. Have her use a wide mouthed bottle (like a vitamen water bottle) and hold it snug right over her "pee hole" and pee right into it. Then, it can't drip backwards and get into the rash. Then she can just dump the pee into the toilet and flush. Keep the bottle by the toilet till she is healed.
27 Year old married female.  Graduated law school this year and waiting for results of the bar exam.  Start a new job sometime in September.  Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 

Regular Member

Date Joined Jul 2009
Total Posts : 342
   Posted 9/16/2009 11:23 PM (GMT -6)   
Oh my god..she has five setons? I feel so bad for her..i am praying for her...i think..that you have to tell her colon rectal surgeon..everything that is going can tell her primary care doctor..even the obgyn...anyone who will listen..based upon what you are sounds like a bad yeast infection...does she have the nystatin..creme or powder? I think..she needs to pea in a sitz bath..that way their won't be any stinging at all...she can even pee in a bathtub full of warm a case so bad as hers...i think someone needs to offer her some type of pain reliever..via an it possible that somehow..she could start getting lidocaine numb her a bit? I am not sure what is possible..but as a mom myself..i would not stop..until she has relief...i can't really suggest a cream..because if the issue is yeast..then this is the best stuff for her...i know that calmoseptine is over the counter at the pharmacy..its helpful to issues such as fistula has phenol in it cools things down..but i have no idea how that would feel to her...i just feel so bad for her..i feel like crying..just keep complaining and demand action..from whomever will listen...and keep us updated to let us know how she is feeling....I am praying for her.

 Crohn's anal fistula Lupus Hyperthyroid..Pentasa..waiting on Remicade

Kanye West is a jerk.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 9/17/2009 8:50 AM (GMT -6)   
I would recommend the diaper cream for now too, at least until she can see her doctor and maybe then he will prescribe a prescription cream. Sending healing prayers her way.

Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

crohn's pt mom
Regular Member

Date Joined Nov 2008
Total Posts : 86
   Posted 9/17/2009 8:59 AM (GMT -6)   
Thanks for your ideas and support.  It is a yeast infection, I can't imagine a baby going through this.  I think last night I finally saw an improvement.  Since she's 22 I can't make her do anything - I just keep harping on her to change those pads constantly.  But she was so sore she wouldn't move unless she really had to go pee and she would wait for me to come home from work.  She does use a bottle with water on the toilet but until last night it really hadn't helped.  She sits in the bath after I get home and usually feels a little better.  

Veteran Member

Date Joined May 2009
Total Posts : 506
   Posted 9/17/2009 9:04 AM (GMT -6)   
My father who had a colectomy some years back uses Calmoseptine. I use it when I have bad D and it works amazingly well.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.

Amor fati - Nietzsche

Regular Member

Date Joined Jul 2009
Total Posts : 342
   Posted 9/17/2009 12:35 PM (GMT -6)   
I am glad to hear she is well taken care of you by you mom! Thank goodness she has a good mom...because its hard to go through this stuff alone...when the yeast is an amazing cream...and its very soothing..but don't put anything on the rash right now except the nystatin...anything else you put on the rash right now..might allow the yeast to grow...and get worse...she really needs to change those pads more...or the yeast is going to get worse...but i have an should go to the pharmacy and get these pads called Always Infinity..they are designed to hold alot. They are dri the moisture..and the drainage..will be trapped in the pad..and not all over her skin...and they are good for hours and hours...these pads...i think one pad could last at least six hours...then i would go to Walmart and get her a shower sprayer...i think she is going to love this..she can spray herself down...and it will be not only a pain reliever...and soothing..but it will help to get drainage and other stuff off that is hard for her to wipe off....and its worth it..not too mention i got one there it was only 15 dollars...and i love mine. Last but not least..i am not sure what type of seton drain she has...but if its the rubber one...and she is allergic to latex...their is a possiblity...that she could also be having an allergic reaction..thats why i think you should call the surgeon who put them in..because they really need to know..if she is having a hard time..that is their job...thats why they are paid the big bucks...good luck...hope she feels better soon.

 Crohn's anal fistula Lupus Hyperthyroid..Pentasa..waiting on Remicade

Kanye West is a jerk.

Veteran Member

Date Joined May 2007
Total Posts : 1220
   Posted 9/17/2009 1:40 PM (GMT -6)   
The diflucan will kill the yeast infection from the inside. Several of my doctors told me that once the yeast gets into the tissue, only an oral med like diflucan will kill it. A topical creme is usless at that point. So keep up the diflucan and liberally use the baby diaper rash creme to keep moisture off her skin. Praying for her relief soon!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.

Veteran Member

Date Joined Feb 2009
Total Posts : 7150
   Posted 9/17/2009 2:14 PM (GMT -6)   
(visiting from the UC forum)
When my son has really bad diaper rash, the thing that worked best was to slather on a thick layer of Aquaphor (kind of like extra-thick vaseline) then a layer of Desitin. I think the Aquaphor helped protect his skin from further damage while the Desitin healed it. So maybe Aquaphor would at least help protect the fragile skin.
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Current meds: Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, OrthoNovum, multivitamin.

Regular Member

Date Joined Feb 2008
Total Posts : 25
   Posted 9/17/2009 6:56 PM (GMT -6)   
My two year old son has severe crohn's. He was having the most horrendous diaper rash and we tried everything. All the creams etc. I finally got fed up and based on my reading of the Vit E enema stuff that is floating around these boards and the internet I decided to try slathering Vit E oil on it. I just used the Trader Joe's Vit. E oil. The diaper rash that had plagued us for many months cleared up within three days. He has not had a bad diaper rash since.

Might be worth a try. Sending my best wishes to your daughter.
Father to 2 year old son diagnosed with acute Crohn's.
Imuran (40mg's a day), 6mg Prednisolone, GAPS diet, Mutaflor, Bio-Kult probiotic, Yes parent oil, about to start LDN
Always flares when we dip below 5mg Pred. Just got over C. Diff (we hope).

Regular Member

Date Joined Sep 2009
Total Posts : 212
   Posted 9/17/2009 8:43 PM (GMT -6)   
Vitamin E is a great idea! I've heard that it can also be used to lubricate the tip of an enema bottle (for probiotic enemas, for instance) and has added healing benefits once "inside."
Also, you may want to consider battling yeast naturally with a probiotic such as THREELAC (different than Theralac).  One packet daily may help to keep the yeastie beasties away for good. Or better yet, start making your own homemade yogurt and having your daughter consume it daily to add tons of beneficial flora to her gut.
As for my daughter, Desitin works very very quickly for her if/when this happens.
Posts refer to my 9 year old girl
  • Started with 30 mg Prednisone, tapered off over 3 months

Then continued with:

  • Pentasa, 3 blue horse-sized capsules, 3 x daily
  • Forvia multivitamin/mineral for Crohnies
  • Coromega
  • Calcium
  • VSL#3, 2 x day
  • Custom Probiotics: 6-Strain Blend, 1 x day
  • Culturelle, 1 x day

Regular Member

Date Joined Jul 2008
Total Posts : 440
   Posted 9/18/2009 12:31 AM (GMT -6)   
I agree with MoobyDoo...homemade yogurt would be really good for you to get into for your daughter. Also, probodicts..check them out! There's alot of issues going on..yeast and the pain. I know when my kids were little and had a diaper rash old german dr. told me to use "Crisco"...worked like a charm! I usually had it handy too. Which was nice in a pinch. Of course, this won't help with the yeast ...good luck!! Sounds like your a mom earning her wings:)
 41 yr old woman with 12 surgerys under my belt. Diagnosed in 2005 CD. PTSD 1999. Gullbladder taken 2000, Hysterectomy 2005, Back surgery 1998 with herniation L-4, L-5, S-1. Two-Re-sections on small intestine, total of 18 inches taken out 2006. Stomach Herniation from re-section 2007, Been getting kidney stones too! The good news...finding this website.
                Meds: Imuran 200mg daily, asacol, Bentyl, Coelestid, occasional flagyl and cipro, high blood pressure meds, paxil 25 mg, 4/20meq's potassium, synthroid...& try to get alot of laughter in.

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