Blood Work Results

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LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 9/22/2009 2:14 PM (GMT -7)   
I got a message from my GI's office saying that my blood work results came back normal. What on earth does this mean for me then? I am dead tired all the time it seems like, and I have no idea why...
Does this happen to any of you often? I just want to be able to stay awake long enough to get my homework done and spend time with my boyfriend. We went to the midnight launch of Halo ODST, I was super excited, and then I just collapsed when we got home. We were really looking forward to this, just an example anyway.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 5 mg, pentasa 2 pills 4x a day, omeprazole in the morning, and a women's multivitamin. I'm also trying a B vitamin complex, but it doesn't seem to be working so I'm considering the shots.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/23/2009 6:43 AM (GMT -7)   
I am always really exhausted too and my bloodwork comes back borderline anemic all the time, but the doctors are never concerned. I just had my Vit D checked, don't know the results yet, but maybe that is something you need to get checked out. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 9/23/2009 7:33 AM (GMT -7)   
It might be that your food is going through you so fast that you just are absorbing all the nutrients that you need, and thus you are not getting all your vitamins. Maybe you could add some supplements or an Ensure into the mix just to see if it makes any difference. I know I seem to be tired a lot too. I know I have posted about B6 before, but when I added that into my daily mix it made a difference. It took about a month, but it did help.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 9/23/2009 7:34 AM (GMT -7)   
The B6 I take is in addition to the B12 shots I take
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


cayer
Regular Member


Date Joined Jan 2009
Total Posts : 76
   Posted 9/23/2009 5:14 PM (GMT -7)   
Hi LMills,

This exact problem is my constant problem! I am in the same state at the moment and I am basically bed ridden. I was so sick of trusting the doctors and in the past few weeks have been gathering all my own medical paperwork including blood results and when I looked at them EVERYTHING was on the lowest level but yet the doctors say its all fine.

I feel too that a big problem for me is my blood pressure normally being 85/40 - 90-50 max and you add low iron and everything else, it makes me feel like the walking (or lying) dead.

The other thing is that when you look at the history on the blood results of past dates when you know you felt like a better person all the levels are higher so even though I am low but in the "safe" zone at the moment I know my body is not functioning well enough and im on a mission to fix it, so i will keep you posted on how I go.
Tina 26yrs old Diagnosed in 2000 with Crohn's surgery for perianal abscess and fistulas
currently on Imuran 125mg Motillium for digestion used in the past Remcide, salofalc, pred.
Worst pain equal to child labor was after eating home made Granola...i can still hear the screams ha ha.


vitaka
Veteran Member


Date Joined Jun 2006
Total Posts : 887
   Posted 9/23/2009 5:43 PM (GMT -7)   
Earlier this year I could barely drag myself out of bed in the morning (and some days I didn't). I was dead tired all the time, could have slept all day, and was barely keeping my head above water at school. Then at night I would toss and turn. When I went to the doctor, they said it was depression and started me on anti-depressants. After about a month, I started to notice a real difference and was able to get through the day more easily. Now I'm still tired more often than I'd like, but I work a lot and don't sleep a lot, so it's just normal tiredness and not the debilitating issue it was six months ago.
29f, PhD student, diagnosed with Crohn's ileocolitis in 2/06.
During the summer of 2006, I completed the Adacolumn Apheresis clinical trial, which helped me enjoy 2+ years of remission and more than one year med-free. During spring and summer of 2009 the symptoms slowly but surely began to return, and now I'm flaring again.
Colonoscopy/endoscopy scheduled for 9/10; barium X-ray scheduled for 9/18
Currently taking: 4g Pentasa, 20mg prednisone, 150mg Trazadone, multivitamin, vitamin D supplement


NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 9/23/2009 7:41 PM (GMT -7)   
What is everyone's hemoglobin? Mine is usually around 10.3.
27m - Dx January 2005: UC/Crohn's
Entocort 9 mg, Zosyn IV 4.5g x 3, Flucanozole 200mg, Asacol 4 x 3


way2tired
Regular Member


Date Joined Nov 2007
Total Posts : 68
   Posted 9/23/2009 8:15 PM (GMT -7)   
my bloodwork came back fine for the first time in a long time i'm happy but like you I am still tired. If I don't get some down time at least 20 minutes in the middle of the day I can't function.

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 9/23/2009 8:17 PM (GMT -7)   
That's the thing...If I let myself rest for 'just a minute' then I end up sleeping from 2-4 hours and wake up even groggier. I'll see about the vitamin B. My aunt used to have this problem really badly so she started eating spinach as often as she could. The difference she felt was pretty good so we'll see. I can't eat too much in the way of vegetables at a time, but spinach is a softer leave and all right in moderation.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 5 mg, pentasa 2 pills 4x a day, omeprazole in the morning, and a women's multivitamin. I'm also trying a B vitamin complex, but it doesn't seem to be working so I'm considering the shots.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 9/24/2009 7:17 AM (GMT -7)   
It sounds like fatigue is a major problem with many of us. I'm in a wonderful remission right now but still can't seem to function. I'm just so tired of being tired all the time. I'm wondering if my fatigue is even related to Crohn's at all. I just wish I knew why my body is all messed up.
Vicky / 49 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (28) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor, Lisinopril


HM
Regular Member


Date Joined Sep 2008
Total Posts : 211
   Posted 9/24/2009 7:20 AM (GMT -7)   
I have the same issue. My GI says considering the drugs I am on my bloodwork is fine. The things that always say they are high or low are chalked up to imuran.

I do ok until about three and then I am done.

36/f   proud single mom of 2

Diagnosed with GERD/Acid Reflex 2002

Diagnosed with IBS 2007

Diagnosed with Arthritis 2007

Diagnosed with UC, then Crohn’s 2008, now the GI isn't sure which is it exactly...he calls me a strange case.

Diagnosed with Generalized Anxiety Disorder 2008

Current medications: Asacol 2 tablets 3X daily, Imuran 50 mg daily,Endcort 3mg 2X daily, Pentasa 2 500mg caps 2X daily, Prilosec 20 mg 2X daily (if needed), Cymbalta 60 mg daily. 05 mg Zanax (if needed) Probiotics, Calcuim/Mag/Vit.D. Flinstones multi with Iron and Vit. C 500mg daily

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