SI joint issues

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dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/16/2009 8:43 PM (GMT -7)   
Hi all,
 
I went back to my doctor today since I was stil l having this back pain and I am done with the cipro tomorrow.  Looks like the urine C & S came back normal.  The PA who I have as a primary was feeling around my hips and noted my left leg is longer than my right and it caused the left part of my pelvis the SI joint to move in a backwards postition...and the right side is pushed forward.  He manipulated it back into position with some stretches.  I am in severe pain and wonder if any of it has to do with the CD or it is just my bad luck?
 
 
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 9/16/2009 9:49 PM (GMT -7)   
I don't know about your case - it sounds a bit like a postural problem - possibly related to pain. However, about 10% of Crohn's patients get SI pain and the doctors don't seem to know why or how it happens. It is just considered another arthropathy related to Crohn's. One thing that they suggest is sulphasalazine which they seem to think helps such problems.

dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/16/2009 10:34 PM (GMT -7)   
Hmm I havent been on azulphadine in many years I only use HUmira now for my CD. My PA was actually quite surprised that this has never bothered me before now in all my 30 years.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/17/2009 6:45 AM (GMT -7)   
I would suggest that you see a Rheumatologist. Crohns does give some of us problems in that area, and a Rhuemy would be the best to diagnose those types of problems.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 9/17/2009 9:27 AM (GMT -7)   
I am currently being treated for what a spine specialist thinks is SI pain. It started exactly at the same time as a UTI/Kidney infection. The physical therapist doesn't think it is SI Dysfunction because of the way my muscle reacted to her manipulation. I have only been going to PT for 2 weeks and so far it hasn't done anything to help the pain. If after another 2 weeks it still isn't any better we will re-evaluate. I'm not convinced that there isn't something else going on. But how weird is it that all of a sudden this is happening to more than one of us?l?
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/19/2009 11:21 PM (GMT -7)   
I must say the 3 stretches my PA had me do in the office I was in pain that night and barely slept but been pretty comfortable since. I still find it odd no one ever informed me that 1 of my legs was an inch longer than the other (this is what he said from feeling my pelvis) and I have had how many tests run on me incl bone density where they are taking pics of my bones???

IDK kinda weird to never bother me then BAM
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/20/2009 7:04 AM (GMT -7)   
I never had joint issues at all in my early years with this disease, and I have had it almost 34 years. But the last 10 years it has gotten significantly worse. In fact I have to have two total knee replacements. Per my ortho doc my knees are worn much worse than someone my age should have. I am 51 now, and he said the wear on my knees is like someone at least 15 years older than me. Yes steroids have played a role in this, but part of this is Crohns related joint issues too. Is your PA one of those that do chiropractic type things in their practice? The reason I ask is because I have had Chiropractors tell me one of my legs is longer, then they adjust me and everything gets leveled out. I think if you had one leg 1" shorter than normal you would have known this as a child and had to use braces etc. I have a niece that had this who had to have it surgically repaired a few years back.

Oh, I have bad SI issues too. When it flares it is horrible and very painful in getting up and walking around. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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