Blood transfusions and disease

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NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 9/19/2009 12:19 PM (GMT -7)   
I read that I received blood transfusions from a race group that is highly diseased, especially HIV. I am wondering if there is extensive screening before blood donations. Does anyone know? I will probably try to get a HIV test.

Among the diseases than can be transmitted via transfusion are:

* HIV-1 and HIV-2
* Human T-lymphotropic virus (HTLV-1 and HTLV-2)
* Hepatitis C virus
* Hepatitis B virus
* West Nile virus All units of blood in the U. S. are screened for this virus.
* Treponema pallidum (the causative agent of syphilis, usually used as more of a screening test for high risk lifestyle, the last case of transfusion transmitted syphilis was in 1965.)
* Malaria - Donors in the United States and Europe are screened for travel to malarial risk countries, and in Australia donors with a potential malarial exposure are screened for malarial antibodies.
* Chagas Disease - A screening test has been implemented for this disease in the United States, but is not yet required as Chagas disease is rare outside of South America.
* variant Creutzfeldt-Jakob Disease or "Mad Cow Disease" has been shown to be transmissible in blood products. No test exists for this, but various measures have been taken to reduce risks.
* Some medications may be transmitted in donated blood, and this is especially a concern with pregnant women and medications such as Avodart and Propecia.
* Cytomegalovirus or CMV is a major problem for patients with compromised immune systems and for neonates, but is not generally a concern for most recipients.
27m - Dx January 2005: UC/Crohn's
Entocort 9 mg, Zosyn IV 4.5g x 3, Flucanozole 200mg, Asacol 4 x 3


LMills
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Date Joined Apr 2008
Total Posts : 1753
   Posted 9/19/2009 12:23 PM (GMT -7)   
From a race group that is highly diseased? Where and how did you find this out?
I know there is always that risk with any blood transfusion, but the percentage of successful transfusions is much higher...I have had three.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 5 mg, pentasa 2 pills 4x a day, omeprazole in the morning, and a women's multivitamin. I'm also trying a B vitamin complex, but it doesn't seem to be working so I'm considering the shots.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
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randynoguts
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Date Joined Jan 2003
Total Posts : 6049
   Posted 9/19/2009 12:45 PM (GMT -7)   
where you at ?Haiti? other wise i wouldnt worry.. they learned their lesson mostly back in the 80's. lost a lot of money in lawsuits. the y screen very well now. i too would be curious as to how you would know from whom the blood came from. i have received about 8-10 units over the years and there was never a identifier on the bag other than a number and a bar code to track where it came from and where it went.
randynoguts 



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Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/20/2009 7:20 AM (GMT -7)   
I have had blood too. If I am not mistaken, aren't you in the US? Because if thats the case, we have very strigent tests here. I highly doubt you were infected. But if it gives you peace of mind, test yourself, but I personally think its a waste of time. JMHO
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Illini
Regular Member


Date Joined Dec 2007
Total Posts : 298
   Posted 9/20/2009 8:52 AM (GMT -7)   
People who donate fill out a form with questions that help to identify if they take part in high-risk behavior and if so, how recently. In terms of blood donation, "high risk" means anything from sexual activity to travel outside the country.

Blood is tested for HIV, etc. as you can see from your own list that you posted. No test is 100% accurate (say, 99.99%) and some diseases cannot be detected shortly after infection. Eliminating people with recent risk indicators helps to further decrease that .01% risk. Some risk indicators get you banned for life.

You should be comfortable that the US blood supply is safe. If you still want to get a test, that is your choice. I am pretty sure you will have to pay for it out of pocket, or I guess you could find a free clinic to do it.

As an aside, blood donation records are kept indefinitely. If by chance someone is diagnosed with HIV after donating--even a decade later--the people who received their blood are notified so that they can be tested, if they want to. Obviously, this happens very rarely. I only know because I have a family member who works in blood banking.
July 2007 Drug-Induced Liver Injury
January 2008 Crohn's Ileitis
Currently trying... Enteral Nutrition, VSL#3, Primadophilus Reuteri, Folic Acid, Vitamin E


randynoguts
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Date Joined Jan 2003
Total Posts : 6049
   Posted 9/20/2009 3:11 PM (GMT -7)   
illini... do blood banks ever get robbed?? ;0)
randynoguts 



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Dagger
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Date Joined Apr 2008
Total Posts : 1522
   Posted 9/20/2009 3:22 PM (GMT -7)   
You can probably convince your doc to test for HIV pretty easily, it's a valid request considering your medical history. I've had family members request the test after transfusions and the insurance companies paid without a problem.

Valley Fever and Lyme Disease can also be transmitted during transfusions and neither is routinely screened for. I've had both and I am considered eligible to donate based on the questionnaire because I am considered cured of both diseases. I won't donate because I don't think it is right for me to possible infect someone with either of these diseases. I just push my other family members to donate regularly because I can't.

NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 9/21/2009 4:09 PM (GMT -7)   
I am in the US. My nurse came by today to change the Super Pick's dressing. She said it is really rare. I still might try to get a test.
27m - Dx January 2005: UC/Crohn's
Entocort 9 mg, Zosyn IV 4.5g x 3, Flucanozole 200mg, Asacol 4 x 3


gemini kiwi
Veteran Member


Date Joined Nov 2006
Total Posts : 1136
   Posted 9/21/2009 5:45 PM (GMT -7)   
I had to have blood transfusions during and after major surgery, it worried me to sign the form I felt bullied into it by my husband to be honest, it worried me for months afterwards also but he would tell me it saved my life. He used to give blood but here in NZ they don't want anyone donating who lived in the Uk before the 80's because of the mad cow disease.
Tess

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/22/2009 7:08 AM (GMT -7)   
NH if thats give you comfort then I say get the test. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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