Tired ALL the time

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dragonfly137927
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Date Joined Sep 2006
Total Posts : 2527
   Posted 9/23/2009 11:37 PM (GMT -7)   
Just wondering if anyone else suffers from this.  The normal thought would be that I am anemic however my labwork for the past 3 months shows I am NOT anemic.  any thoughts or ideas?
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


CazUK
Regular Member


Date Joined Jan 2009
Total Posts : 51
   Posted 9/24/2009 1:13 AM (GMT -7)   
Could it be a lack of B12?
 
I have B12 injections and take iron tablets and am still tired all the time so I feel for you!
Diagnosed with Crohn's disease in Sept 05 aged 24


Resection in Nov 06


Currently taking Remicade, 150mg azathioprine, B12 injections, iron, multivitamin, probiotics and omega 3
 
Previously taken Prednisolone, Entocort, Flagyl, Cipro, Pentasa


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/24/2009 1:42 AM (GMT -7)   
Thought of that about the iron but I am not anemic and I do my B 12 shot the 15th of each month
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/24/2009 6:10 AM (GMT -7)   
I am considered borderline anemic, so I am always tired too. I just found out I am low on Vitamin D, and doctor has started me on Vitamin D daily to see if I can get some improvement. I was reading up on it, and one of the many symptoms of low Vitamin D is fatigue. Hope that helps a little. By the way I take B12 shots bimonthly.
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 9/24/2009 6:42 AM (GMT -7)   
Medicine? Anemia? Oncoming flare?
27m - Dx January 2005: UC/Crohn's
Entocort 9 mg, Zosyn IV 4.5g x 3, Flucanozole 200mg, Asacol 4 x 3


Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 9/24/2009 7:08 AM (GMT -7)   
I'm in remission and have suffered from severe fatigue the last few months. Colonoscopy is clear. I have been suffering from constipation so no "d", no bleeding, no symptoms of Crohn's at all. But, I just can't seem to get any energy. I've even retired and that hasn't even helped. I went to the doctor on Tuesday and she is doing a complete blood work-up to see what is going on. I haven't heard back, but as soon as I do I'll let everyone know.
Vicky / 49 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (28) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor, Lisinopril


Brude3
New Member


Date Joined Sep 2009
Total Posts : 7
   Posted 9/24/2009 7:59 AM (GMT -7)   
Monday I felt like a million bucks. Yesterday did'nt want to move. Wish I knew why.
Diagnosed 2002. Remicade and 6mp since then. Have a bladder fistula thats been bad since June 09.


johanna74
New Member


Date Joined Nov 2006
Total Posts : 3
   Posted 9/24/2009 3:21 PM (GMT -7)   
I feel that way right now, Its weird because it comes and goes. I get bloodwork all the time and nothing ever comes up, no lo b-12, iron nothing.

pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 9/24/2009 3:30 PM (GMT -7)   
Some days I'm unbelievably tired, some days I could run a marathon. I wish I knew why. I'm going to ask my gi about vitamin levels to see if they're low.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.

Amor fati - Nietzsche


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 9/24/2009 8:28 PM (GMT -7)   
When I am feeling like that it seems to be from bacterial growth in the SI. That can be fixed (for me) by going on a liquid diet for a day - no starches or sugars and mostly water or broth. It is possible that those of us who have this on/off fatigue just have a diet issue that goes away because we don't eat much when we are so tired. I look on it as a bacterial infection, but not of the throat/sinuses etc. - just the gut. Just like getting the flu, but no plugged nose/sore throat and so on.

frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 9/24/2009 9:12 PM (GMT -7)   
infection? are u sure you don't have an abscess somewhere? Maybe its nutrition...lack of vitamins...

 Crohn's anal fistula Lupus Hyperthyroid..Pentasa Remicade

 


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 9/25/2009 1:22 PM (GMT -7)   
Not me - if it was an abscess, it would not go away. And all my blood tests show high B12 and normal iron, so my supplements are adequate. It is more like a bad allergy than an abscess. My guess is that there is an overgrowth of bacteria in the SI and a day of liquids allows them to be flushed away.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/26/2009 8:18 AM (GMT -7)   
Well I was just treated for SIBO successfully and I still have fatigue. I am hoping the vit D will be of help. So I dont think sibo is always the culprit. IMO
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Easier2Run
Regular Member


Date Joined Nov 2008
Total Posts : 62
   Posted 9/28/2009 2:53 AM (GMT -7)   
I'm always exhausted. I never figured out why either.... my bloodwork always came back with no anemia or anything like that either... except when I had the GI bleed. It gets ten times worse when I flare, even if its just for a day. I wish there was some kind of reason....
-Heather, 23 yrs. old
____________

- Crohns disease since 1995, officially diagnosed in 2003.

- Bowel resection in Dec. 07, Crohns reoccurred July 08.

- Medications - Entocort 9mg, Wellbutrin SR 150mg, Lexapro 20mg, Bentyl 10mg, Levsin, Trazadone 50mg, Humira


conker21
Regular Member


Date Joined May 2009
Total Posts : 72
   Posted 9/28/2009 4:30 AM (GMT -7)   
It so annoying the things that give you energy eg choc, energy drink give me 'D' I have the b12 too but dont seem to make no diffrence so frustating
Age 22 Diagnosed with Crohns in 2006
Live in the UK
 


mintyamy
Regular Member


Date Joined Mar 2009
Total Posts : 50
   Posted 9/28/2009 6:36 AM (GMT -7)   
I was recently hospitalized for a flare up and of course each morning they do blood work.  My CBC (iron) was reading normal, but as I got more fluids in my body from IVs and was hydrated, my CBC level was going down.  If you are at all dehydrated, you will get false readings from blood work.  It is important to stay on top of your iron levels, I am now receving iron infusions weekly.


aipgirl
New Member


Date Joined Jul 2009
Total Posts : 12
   Posted 9/28/2009 12:12 PM (GMT -7)   
My doctor had once told me that just having inflamation in your body is enough to make you tired.
40yo female 
 Crohn's dx: about 3 yrs but been sick for about 9 years.  No surgeries.
Have sister with crohn's dx 25+ years.
 
Currently on 100mg 6mp and miralax
tried remicade but could not tolerate


Sunny5
New Member


Date Joined Aug 2009
Total Posts : 5
   Posted 9/28/2009 12:28 PM (GMT -7)   
I am so glad to find out that I'm not the only one who feels tired all the time!  I don't know anyone else with Crohn's in real life so it's hard to know what's what!  And people you know look at you and think you look perfectly healthy and fit and well, and you tell them you're tired/worn out/drained, and they just look at you funny, and don't understand why you're so tired.  I feel so much better having read about this on here (though of course it would be better if none of us were tired!)
 
Ria

LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 9/28/2009 1:29 PM (GMT -7)   
I stayed home from work today because I'm dealing with a bad flare waiting to go Cimzia this week.
Anyway I have slept all day literally.  I have no energy to do nothing.   :-(
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS and Arthrities too
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Tramadol for the pain
                               *Waiting to go on Cimzia                      
No Surgeries
 


lechatnoir
New Member


Date Joined Sep 2009
Total Posts : 2
   Posted 9/29/2009 11:08 PM (GMT -7)   
Ya I am constantly tired too! I can sleep for 24 hrs and I have done this on multiple occasions. It sucks. I really hope you feel better!

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 10/4/2009 7:42 PM (GMT -7)   
I started vitamin "D" also because I was deficiant.Since my surgery I have had way more energy. I believe if there is immflamation that your body really takes a beating and your energy level drops. Just like when you get sick and you try to do somethings and your exhausted.
Just my .02 cents.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 10/10/2009 12:24 PM (GMT -7)   
What are all of your guys' blood counts? Normally, I am around 10.5 for hemoglobin. Midday I want to sleep for a 2 hours or so. I hate it. It kills my day.

I hope your doctor is right that inflammation causes fatigue, because they are going to start me on Humira. I hope that solves it.
27m - Dx January 2005: UC/Crohn's
Entocort 9 mg, Asacol 4 x 3, Flagyl 500mg x 3


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 10/10/2009 1:38 PM (GMT -7)   
All of my counts are normal for labwork. i am on Humira 1 time each week. my CRP however is slightly elevated showing some inflammation. I find I need at least 10 hrs of sleep however falling asleep is a trick and a half I can never seem to fall asleep til at least 3 or 4 am leaving me to sleep til noon. I can go to bed at 9 and STILL have this issue even used meds to help sleeping (falling asleep)..during the day however I can just be watching TV and I fall right to sleep.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


nawlinscate
Veteran Member


Date Joined Jan 2007
Total Posts : 656
   Posted 10/10/2009 3:52 PM (GMT -7)   
I've been exhausted and foggy for almost two years now, even with monthly B12 shots and "only borderline" anemia. Two weeks ago, on the advice above, I started taking D3 and a multivitamin. The improvement hasn't been huge, but it's been noticeable. I saw my GI doctor this week, and he said I should supplement with daily calcium. Keeping my fingers crossed that it will all help. (Of course, the 4-5 hours of sleep I get a night probably doesn't help at all!)
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