Hi everyone, just a quick question:
I have been told that I have Crohn’s Colitis, affecting the Large Bowel/Colon. This is based on a CT scan of my bowel, and an x-ray (thought I know I definitely have Crohn’s because I had a colonoscopy when I was first diagnosed showing severe deep inflammation and ulceration of the entire bowel). I have been told my Crohn’s is severe.
My Dr believes I have Crohn’s colitis, which makes sense, because I don’t lose a lot of weight when I flare, usually have lower-left pain and not upper-right (although I do get a ‘hardening’ of the centre of my abdomen when things are really bad), and I also have other classic signs of Crohn’s Colitis such as masses of skin tags, fistulas, fissures and an abscess which is currently draining via mushroom drain and seton.
However, when I am flaring badly, I lose blood (which is normal for Crohn’s colitis) – but often the blood is clotted and thick and like jelly but really dark dark red in colour, almost maroon. I have been told that clots like that are a sign that the blood is coming from higher-up in the digestive tract – does this mean the small bowel? I get upset finding these jelly clumps, because I was under the impression I shouldn’t be getting those if I have Crohn’s colitis.
Do these jelly clots, dark red in colour, come only from the small bowel?
Just wondering if you have any experience/advice regarding this.
Yeah, I definitely will….. Funny thing is, I’ve always had these clots coming occasionally – since I was first diagnosed, so for years now….. (I remember catching one that was the size of an Australian 10c piece and putting it in a jar in my fridge as per my dr’s advice) - and my CT was done only a couple of months ago and showed no apparent small bowel involvement, so perhaps (if I’m lucky) the bleeding clots are coming from internal hemmies. I’m pretty sure I’ve got some in there (from the rectal pain I get) …… and well, with fistulas, fissures, abscess and skin tags, why wouldn’t I have hemmies too? I’ve got the whole shebang!
Crohn's anal fistula Lupus Hyperthyroid..Pentasa Remicade
My diagnosis has recently been confirmed as Crohn's colitis after another major flare and a new GI doc, who cared enough to do another colonoscopy and found "classic Crohn's colitis" throughout most of my colon. I have no small bowel involvement.
I, too have had those clots; one of them actually looked (gross) like a 4" piece of stool, but it was all blood, very dark maroon in color and clotted together. I know it wasn't stool, since I was passing only liquid, mucus, tissue and blood for 5 weeks. I don't have hemorrhoids, so I know the blood wasn't coming from those. I've also had the smaller clumps of blood clots. My colonoscopy and pathology report indicated deep ulcerations, so the blood could have come from those.
I told my GI doc about the clots, and he just nodded his head. I don't think this is uncommon.
I had a loading dose of 4 Humira injections about 10 days ago, and I'm a new person, 2-4 bowels movements daily with very little blood. I have more energy than I know what to do with. And, my inflammatory arthritis has all but disappeared - I can see my kneecaps again.
Hang in there Phoebe, and good luck. I hope you get your Remicade soon, and you're on your way to a feeling better.
Hi guys, thank you so much for all of your kind words….. I just received a call this morning from the nurse and………. My infliximab has been approved!!!! I start my first remicade infusion this coming Monday at 7:30am!! Work is great and let me have the day off…… I am sooo excited!!i called my sister at her work I had to tell someone, and she was so scared when she heard it was me on the phone she thought I was in hospital again! I was expecting 3-4 more weeks of waiting from what the nurse had said before! I can’t wait to see if it works for me!
Jan2003, my GI also just nodded his head….. I will definitely mention it again when I see him, but at the moment that is scheduled for November. So I start remi on Monday, and after that I can contact the surgeon about having my seton and mushroom taken out, which is great news 1: because my fistula is so red and sore and big; 2: because my tummy has been killing me a lot more than usual and I’ve had regular bleeding recently, and 3: my mushroom drain Is getting sooo uncomfortable again!! I think it’s close to the surface now so it’s so sore to sit on!