looking at having first surgery

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gutrules
Regular Member


Date Joined Jan 2004
Total Posts : 298
   Posted 9/16/2009 8:09 PM (GMT -7)   
mad  I was diagno at age 26 with crohn's, have managed with pentasa, and absolutely no ruffage, carrots, apples, lettuce, nuts.  well now the pain is getting to me and finally went back and had a colonoskopy and ct acan.   colon biopsy, revealed no active crohn's, but ct showed a long stricture in distal ileum.  recom surgery.  I have an appoint to see surgeon soon   Need as much imput and advice, web sites as I can get
thanks in advance
 

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/17/2009 6:56 AM (GMT -7)   
Did they say way the stricture was caused from? If its inflammation, then the stricture can be helped by meds. If its from scar tissue then surgery will be required.

I have had two open resections myself. I was in the hospital for 10 days each time, but most are only in 5-7 days. Many are now being done by laproscopy and the recovery is much easier with those. Important things to remember is to walk as much as possible afterwards to help your bowels wake up sooner. I also recommend asking for a pain pump, that way you are in control of your pain meds, instead of waiting for the nurse. Also take your time eating again. You should slowly reintroduce foods back into your diet. Good luck and here's to a long remission.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Escalador
Regular Member


Date Joined Jul 2009
Total Posts : 103
   Posted 9/17/2009 8:35 AM (GMT -7)   
I'm 25 and I've been diagnosed with 2 strictures...  1 short one in the ileum, 1 of unknown length in ascedental colon. My GI's opinion was that I do not need surgery because I am feeling well (I had pain but it stopped) because surgery doesn't solves anything in the long run. So here I am, 3 months after that... still without surgery... feeling ok (not great though)

pimfram
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Date Joined May 2009
Total Posts : 506
   Posted 9/17/2009 9:15 AM (GMT -7)   
As Nanners said, it depends what type of stricture it is. If it's just inflammation, drugs should bring it down.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.

Amor fati - Nietzsche


gutrules
Regular Member


Date Joined Jan 2004
Total Posts : 298
   Posted 9/17/2009 11:09 AM (GMT -7)   
Thanks for the advice, I need everyones thoughts and ideas.  I forgot to mention diagon at 26, but now 44 and have had this problem with blockages.  they seem to think that this will be the best answer for me, but am seeing dr next week for consult.   How do they know if it is from scar tissue? or disease?  I am on pentasa, and while have never had intest surgery, had , 2 c-sections, gallbladder and appendectomy.  does this cause scar tissue?
 
thanks again, and forgive spelling,  wish for spell check
 

pimfram
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Date Joined May 2009
Total Posts : 506
   Posted 9/17/2009 11:20 AM (GMT -7)   
The doc who did the scope should know which type it is.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.

Amor fati - Nietzsche


Elisa W.
Regular Member


Date Joined Jan 2005
Total Posts : 55
   Posted 9/17/2009 8:45 PM (GMT -7)   
Avoid surgery if you can and start a probiotic diet with fermented foods, yogurt, and probiotic pills, eat only organic unprocessed food, don't drink non-spring water, get a filter for your faucets and showerhead to block out as much florine as possible, and don't use products that don't include natural products (I'm talking even make-up, deodorant, lotion and clothing (non-cotton clothing)

I read about this in a book called "The Makers Diet"..changes people's lives. But tomorrow..go out and bye the probiotic pills..I swear it will help!!!
Diagonosed and operated on January 10th, 2005 in Santiago, Chile during my last semester of Grad school. 


gutrules
Regular Member


Date Joined Jan 2004
Total Posts : 298
   Posted 9/17/2009 8:54 PM (GMT -7)   
i have tried probiotic pills and get verrrrrryy gasy. Is there a certain brand that i should try or do they all do that

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 9/17/2009 9:27 PM (GMT -7)   
I will be having surgery on Tuesday to remove a stricture. It's scar tissue (had a colonoscopy and CT Enterography for verification), and causes a blockage once or twice a year, so I decided I was ready to be rid of it. I posted a thread asking the surgery vets questions. I'll find the link and post it (should you ever decide to have surgery, that is wink ). If you have inflammation rather than scar tissue, I would definitely try to avoid surgery through diet and meds.

Probiotics can give temporary symptoms, such as gassiness, because it's kicking out some bad bacteria from your gut. Start at a small dosage (even as low as half a capsule) and slowly increase until you're taking the recommended amount. Personally, I get my probiotics from homemade yogurt.

EDIT: Here the link to info about what it's like to have a resection: http://www.healingwell.com/community/default.aspx?f=17&m=1582937

*activated your link*

Post Edited By Moderator (Nanners) : 9/18/2009 7:24:07 AM (GMT-6)


gutrules
Regular Member


Date Joined Jan 2004
Total Posts : 298
   Posted 9/17/2009 10:20 PM (GMT -7)   
thank you so much for the info. i didn't know there were diff causes of the stricture and of course the dr in on his days off, so i will have to be patient and wait, meanwhile i will check out your link. thank you so much

bachi
Regular Member


Date Joined Jan 2009
Total Posts : 20
   Posted 9/19/2009 5:31 PM (GMT -7)   
If the doctors are telling you to have the surgery, seriously consider it. My doctor told me for two years to get the surgery done, but I put it off because I didn't want to be in the hospital long away from my 2 year old.
 
I had an emergency bowel resection on Aug. 27th. It was done lapriscopically (sp?), and I was in the hospital for 7 days.  While the recovery was tough, today I feel better than I have felt in years. I feel like I finally have my life back. I have more energy, and now my daughter gets the attention she deserves.
 
I'm praying that I continue to feel this way, and am praying that you feel better soon. :)
Diagnosed with Crohn's disease 11 years ago, also suffer from fistulas due to Crohn's.
 
Been on Prednisone, Asocol, Pentasa, 6MP, Entocort, Cipro, Lialda, Remicade, Cimzia.
 
Most success on Remicade.
 
1st Bowel Resection on August 27th 2009. Had a foot of my right colon removed. Feeling so much better! Currently on Cimzia and Asocol to remain in good health.
 
 


PinkSkyCloud
Regular Member


Date Joined Jul 2006
Total Posts : 95
   Posted 9/19/2009 6:05 PM (GMT -7)   
It looks like I'm going to be having surgery too. I'm glad I found this thread. The replies here are really helpful. Where can you buy probiotics at?
Solanges: )


gutrules
Regular Member


Date Joined Jan 2004
Total Posts : 298
   Posted 9/20/2009 4:47 AM (GMT -7)   

 

I have used Align, that I bought at Costco, but there are others, colon health and probably better options at health food stores.

 


Mr. Denial
New Member


Date Joined Jul 2009
Total Posts : 17
   Posted 9/20/2009 6:19 AM (GMT -7)   
I started this post regarding surgery which I found helpful. http://www.healingwell.com/community/default.aspx?f=17&p=1&m=1585793#m1588451

I have since met with a surgeon who summed things up by saying surgery was a "crap shoot"! I have decided to proceed with a double balloon enteroscopy procedure which supposedly can give a much clearer picture as to what has caused some blockage . . . scar tissue, inflammation, or a combination. Unfortunately, there are only a few docs who do this procedure.

dave
Prednisone (20mg), Flagyl, Pentasa, Humira, Prilosec . . . hospitalized for two obstructions, no surgery to date, CD in ileium


gutrules
Regular Member


Date Joined Jan 2004
Total Posts : 298
   Posted 9/21/2009 5:13 AM (GMT -7)   

I am looking forward to meeting with the surgeon tomorrow.  so many questions, and yes I have a list. 

I'll let u know what i find out yeah


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 9/21/2009 3:03 PM (GMT -7)   
Wish I had remembered a list of questions! You might want to ask about strictureplasty too. You don't have to lose any intestine with that.

I had my pre-op this morning. Surgery tomorrow!
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


gutrules
Regular Member


Date Joined Jan 2004
Total Posts : 298
   Posted 10/16/2009 6:09 PM (GMT -7)   
stricture is from scar tissue and surgery is lurking. wish me luck
 

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 10/16/2009 6:38 PM (GMT -7)   
Good luck! Did your doc mention whether it was going to be laproscopic or open?
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Humira since 7/08, Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


gutrules
Regular Member


Date Joined Jan 2004
Total Posts : 298
   Posted 10/17/2009 4:52 AM (GMT -7)   
open, didn't seem to think they would be as successful with the lapro. because of what they saw in the ct scan i guess.
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