Q about gut pain location for CD

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pb4
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Date Joined Feb 2004
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   Posted 9/16/2009 8:33 PM (GMT -7)   
I cannot remember off hand when most CDers experiance pain in their gut if it is the LRQ or LLQ?  I myself have never had serious gut pains (but instead lower back) so I can't tell my sister the correct info (she's experiancing some gut issues) so if anyone can fill me in so I can pass the info along to her that would be great.
 
Only thing I've ever known was with UC it's the opposite side (for gut pain) from CD.
 
Thanks :)
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Not2Spunky
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Total Posts : 165
   Posted 9/16/2009 8:39 PM (GMT -7)   
MY CD is in the TI so my pain is on the RLQ unless I am having an obstruction the pain comes in contractions and seems to center on/around belly button with vomitting. My whole abdomen area is sore to touch I can't wear jeans or have anything constricting at all. Hope this helps. Kay
 RIP my beloved Chihuahua: Roxy
DX with CD of the TI in 2004 by colonoscpy biopsy, with partical obstructions x 3. Anemic, constant elevated ESR & WBC. Constant abd. pain and fatique.    
Meds: Vit B-12 shots monthly, zinc, multi vit, Vit E, Pentasa.    


*Phoebe*
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   Posted 9/16/2009 10:43 PM (GMT -7)   

It depends where your Crohn’s is located. From what my GI told me, the upper right or right-sided pain comes from Crohn’s in the small intestine – whereas my pain is lower left pain and bloating, and always has been, as I haven Crohn’s colitis – Crohn’s of the large bowel/colon, which is located on the left hand side.

 

My Crohn’s (Crohn’s colitis/colon Crohn’s) is not as common as small bowel Crohn’s – hence most people complaining of upper right quadrant pain. I was always confused as to why my pain was different but now I know why!


Nanners
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Date Joined Apr 2005
Total Posts : 14995
   Posted 9/17/2009 6:43 AM (GMT -7)   

I am with Phoebe, before my resections it was always LRQ, now that I have had 2 resections its always URQ (actually middle right quadrant).

Hugs

Gail*Nanners*


Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
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MoobyDoo
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Date Joined Sep 2009
Total Posts : 212
   Posted 9/17/2009 9:41 AM (GMT -7)   
My daughter has Crohn's in the terminal ileum (TI) and she has only ever experienced pain right in the center of her abdomen, under her belly button.  It is here that she feels a lot of gurgling as well.
Posts refer to my 9 year old girl
  • Started with 30 mg Prednisone, tapered off over 3 months

Then continued with:

  • Pentasa, 3 blue horse-sized capsules, 3 x daily
  • Forvia multivitamin/mineral for Crohnies
  • Coromega
  • Calcium
  • VSL#3, 2 x day
  • Custom Probiotics: 6-Strain Blend, 1 x day
  • Culturelle, 1 x day


pb4
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Date Joined Feb 2004
Total Posts : 20576
   Posted 9/17/2009 10:19 AM (GMT -7)   
Thanks guys :)

Pheobe, I have crohn's colitis as well but like I said, I've never really had issues with gut pain, only killer lower back pain when my flare gets really severe.


:)
My bum is broken....there's a big crack down the middle of it! LOL :)


LMills
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Date Joined Apr 2008
Total Posts : 1753
   Posted 9/17/2009 10:27 AM (GMT -7)   
Mine is generally LRQ, but I can't really tell anymore...it sort of hurts everywhere on and off now.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 5 mg, pentasa 2 pills 4x a day, omeprazole in the morning, and a women's multivitamin. I'm also trying a B vitamin complex, but it doesn't seem to be working so I'm considering the shots.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


Brude3
New Member


Date Joined Sep 2009
Total Posts : 7
   Posted 9/17/2009 11:22 AM (GMT -7)   
When I have pain. Most times I blow up and look/ feel pregnant can't shut my pants, without pain.
Diagnosed 2002. Remicade and 6mp since then. Have a bladder fistula thats been bad since June 09.


*Phoebe*
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Date Joined Sep 2005
Total Posts : 769
   Posted 9/17/2009 3:29 PM (GMT -7)   
PB4 - that’s interesting…. I’ve also experienced this pain in my groin, strong aches, when things are flaring badly and I have to stand up for any significant amount of time. The pain I get is often a burning feeling in my whole middle section, but then specific burns/cramps in the bottom left hand side of my abdomen. If I go from a hot room to a cold room the lower left muscle seizes up and pulls and it hurts so much! And then when I bloat, I bloat more on the left side than the right, so it looks very strange!!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/17/2009 6:17 PM (GMT -7)   
Phoebe, I get the groin pain too. Fun, innit??

My disease is of the type that will go anywhere, so I've reached the point that I can guess which organ is involved by where the pain is. Right now I have pain on the left and right sides, and I have the killer back pain too.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


*Phoebe*
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Date Joined Sep 2005
Total Posts : 769
   Posted 9/17/2009 6:29 PM (GMT -7)   
It's a strange pain, isn't it? I find it very hard to describe to my doctors..... it's like 'top of my legs, in between my legs' - I should just say groin!

I used to have similar pain when it was my time of the month, but had never been able to put it down to anything...

kmholz
Regular Member


Date Joined Apr 2005
Total Posts : 133
   Posted 9/18/2009 9:50 PM (GMT -7)   
I have Crohn's Colitis and my main area of pain is LLQ, radiating to my sacrum.  However, I can have pain in all four corners, so to speak. 
Burning pain, like a bad sunburn.  I had a CT scan after my URQ started getting really painful and it showed wall thickening at the hepatic
flexure and transverse colon.  I know when my terminal ileum/ileocecal valve is bothered because the pain is the same as LLQ, just on the other side :) 
 
Hope your sister is doing OK!

Post Edited (kmholz) : 9/19/2009 9:17:33 AM (GMT-6)


CrohnieToo
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Date Joined May 2003
Total Posts : 9448
   Posted 9/19/2009 7:22 AM (GMT -7)   
Phoebe, it is NOT AT ALL UNCOMMON for women to experience a flare or pain just prior to or during menustration. Years ago, back in the '70s, I ended up in ER just about once a month and it was one of the ER doctors who suggested that I go on a birth control pill to stop my periods and thus reduce or stop the flares. Before my family doctor and I had a chance to try that I ended up w/a complete obstruction and suggested perforation, six weeks in the hospital on IVs and an NG tube, stabilized enough for off to Mayo Clinic and an emergency resection.

You will often see it mentioned in this forum that female members are experiencing pain or increased pain and flare symptoms coiniciding w/their periods.
 
The most common area for Crohn's to first hit is the terminal ileum/ileocecal valve area so its not surprising that most experience the LRQ pain. Its been so many years I don't remember where my pain started or was greatest but my Crohn's just had to be different from the most common and it struck what was referred to as the mid-ileum. What is referred to as the terminal ileum is about 3 feet long (we have about 20 feet of small intestine) and actually my Crohn's first struck at the proximal end of the terminal ileum instead of the distal end near the ileocecal valve.
 
Short anatomy lesson: mouth, esophagus, stomach, duodenum (1st part of the small intestine), jejunem (second part of the small intestine), mid-ileum (largest section of the small intestine), terminal ileum w/ileocecal valve at the juncture w/the cecum (the cecum is the first part of the colon), ascending colon (running up the right side), transverse colon (running across the body below the diaphragm, stomach, etc.), descending colon (running down the left side), sigmoid colon (runs to the middle of the body), rectum (runs down the center of the body or pubic area) and anus (exit).
 
However, the intestines, large and small, are VERY flexible and both are quite like a slinky, the small intestine moreso, of course, since it is so much longer than the colon) and they don't always sit as exactly positioned as you see in the illustrations. They can shift around quite a bit. For instance, the transverse colon can actually dip down quite low, especially during a colonoscopy when trying to slip the scope thru it to maneuver thru the hepatic flexure (the liver sits at the upper right corner just above the turn of the transverse colon into the ascending colon - remember the scope is going one way the wrong way thru a one way "street"). The spleen sits at the left upper corner where the transverse colon and descending colon meet and THAT turn is referred to as the splenic flexure.
 
The most common area for UC to strike is the descending/sigmoid colon area and then it tends to spread evenly up the sigmoid/descending colon. So that would be the LLQ.


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Post Edited (CrohnieToo) : 9/19/2009 8:42:39 AM (GMT-6)

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