Wierd Symtoms considering I've had a total Colectomy

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redsoxfan
New Member


Date Joined Aug 2006
Total Posts : 8
   Posted 9/16/2009 7:38 PM (GMT -6)   
So, I don't post often at all, mostly, I just read and offer advice if I can.  I've recently had some interesting symptoms and assume they are related to my crohn's but can't be sure.
I had a total colectomy in January of 2002.  Besides a pesty wound that wouldn't heal and one minor episode of arthritis flare ups, I've been good. Essentially in remission.  So by defination, I have nothing left below the small intestine - NOTHING!

One of the symptoms I had when I was sick was really bad fistula disease.  Mostly peri anal. I had to sit on a donut for 2 years I was always in pain.  So now, I start having butt pain again.  Not in the anal area, but in the gluteal muscles.  It is the same pain as when I had all of the fistulas.  It feels like my muscles are ripping apart.  I have an appointment with my GI next week.  In the mean time I'm trying to figure out what could be causing this butt pain?!   Could it be fistulas?  Where would they be from?  How would the doctors find out since I'm completely sewn up down there!?

 


Diagnosed w/Crohn's in 1998 (21 years old).  Remission initially, until 2001 when I became pregnant.  13 surgeries while pregnant.  Healthy son.   Since April 2001 have had 37 surgeries, mostly for Abscess/Fistulas. 3 muscle flap surgeries (both legs and the abdomin) Colon and Rectum removed when son was 8 weeks old.   Symptom AND med Free since final muscle flap surgery in 2004!!!


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 9/16/2009 11:00 PM (GMT -6)   
It could be a remnant of an abscess or fistula that was missed during the colectomy. They travel a fair distance sometimes. It could also be related to an arthritic condition or a referred pain from sacro-ileal inflammation. The doctors will probably do some xrays and ultrasound - possibly MRI, but that is more expensive usually.

redsoxfan
New Member


Date Joined Aug 2006
Total Posts : 8
   Posted 9/17/2009 5:34 PM (GMT -6)   
Keeper - thanks for the feedback. Could the abscess or fistula been around since 2002? We're talking 7 years! I'll have to look up what sacro-ileal inflamation is. That isn't something I'm familiar with. Anyway, I'm anxiously waiting my appointment now. Thanks again!
Diagnosed w/Crohn's in 1998 (21 years old).  Remission initially, until 2001 when I became pregnant.  13 surgeries while pregnant.  Healthy son.   Since April 2001 have had 37 surgeries, mostly for Abscess/Fistulas. 3 muscle flap surgeries (both legs and the abdomin) Colon and Rectum removed when son was 8 weeks old.   Symptom AND med Free since final muscle flap surgery in 2004!!!

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