Test results are in Crohn's is back

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Cokeman
New Member


Date Joined Aug 2009
Total Posts : 9
   Posted 9/20/2009 2:45 PM (GMT -7)   
I had asked for some info probably a month ago here. Since then I have changed GI's. Had a Colonoscopy, a CT (I had to drink stuff that lights up your insides)
My GI put me on Entocort 9mg a day. Which helped a lot. He also started me on Flagyl, but not until I got all my testing done.
Blood work, BM test all came back normal. The Scope revealed Crohn's on the right colon. I haven't got the results from the Biopsy yet.

I go the 22nd for a Upper GI. I am now on Predisone, Imurane, Flagyl, & various OC meds. I feel better now than I have for the past 3 months. I haven't had a bloating episode since I started the Entocort. I am so thankful for that.

I do have a couple questions.

Instructions for my UGI says nothing to eat or drink after midnight.
How do I take my meds? Predisone upsets my stomach if I don't take it with food.

My GI put me on a low fiber diet. I usually eat a bowl oatmeal or cream of wheat every morning. I make them thinner than I like it so it's not as hard to digest.
Should I stop eating this, or is this little bit of fiber ok?
Crohn's since 1997, treated with Sulfasalazine, Imuran, & Predisone.
In Remission for 11 years with no medication.
2009 Crohn's returns, Current Medication 40mg Predisone, 100mg Imuran, 1000mg Flagyl
3 Stool Softner's, 3 tsp Mineral Oil, Pro-Biotic Acidophilus
Blessed & Thankful it's not worse....

Post Edited (Cokeman) : 9/20/2009 5:06:31 PM (GMT-6)


vitaka
Veteran Member


Date Joined Jun 2006
Total Posts : 887
   Posted 9/20/2009 5:05 PM (GMT -7)   
Regarding your meds, you should call up your doctor's office. They may ask that you take the next day's dose the night before - that's what I was instructed to do the night before my colonoscopy. With upper GI exams, they sometimes allow you to consume a small amount of water to take medications, but as you said, you may not want to do that on an empty stomach. If your procedure is early in the morning, they may just ask you to wait until after the procedure to take the meds.

Do your diet guidelines outline how many grams of fiber you should be consuming each day (e.g., less than 15 grams)? You're not going to be able to remove all fiber from your diet, but it's pretty easy to cut out big offenders. Check the oatmeal box to see how much fiber is in a serving. If your doctor wants you to cut down on fiber intake, it's probably a good idea to stop eating oatmeal. Thinning it out does not decrease the total fiber you're consuming, and I imagine your doctor wants you to restrict fiber intake because you're having a hard time digesting it. There are low fiber cereals (2 grams or less fiber per serving), as well as other options like white toast, eggs, etc. I'm on a low fiber diet right now as well, and it's driving me crazy because when I'm in remission I only eat whole grains, lots of raw veggies, salads, etc., and now I can't eat any of that. But I certainly notice a difference in abdominal pain now that I've cut out these foods.
29f, PhD student, diagnosed with Crohn's ileocolitis in 2/06.
During the summer of 2006, I completed the Adacolumn Apheresis clinical trial, which helped me enjoy 2+ years of remission and more than one year med-free. During spring and summer of 2009 the symptoms slowly but surely began to return, and now I'm flaring again.
Colonoscopy/endoscopy scheduled for 9/10; barium X-ray scheduled for 9/18
Currently taking: 4g Pentasa, 20mg prednisone, 150mg Trazadone, multivitamin, vitamin D supplement


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 9/20/2009 5:44 PM (GMT -7)   
My tests have usually instructed me not to take my morning meds if my test is before a certain time of day (maybe noon or so), but to wait until afterwards to take them.  But, your doctor's office would be the best place to check.  I would cut out oatmeal if you are supposed to limit your fiber.
Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


Cokeman
New Member


Date Joined Aug 2009
Total Posts : 9
   Posted 9/20/2009 5:48 PM (GMT -7)   
Most of my meds are twice a day (breakfast & dinner). I eat breakfast at 4:00 in the morning & dinner is at 6:00. A light snack is all that I need in between for the in between meds. I will call & ask what to do. I can't double dose some of these.

As for the fiber, oats & cream of wheat have 3-4grams. My GI hasn't given me a set amount for the diet. I won't see him until the 1st.

I know what you mean about the fruits & veggies. I look forward to the days where I can eat it.
Crohn's since 1997, treated with Sulfasalazine, Imuran, & Predisone.
In Remission for 11 years with no medication.
2009 Crohn's returns, Current Medication 40mg Predisone, 100mg Imuran, 1000mg Flagyl
3 Stool Softner's, 3 tsp Mineral Oil, Pro-Biotic Acidophilus
Blessed & Thankful it's not worse....

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