I'm with you. I've been told it's Crohns, not Crohns, endometriosis, not endometriosis... I just have a horrendous pain in my butt that won't go away and NO one knows what is causing it for sure. 3 1/2 years, 13 doctors... I may be on 14... not sure anymore. But I know, and I feel for you. I'd rather they tell me it is actually something terrible, but here's how we will treat it. It's killing me too, just waiting between doc visits, getting my hopes up someone will figure me out, and then being disappointed every time. I feel like my life is on hold indefinitely.
Hang in there.
Crohn's anal fistula Lupus Hyperthyroid..Pentasa Remicade
I feel frustrated too... I had a colonoscopy that showed large ulcers on my intestines, and biposies that showed Crohn's as a potential cause, so that's what they diagnosed me with... I started taking medication for it (Mezavant) and four months later had a repeat colonoscopy... the ulcers were gone. Then the specialist started to doubt his initial diagnosis as he said Crohn's wouldn't usually heal itself that quicky... so now they are trying an experiment whereby over the course of several months they reduce my medication until I am not taking any... and if I get unwell that would confim I have it, and if I'm ok that would suggest I don't... but what worries me about this is that if I do have Crohn's, by not taking the medication I could be causing myself damage and leaving myself open to a flare further down the line. Has anybody got any advice about this? It's kind of a catch 22 situation - I don't want to be taking medication for the rest of my life for something I haven't got, but then again I don't want to become ill because I didn't take medication when I should have.
Anyway, back to the point, it's frustrating not to have a confirmed diagnosis, especially when you don't feel 100% well and know that something isn't quite right. And it's hard to know what to tell other people - do you tell them you have it, or you maybe have it, or something else?! Hope you manage to sort your diagnosis out Vitak.
I will find a way or make one. –Phillip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
The Bucket List- Have you found joy in your life? Has your life brought joy to others?
Make sure your suffering has meaning…