c diff prevention

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heatmiser
Veteran Member


Date Joined May 2003
Total Posts : 1671
   Posted 9/18/2009 4:15 PM (GMT -7)   
Hi all,

Just got home from a 4 day hospital stay because of c diff. Thought I'd share what my docs stressed to help prevent this nasty bug.

1. Wash hands with soap and water for at least 15 seconds frequently. C diff is NOT killed by those alcohol-based hand cleaners we are all so fond of these days.

2. Clean surfaces with clorox wipes.

This has totally wiped me out and I know I'm now at a higher risk of relapse. I will do anything to minimize my risk. Yes, I am starting probiotics too, although that was not stressed by docs. I just know so many here have recommended it.

MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 9/18/2009 4:49 PM (GMT -7)   
Isn't C-diff a pain? I got it last Dec when I had my resection surgery, and I'm still fighting it.  I just finished my Flagyl yesterday. *crosses fingers* I'm also on a probiotic that my GI prescribed to me, it's called florastor.
Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed, 3 Abscess Cleanings
Current Meds: Cimzia, Methorexate, Vitamin B12 (injections), Nexium.
Next Surgery: Sept 4, 2009 to Take Down Abdominal Fistula!!  (On hold until current flare is under control, boo!)
 

PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 9/18/2009 5:29 PM (GMT -7)   
You need to use cleaners that have bleach to kill c-diff. Clorox germicide should work great. Clorox disinfectant wipes don't actually have bleach - I noticed when I was looking in costco when my husband first got c-diff that the box actually said it was bleach free, which means it doesn't kill c-diff spores. So, I've been using clorox germicidal wipes, which do contain bleach.

Also, use paper towels to wipe hands after washing, instead of towels. And I've been cycling the washer with just bleach every so often, to get the spores out of my washing machine.

Also, lots of yogurt and probiotics, and florastor, and keep stress at bay. Unfortunately doing all those things don't give you results sometimes . . . my husband just relapsed after being c-diff free for 9 months, yesterday was his last dose of vanc . . . we're now keeping our fingers crossed too!

Good luck.

PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, until Sep 2, 2009
Fighting c-diff, I guess for life


heatmiser
Veteran Member


Date Joined May 2003
Total Posts : 1671
   Posted 9/18/2009 9:39 PM (GMT -7)   
Scary. Does it always require hospitilization or did I just get lucky?

PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 9/18/2009 9:45 PM (GMT -7)   
No, it doesn't always require hospitalization. In my husband's case, he wasn't diagnosed with crohn's disease at the time. They thought he only had c-diff, and he was taking vancomycin, but he was getting steadily worse. And in the hospital, they didn't do a full colonoscopy until 15 days after he was admitted - they did a sig scope, and kept telling us it was all clear. So, his crohn's flare was completely out of control.

I think when you have c-diff and a concurrent crohn's flare, it's pretty hard to deal with, because the treatments are divergent. For c-diff you need a strong immune system to work in conjunction with the antibiotics to get rid of the c-diff, but for crohn's you have to suppress the immune system to get your immune system from attacking your body. So, combating both at the same time is a daunting task, or at least was for us last year.

My husband just finished a 2 week course of vanc for a relapse of c-diff 9 months after stopping the vancomycin. This time, he paid attention to his symptoms, and we got to the doc and had the stool sample test at the first whiff of trouble, and he really didn't suffer at all. And also, because his crohn's is under control with the remicade, it was much much much easier to handle and treat.

PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, until Sep 2, 2009
Fighting c-diff, I guess for life


sickofitall
Regular Member


Date Joined May 2009
Total Posts : 250
   Posted 9/20/2009 3:41 PM (GMT -7)   
Wow.  I was also diagnosed with Cdiff and crohns at the same time.  It was terrible.  They kept thinking I had infectious colitis.  Got a second opinion who properly diagnosed them both rather quickly.  That was a very difficult time.  Although I was not hospitalized.  C diff severely damaged my colon along with crohns... still recovering.  But yeah now I eat alot of yogurt and use the germicidal wipes.  I also use the germicidal spray too... just to make sure!

Current meds:  Remicade and probiotics
Tried:  Prednisone, lialda, antibiotics all failed attempts.
 

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