Crohn's flare after flu shot??

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Blossom
Regular Member


Date Joined Mar 2008
Total Posts : 176
   Posted 9/19/2009 3:57 PM (GMT -7)   
Hi,
 
Per the recommendation of my GI doc, I just got the flu shot (regular one) on 9/17.  I seem to be experiencing a Crohn's flare.  I know this could just be a coincidence.
 
Have any of you experienced a flare after getting a flu shot?
54 year old female;
 
Have had Crohn's of terminal ileum for over 9 yrs.   My first small bowel surgery was on 7-30-09.
 
On Humira since Dec. 2008.  Allergic/hypersensitivity to Pentasa, Entocort, and 6-MP.  


pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 9/19/2009 4:12 PM (GMT -7)   
I've never had problems after getting the flu shot.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.

Amor fati - Nietzsche


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 9/19/2009 4:31 PM (GMT -7)   
I've read that people with autoimmune conditions can have problems with vaccinations. Personally, the only one I've ever reacted to was the MMR (had the worst joint pain ever in my knees and ankles).
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/20/2009 7:15 AM (GMT -7)   
The flu shot is NOT a live virus, so I think its just a fluke. Hope you get feeling better.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 9/20/2009 3:15 PM (GMT -7)   
I refused one for this reason. I know most people don't agree with me. But, if we have over active immune systems, just about anything can be seen as invader and have our body start destroying itself right? Any vaccine would certainly also be an "invader" to our bodies. I am in remission and just started a new job and frankly, don't want to take the chance.
27 Year old married female.  Graduated law school this year and waiting for results of the bar exam.  Start a new job sometime in September.  Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


LisaLee37
Regular Member


Date Joined Apr 2005
Total Posts : 384
   Posted 9/20/2009 3:57 PM (GMT -7)   
I have been struggling with this topic, which I have posted here. I have been advised to get the flu and swine flu vaccinations (when it comes available). I am on Humira, I work in a school and have never had a flu vaccination. I have not had the flu in over 15 years.

I am also concerned that these vaccinations could not only through me into a flare-up, but trigger some sort of illness. I realize that I have a suppressed immune system from the Humira, and this is where I am truly struggling. But my gut tells me that having the vaccinations could be just as risky as catching the flu. Besides, to my understanding, isn't it a guess as to whether the vaccination each year, is the actual strain that is prevelant?

ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 9/20/2009 5:28 PM (GMT -7)   
I've been getting the flu shot every year and have never had any problems and I am one of those that has problems with a lot of medications.  Fitzy, I don't understand how a flu shot could be any more of an "invader" than any of the medicines we take.  There is always a risk with any medications, but the doctors weight the benefits with the risks before advising us on what to take/get. Lisa, you are correct that the vaccines don't always protect against all of or the most common strains that turn up that year, but they do protect against the strains that they are anticipating and some protection is better than none, in my opinion.  But, this seems to be one of those topics that there will always be a lot of difference of opinion on, as with any vaccines and the big controversy as to whether kids should get them, etc.     
Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 9/21/2009 4:06 AM (GMT -7)   
Zena, my doctors never recommended I get one. The only person who did was my boss. They offer them at work. Since I wasn't going to discuss my medical condition w/ him I politely refused. If my GI was telling me to get one, that would be a different story.
27 Year old married female.  Graduated law school this year and waiting for results of the bar exam.  Start a new job sometime in September.  Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/21/2009 6:55 AM (GMT -7)   
Guys, I will repeat the flu shot is NOT a live virus. You cannot catch the flu from the shot. Personally for me, I have been getting them for the past 10 years, and have not gotten the flu once. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 9/21/2009 7:03 AM (GMT -7)   
Nanners is right, I got the flu shot while on Remicade and had no problems. If anyone reads much on this they talk about a live vacines to avoid. I ws not in favor of these in the beginning but my gi and pulmonary dr stressed the importance. so I gave in lol. I do take tylenol the first 24 hrs and I have done great. I will be getting my shot today or tomorrow.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


Blossom
Regular Member


Date Joined Mar 2008
Total Posts : 176
   Posted 9/22/2009 9:23 AM (GMT -7)   
idea  UPDATE---
Hi all!
 
I've come to the conclusion since my original post that the flu shot did NOT put me into a flare.  My "flare" symptoms have been quite mild, and quite frankly I think the timing of my symptoms was just a coincidence.  I think my sudden "D" was a reaction to some foods I was reintroducing post surgery.
 
I'm hoping that my post did not discourage anyone from getting the flu shot.  As a matter of fact, I REALLY think it's important to get the regular flu shot and the H1N1 (swine flu) shot.  Understand that prior to me going on Humira, I was never in favor of the flu vaccines (and did not get them), but since going on Humira (or any other immunosuppressant or immunomodulator) I've changed my mind. 
 
I have an absolutely wonderful GI doc, whom I trust wholeheartedly, and after a lengthy discussion about my aversion to getting the vaccinations, I am convinced that it's important to do so.  My GI is recommending them to ALL his patients on Humira.  He also feels strongly  enough about the H1N1 shot that he's even going to give one to his wife and his daughter.  He feels pretty strongly that the swine flu is going to be bad this winter.  I trust my doctor, so will do what needs to be done.
 
Thanks for all of your comments and insight.
54 year old female;
 
Have had Crohn's of terminal ileum for over 9 yrs.   My first small bowel surgery was on 7-30-09.
 
On Humira since Dec. 2008.  Allergic/hypersensitivity to Pentasa, Entocort, and 6-MP.  


MoobyDoo
Regular Member


Date Joined Sep 2009
Total Posts : 212
   Posted 9/22/2009 11:55 AM (GMT -7)   
Not to open a Pandora's box here, but be careful of vaccinations.  Read up and educate yourself on what's in them before you get them.  http://www.generationrescue.org/vaccine_information/vaccine-ingredients-possible-adverse.htm
 
I just read an article on mercola.com this morning about vitamin D and flu.  A good read.  http://articles.mercola.com/sites/articles/archive/2009/09/22/Low-Vitamin-D-Increases-Flu-Death-Risk-in-Kids.aspx
 
 
Posts refer to my 9 year old girl
  • Started with 30 mg Prednisone, tapered off over 3 months

Then continued with:

  • Pentasa, 3 blue horse-sized capsules, 3 x daily
  • Forvia multivitamin/mineral for Crohnies
  • Coromega
  • Calcium
  • VSL#3, 2 x day
  • Custom Probiotics: 6-Strain Blend, 1 x day
  • Culturelle, 1 x day


blitz
New Member


Date Joined Jun 2009
Total Posts : 9
   Posted 9/23/2009 6:01 PM (GMT -7)   
I don't mean to sound alarmist, but H1N1 is going to be very widespread this year.  It isn't getting the same kind of press as last year, but one of my company's hospitals is overflowing with H1N1 and is now doing outdoor triage as the ER can't handle it all.  My son's college has 200+ students in quarantine for H1N1 (not a word about that one on the news!)  I would suggest getting the vaccination when available.

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 9/23/2009 7:25 PM (GMT -7)   
Glad to hear you're doing ok Blossom, I hope your gut settles back down soon.

I'm going to be getting both the flu and H1N1 vaccine this year. I've never taken a flu shot before but I'm on Humira now, plus I have a 3 month old baby that I hope to save from exposure.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 9/24/2009 8:51 PM (GMT -7)   
Blitz, what states?
27 Year old married female.  Graduated law school this year and waiting for results of the bar exam.  Start a new job sometime in September.  Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 9/25/2009 5:32 AM (GMT -7)   

andrealeigh71
Regular Member


Date Joined Sep 2009
Total Posts : 96
   Posted 9/25/2009 11:10 AM (GMT -7)   
It has to be a conincidence; the only reaction you can get from an inactivated vaccine is muscle soreness where they poked ya!

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 9/25/2009 12:36 PM (GMT -7)   
andrealeigh71 said...
It has to be a conincidence; the only reaction you can get from an inactivated vaccine is muscle soreness where they poked ya!
Au contraire.  There are many adjuvants proven to cause negative reactions.  Check out this list from our CDC of just a few of the additives in vaccines (it's not a complete list!).  Many people are sensitive to many of these ingredients.  It's well documented.
 
Scroll down to the section under "Additional Facts"
 

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/26/2009 8:09 AM (GMT -7)   
I just got my flu shot this past Tuesday, and will be getting the H1N1 when it becomes available. I feel its better to be safe than sorry! I also just got a pneumonia shot. I have never had any side effects at all other than a brief sore arm.
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 10/3/2009 6:38 AM (GMT -7)   
Forgive me if someone has already mentioned this on here, but I just found out about it yesterday.  I was planning on getting the H1N1 vaccine, but got some information yesterday from the hospital that is associated with the university I work for.  They emailed out some information saying that the first rounds of vaccine will be available for their employees (health care workers) late next week and it will be a nasal mist.  It said that there will be some live virus or that a small portion of the vaccine is live.  I hadn't heard that, so someone at work googled it and found some site that did say that the H1N1 is a live vaccine.  So we can't get it?  I know you aren't supposed to get live vaccines on the biologics and this is the first I've heard that the vaccine will be live.  Has anyone else heard this?
Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/3/2009 7:02 AM (GMT -7)   
The first vaccines coming out are the mist. The mist is a live virus, so we should not get that. But....the shot is NOT a live virus, so it is okay for us. And for the Thimersol worried folks, you can ask for the shots without it.
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 10/3/2009 3:33 PM (GMT -7)   
Thanks, Nanners.  The email I got said they didn't know when the shots would be available, so I guess I'll just wait and see.  Just wanted to find out if it was true and, if it was, make sure everyone knew that the mist contained live virus. 
Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 10/3/2009 5:29 PM (GMT -7)   
After my diagnosis I stopped getting the flu shot or any other shot for that matter. The only shot I've received was the TB test, and that was solely so I could get on Remicade! Since being diagnosed I have never gotten the flu. When I start feeling ill I just juice lots and lots of ginger!

I will not get the H1N1 vaccine because, in my opinion, it is way too new and hasn't been tested long enough to see what long term side effects could take place. This is solely my opinion, but just thought I'd share!! =)
turboemma.blogspot.com/


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/4/2009 6:01 AM (GMT -7)   
Everything I have heard is the H1N1 shot is made the exact same way the seasonal flu shot its just a different influenza strain. And as I said before they are even offering shots to people who are worried about Thimerasol the option of getting the shot without the Thimerasol.
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 10/4/2009 6:58 AM (GMT -7)   
According to the CDC and WHO the H1N1 vaccine will be made in the same way and at the SAME facilities as the regular seasonal flu vaccine. This is not some new medicine we are talking about. This is just a new strain of flu. We are not talking about weird science.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

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