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General Colon Bowel
Regular Member


Date Joined Nov 2003
Total Posts : 282
   Posted 9/16/2009 10:57 PM (GMT -7)   
Saw my gut doc today....follow up from when I was in the hospital 3 weeks ago for GI bleeding.
 
And lemme say this first, they should understand that no matter how lucid you appear when they release you from the hospital, they should really tell someone who is cognizant what your
release-care is. After 4 days of good drugs, I was out of it when I signed out.
 
Anyhow......the bleed was somewhere in the small intestine, and in no way was caused by anything other than the diesease.  The biopsies revealed (*shock*!) that I still have Crohns......duh........
No ulcers or anything that looked real bad, so no surgical remedies are indicated.
 
Im getting weaned off the Pred and am supposed to be taking Sulphalizine (sp?) 4 times a day.....I thought that crap was antibiotics, so I hadnt been taking it turn oops. This is where having my wife there would have been a good thing....I woulda know to take them.
 
When I first visited  this guy, I told him I wanted Remicade........doesnt look like Im gonna get it. He wants me to eat Pepto chewables to give me solid stools..........uh..........really? Thats weird.
 
And so Im back to feeling like I dont really have the disease......I can go to work, eat anything I want, go anywhere I want whenever I want......yet he tells me I still have it.
Whatever. I was actually almost pleased to be in the hospital b/c it was sort of like having the disease justified......"Now we're talking.....this is what having the disease is really like."
But now Im back to normal....feeling like an idiot and a liar when I tell people I have Crohns.
 
That is all,
 
General Colon Bowel
 
Diagnosed with CD: November 2003
Probably had it long before that.
 
Currently taking: Not what I asked for.
 
Cant eat: I can eat anything.
 
Crohn's Wishlist: I would like a minor resection surgery...you know...just to see what it's all about and so I can say I had one.

Post Edited (General Colon Bowel) : 9/17/2009 12:04:10 AM (GMT-6)


Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 9/17/2009 8:18 AM (GMT -7)   

I think I was kind of "not all there" every time I talked to the doctors after surgery. Not used to taking so many drugs and pain killers and realize now that I didn't really need as much. Plus I later find out they cause constipation and they want you to have a bowel movement? After being released I asked "what did he just tell me?" My husband came two minutes later.

If you are feeling as good as you are and eating anything , why would you want Remicade? And be careful what you wish for as far as surgery goes. Being back to normal is what most people wish for.

I would not know I had Crohn's if not for the tests and surgery but am thankful every day that I feel as good as I do.

That is all,


57 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009


General Colon Bowel
Regular Member


Date Joined Nov 2003
Total Posts : 282
   Posted 9/17/2009 9:15 PM (GMT -7)   
well.......when I first met with this doc I had been feeling crappy for months.....gut pain, D, malaise, weight loss...........and I knew Remicade helped in the past.

I have always (to my knowledge) been able to eat anything...meaning, I have never made a concious "a-ha" about any food that seemed to make me sick. Never found a food that made me hurt or anything.
Diagnosed with CD: November 2003
Probably had it long before that.
 
Currently taking: Not what I asked for.
 
Cant eat: I can eat anything.
 
Crohn's Wishlist: I would like a minor resection surgery...you know...just to see what it's all about and so I can say I had one.


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 9/19/2009 8:49 AM (GMT -7)   
This is totally off topic but I've just got to say that I love your screen name...I don't think I've ever seen it on here before.  I laughed out loud when I saw it and I needed that today, so thanks.  =)
Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 

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