Getting my first Cimzia injection this week and nervous

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LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 9/28/2009 1:51 PM (GMT -7)   
You may remember I was having trouble getting my Cimzia meds insurance didn't want to approve me but finally
did thanks to doc appealing it.  I got it shipped to me last week.  I'm going Wednesday for first 2 injections.
I'm so nervous about this. I reacted to Remicade years ago and it landed me in the hospital so I'm just really
nervous to be going on this.  It's my only hope though. Please say a prayer. 
 
And those on it, how long does it start working??   I'm home from work today with my crohn's giving me
trouble so I hope this kicks in right away.
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS and Arthrities too
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Tramadol for the pain
                               *Waiting to go on Cimzia                      
No Surgeries
 


Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 9/28/2009 5:08 PM (GMT -7)   
don't know how long it takes to work because I haven't tried it, but I'm sending prayers your way! Hope it works fast for you!

poohbear37
Regular Member


Date Joined Feb 2007
Total Posts : 98
   Posted 9/28/2009 5:16 PM (GMT -7)   
i just had my 4th shot and I havent felt it working yet, but i'm sure it works differently for different people.

The shots really dont hurt which is the good thing...and i have had only a few small side effects
Crohn's Disease - re-diagnosed June 2009
Ulcerative Colitis - diagnosed in 2000

26 years old/female
Asacol, Cymbalta, Nexium, Cimzia

Bad reactions to: remicade, lialda & 6mp


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 9/28/2009 6:39 PM (GMT -7)   
I don't have any personal experiance with either Cimzia or remi but I just wanted to let you know to think happy and positive thoughts as I will be doing the same for you and keeping fingers N toes crossed for ya.

:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 9/28/2009 6:49 PM (GMT -7)   
Don't be too worried. Are you getting a nurse to come to your house? cuz I do. She does it so that I don't even feel it, SQ on the stomach. A LOT less pain than the Humira. Those Humira injectable pens hurt like he##.

As to feel it's effectiveness, on certain parts, it is within one or two days, especially after the loading dose. Now you stated that you had a bad reaction with the Remicade, the upside to both Humira and Cimzia is that neither of these has mouse protiens that can cause some people to react to Remicade. I hope this is the case.

If you have any questions, I've been on Cimzia for over a year, so I can help...I hope it goes well with you.
"The earth laughs in flowers"


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 9/29/2009 5:17 AM (GMT -7)   
I started Cimzia again last Monday after over a year on Humira.  I started noticing it working on Saturday.

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 9/29/2009 12:27 PM (GMT -7)   
I hope you don't have any issues with it - I reacted to Remicade after awhile but haven't had an issue with Humira or Cimzia. I did my loading 2 shots in the office just in case, though.

I have been on it loading dose + 1 month and haven't noticed any effects yet but my GI said it can take 3-6 months for many people.

LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 9/29/2009 7:07 PM (GMT -7)   
Aww thank you everyone!! I go tomorrow afternoon and oh my am I nervous!! I made my husband ask his boss if
he could leave early tomorrow to go with me!! lol I'm such a baby!! hehehe I am going downtown to my doctors
office. His main nurse will give me my lesson and make sure I don't have a reaction.

So you have to give these injections in the stomach?? Oh great just make me more nervous than I already am. I think I'm going to cancel this appointment now. lol I'm going to be up all night now....pace...pace...pace.... lol

Please start saying prayers for me tomorrow at 3:30pm eastern time. :-)
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS and Arthrities too
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Tramadol for the pain
                               *Waiting to go on Cimzia                      
No Surgeries
 


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 9/29/2009 8:30 PM (GMT -7)   
LBJ said...
Aww thank you everyone!! I go tomorrow afternoon and oh my am I nervous!! I made my husband ask his boss if
he could leave early tomorrow to go with me!! lol I'm such a baby!! hehehe I am going downtown to my doctors
office. His main nurse will give me my lesson and make sure I don't have a reaction.

So you have to give these injections in the stomach?? Oh great just make me more nervous than I already am. I think I'm going to cancel this appointment now. lol I'm going to be up all night now....pace...pace...pace.... lol

Please start saying prayers for me tomorrow at 3:30pm eastern time. :-)

 
I take it you didn't take Humira...? It's similar, inject into thigh or tummy. I do it in my thigh but have tried it both ways. My nurse wanted me to just do it in my thigh when I went in for the first dose.
 
Honestly - I completely stressed out over starting Remicade, and Humira, but this med is easy to administer and doesn't hurt. Humira HURTS. It's easier than getting a flu shot. Don't stress (easier said than done, I know!).

Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 9/29/2009 8:58 PM (GMT -7)   
the needle they use for injections is shorter and has smaller diameter that your standard flu shot. For me, the tummy works, I feel less pain there, while on the legs makes me almost cry out. So it is different for everyone.

LBJ...don't cancel your appointment...you can talk to you doc/nurse as to where you want them. It really doesn't take too much time, and it is a great medication.
"The earth laughs in flowers"


potatoqwn
Regular Member


Date Joined Jan 2006
Total Posts : 355
   Posted 9/29/2009 9:42 PM (GMT -7)   
Like the others have said the injections really do not hurt much at all. I had a bad reaction to Remicade also, but no reaction at all with Humira or Cimzia except for at the injection site which is really nothing at all. I prefer the stomach injections to the thigh ones too. They go in more easily.

I have been on Cimzia now for 3 months. I took my last shot this past Wednesday and I think I notice a bit of a difference this week (I hope, I hope.) I lost effectiveness to Humira and got into a bad flare starting in May. I have been on prednisone two times since then. I finally tapered off completely last Friday and I think I see some improvement. What I am trying to say is that you may not see immediate results. So keep at it even if you don't. It very well could take a few months.

Good luck and don't worry about the shots.
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