Humira or Cimzia

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devilcrohns
New Member


Date Joined Sep 2009
Total Posts : 3
   Posted 9/25/2009 12:06 PM (GMT -7)   
Hi,
So here is my story (Reader's Digest Version). I am now 20 years old I got diagnosed with Crohns when I was 8 yrs. old.  I have never reacted positively to ANYTHING.  Even predisone doesn't even work and when I am on it, its MEGA doses and it only takes the edge off but good thing my body is bizarre because I dont have any side effects.  I have been on Remicade for about 2 years now and I was going every month getting I believe 10mg/kg.  It worked for like the first year and a half and recently I realized I still feel like crap after the infusion. I had another colonoscopy hoping to find unactive crohns and maybe also IBS. Well thats not the case, I still have active crohns which means Remi isn't working. So now running out of options I need to pick either Cimzia or Humira. I really want to base my decision on something other than time a month I poke myself. If any of you could share your experiences if you have been on these I would greatly appreciate it.
I believe after 12 years of living with this I really want the best!!
 
Thanks!

Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 9/25/2009 4:17 PM (GMT -7)   
I was on remi, and it caused remi induce ra, I didn't do a scope while on remi but for 8 months it worked real well like you, but i had switch right away to Humira(now being on it for about 2 half months). last week I did a scope and the scope said the crohn's wasn't active (waiting for my biopsie to really tell me the truth) but so far so good.
My doc suggest Humira then cimiza being my last option. Could be something to speak with your doctor about.
Tracy from Montreal,Diagnosed with CD at age 18 but went undiagnosed for 10 years. 17 years with CD
Remicade for 1 year 4 months. Caused remi induced RA, crippled for 8 months
on humira, working for RA but CD is getting worse everyday,been on humira only 4 weeks
Pantasa 8 tabs a day
Provacede 1 daily for the ulcer's
Imuran 1 and half tabs (50mg)
Previous meds: Pantoloc
                         Predizone, tapered down from 10 pills 8 different times.(horrible side effects)
                         Lots more,list is way to long.
Unable to work last 2 years and counting. Hoping to get my life back soon. Minimum visit's to the ER is every 2 months, to stablize me and send me home. Been 5 years since my last colonoscopy.Got my apointment, Sept 16th. Sooo nervous for the results,in fear the CD has worsen.
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Live life to the fullest with no regrets and only eat what you know what hurt you.   


devilcrohns
New Member


Date Joined Sep 2009
Total Posts : 3
   Posted 9/25/2009 4:33 PM (GMT -7)   
yea I did my doctor said he doesn't have a preferrence. He said he has patients on both and they like them. So I have to search else where for answers

Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 9/26/2009 10:25 AM (GMT -7)   
I think they are both the same. It would probably be best to find out as much info on both and see which one YOU feel comfertable with.
Another question to consider is does you insurance cover both meds?!
Tracy from Montreal,Diagnosed with CD at age 18 but went undiagnosed for 10 years. 17 years with CD
Remicade for 1 year 4 months. Caused remi induced RA, crippled for 8 months
on humira, working for RA but CD is getting worse everyday,been on humira only 4 weeks
Pantasa 8 tabs a day
Provacede 1 daily for the ulcer's
Imuran 1 and half tabs (50mg)
Previous meds: Pantoloc
                         Predizone, tapered down from 10 pills 8 different times.(horrible side effects)
                         Lots more,list is way to long.
Unable to work last 2 years and counting. Hoping to get my life back soon. Minimum visit's to the ER is every 2 months, to stablize me and send me home. Been 5 years since my last colonoscopy.Got my apointment, Sept 16th. Sooo nervous for the results,in fear the CD has worsen.
--------------------------------------------------------------------------------------------------------------------------
Live life to the fullest with no regrets and only eat what you know what hurt you.   


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 9/26/2009 11:32 AM (GMT -7)   
I had that choice, but doctor suggested humira first. He said if it didn't work he was more than willing to send to me some other doctors for a few more opinions and to start the cimzia.
Humira has been working well for me, but everyone is different. Maybe look into costs, insurance coverage, side effects, etc.
I've heard of people doing well on either one.
Best of luck in your decision!
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 5 mg, pentasa 2 pills 4x a day, omeprazole in the morning, and a women's multivitamin. I'm also trying a B vitamin complex, but it doesn't seem to be working so I'm considering the shots.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 9/26/2009 6:31 PM (GMT -7)   
My husband's GI said he'd recommend them in this order:
Remicade
Humira
Cimzia

Because they have more data for Remicade than they do for Humira, and more data for Humira than for Cimzia, because that's the order in which the drugs were made available. So he felt wanted to start and move to drugs that have a lot of data behind them, instead of jumping to the newest drug.

PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, until Sep 2, 2009
Fighting c-diff, I guess for life


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 9/26/2009 7:35 PM (GMT -7)   

My GI also prefers Remicade, Humira, then Cimzia. Mainly due to research, time, and having patients on it for longer periods of time. There is more known about drugs around longer periods of time.

I have taken them in that order - and that was even before I came under his care. I am now on Cimzia. They all have similar possible reactions, similar possible side effects, similar costs. My insurance company is not as keen on approving Cimzia due to it being new but approved it for a few months until the GI can "prove" it's working better than Humira.

I'd personally move to Humira and hold off on Cimzia. It's been around awhile longer, you'll be able to talk to more people who have been on it or still on it, and more is known about longer lasting issues. Save the newest stuff for when you're at that point. 


tamsprote96
Regular Member


Date Joined Apr 2009
Total Posts : 55
   Posted 10/5/2009 10:31 AM (GMT -7)   
My doctor gave me a choce also and I went the Humira route because I didn't want to be tied to an IV for 3 hours. I've been told the Humira will/can induce remission but that can take up to a year. I have been on it 6 months and while I am not in remission, I have seen great improvements with no side effects. Just my two cents!

ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 10/6/2009 6:07 AM (GMT -7)   

I agree that most docs want to do them in the order of Remi, Humira and then Cimzia.  I did them a little out of order since I did a clinical trial for Cimzia before it was on the market (before trying Humira).  I am now back on Cimzia since the Humira was not helping enough with my arthritis. 

Both Humira and Cimzia have the same copay for me (if I were paying a copay, but both have programs where you can get it free for about a year), but Cimzia is probably more expensive to your insurance company, since it is newer, so you may want to look into that.  It was great to get Cimzia for free for a year on the clinical trial, then get Humira free for a year through their program and then switch to Cimzia and I'm supposed to get it free for a year.  Yea!

I had more trouble getting Humira approved through insurance than Cimzia.  It took over a month with several rejections and letters from the dr. to get Humira approved.  My Cimzia was shipped a week after I got the prescription from the dr.  (and I even had to mail it in).  I was very surprised that insurance had no problem with me getting it.

Humira hurts a lot more, but I did my Cimzia injections last night and did not allow them to sit out for the recommended 30 minutes first and they stung a lot worse than normal.  Both of them have kept my Crohn's in remission.  Cimzia seems to be helping more with the arthritis at this point, as it seemed the Humira stopped working as much after about a year.  So, it's completely up to you, but I think Humira and Cimzia are both very similar.     


Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 10/7/2009 9:52 AM (GMT -7)   
I'm a remicade failure.  So my doctor and I both felt most comfortable with me going on Cimzia since Humaria is more related to it than Cimzia. 
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS and Arthrities too
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Tramadol for the pain
                               *Waiting to go on Cimzia                      
No Surgeries
 


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 10/8/2009 2:19 PM (GMT -7)   
hmmm...in similar boat...not a lot responds really well either. My GI reccomends the similar, however, Humira was a complete failure for me. Been on Cimzia for over a year now. Me GI now, due to me and other patients, if the Remicade is failing at higher doses and frequency (I was on 10mg/kg every 4 wks), then go straight to Cimzia...don't really even try the Humira. Also, since it is self injectable, many docs (my rheumatologist included) now go Humira, Remicade, Cimzia. Weird huh?
Hope you find something that works...
"The earth laughs in flowers"

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