What does clotted, dark red blood usually mean?

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*Phoebe*
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   Posted 9/28/2009 4:49 PM (GMT -7)   

Hi everyone, just a quick question:

 

I have been told that I have Crohn’s Colitis, affecting the Large Bowel/Colon. This is based on a CT scan of my bowel, and an x-ray (thought I know I definitely have Crohn’s because I had a colonoscopy when I was first diagnosed showing severe deep inflammation and ulceration of the entire bowel). I have been told my Crohn’s is severe.

 

My Dr believes I have Crohn’s colitis, which makes sense, because I don’t lose a lot of weight when I flare, usually have lower-left pain and not upper-right (although I do get a ‘hardening’ of the centre of my abdomen when things are really bad), and I also have other classic signs of Crohn’s Colitis such as masses of skin tags, fistulas, fissures and an abscess which is currently draining via mushroom drain and seton.

 

However, when I am flaring badly, I lose blood (which is normal for Crohn’s colitis) – but often the blood is clotted and thick and like jelly but really dark dark red in colour, almost maroon. I have been told that clots like that are a sign that the blood is coming from higher-up in the digestive tract – does this mean the small bowel? I get upset finding these jelly clumps, because I was under the impression I shouldn’t be getting those if I have Crohn’s colitis.

 

Do these jelly clots, dark red in colour, come only from the small bowel?

 

Just wondering if you have any experience/advice regarding this.

 

Thanks guys,

 

P


Stef17
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   Posted 9/28/2009 5:07 PM (GMT -7)   
I have crohn's colitis also and also get these clots. I was told that the clots are from hemmies or somewhere near the rectum/anus. It's never great to see blood, but my understanding that blood from higher up is black, when it's closer to the "end" it's more red. Not sure if that helps.

pb4
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Date Joined Feb 2004
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   Posted 9/28/2009 5:49 PM (GMT -7)   
You need to remember that CD can affect any part of the GI tract at the same time... I too have crohn's colitis but I've also had it affecting my small bowel and my rectom (proctitis) all at the same time...usually darker blood does indicate bleeding from higher up....you should always report any changes to your GI (better to be safe than sorry)....in my 18yrs of crohn's colitis with no full remission I have never had blood-clot like bleeding, so although there are some "classic" signs of each type of colitis, nothing is written in stone and each persons symptoms will likely vary even from flare to flare.

:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


*Phoebe*
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Date Joined Sep 2005
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   Posted 9/28/2009 6:22 PM (GMT -7)   
Thanks guys, interesting info. I will definitely mention it next time I see my GI, and ask him whether it means it’s from higher up. After all, the CT did say ‘no indication of small bowel involvement’ – so I guess it’s not set in stone.

Just thinking about all this stuff makes my tummy burn…. Sigh.

pb4
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Date Joined Feb 2004
Total Posts : 20576
   Posted 9/28/2009 6:30 PM (GMT -7)   
One of the crappy things about CD is the fact that one day there's no activity in a particular area then all the sudden WHAM, it hits a perfectly fine and healthy area...that's why you should always report anythng new to your GI.


I hope you find relief soon :)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


*Phoebe*
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Date Joined Sep 2005
Total Posts : 769
   Posted 9/28/2009 7:11 PM (GMT -7)   

Yeah, I definitely will….. Funny thing is, I’ve always had these clots coming occasionally – since I was first diagnosed, so for years now….. (I remember catching one that was the size of an Australian 10c piece and putting it in a jar in my fridge as per my dr’s advice) - and my CT was done only a couple of months ago and showed no apparent small bowel involvement, so perhaps (if I’m lucky) the bleeding clots are coming from internal hemmies. I’m pretty sure I’ve got some in there (from the rectal pain I get) …… and well, with fistulas, fissures, abscess and skin tags, why wouldn’t I have hemmies too? I’ve got the whole shebang!


frogeleita
Regular Member


Date Joined Jul 2009
Total Posts : 342
   Posted 9/28/2009 9:09 PM (GMT -7)   
I think its tarry black stools that indicate bleeding higher up in the tract. It sounds like you must have some inflammation somewhere bleeding..kind of scary..to see those clots Phoebe...have you ever been told you have hemorroids? I heard that they can pass a clot..internal ones. Also how are you feeling today? How are things going..how is the Remicade process going for you? :)

 Crohn's anal fistula Lupus Hyperthyroid..Pentasa Remicade

 


jan2003
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Date Joined Jul 2004
Total Posts : 92
   Posted 9/29/2009 6:21 AM (GMT -7)   

My diagnosis has recently been confirmed as Crohn's colitis after another major flare and a new GI doc, who cared enough to do another colonoscopy and found "classic Crohn's colitis" throughout most of my colon. I have no small bowel involvement.

I, too have had those clots; one of them actually looked (gross) like a 4" piece of stool, but it was all blood, very dark maroon in color and clotted together. I know it wasn't stool, since I was passing only liquid, mucus, tissue and blood for 5 weeks. I don't have hemorrhoids, so I know the blood wasn't coming from those. I've also had the smaller clumps of blood clots.  My colonoscopy and pathology report indicated deep ulcerations, so the blood could have come from those.

I told my GI doc about the clots, and he just nodded his head. I don't think this is uncommon.

I had a loading dose of 4 Humira injections about 10 days ago, and I'm a new person, 2-4 bowels movements daily with very little blood. I have more energy than I know what to do with. And, my inflammatory arthritis has all but disappeared - I can see my kneecaps again.

Hang in there Phoebe, and good luck. I hope you get your Remicade soon, and you're on your way to a feeling better.

Jan


Nanners
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Date Joined Apr 2005
Total Posts : 14995
   Posted 9/29/2009 6:29 AM (GMT -7)   
Phoebe I just wanted to send you some big hugs. Please do let your GI know about this.

Big Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

*Phoebe*
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Date Joined Sep 2005
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   Posted 9/29/2009 7:18 PM (GMT -7)   

Hi guys, thank you so much for all of your kind words….. I just received a call this morning from the nurse and………. My infliximab has been approved!!!! I start my first remicade infusion this coming Monday at 7:30am!! Work is great and let me have the day off…… I am sooo excited!!i called my sister at her work I had to tell someone, and she was so scared when she heard it was me on the phone she thought I was in hospital again! I was expecting 3-4 more weeks of waiting from what the nurse had said before! I can’t wait to see if it works for me!

 

Jan2003, my GI also just nodded his head….. I will definitely mention it again when I see him, but at the moment that is scheduled for November. So I start remi on Monday, and after that I can contact the surgeon about having my seton and mushroom taken out, which is great news 1: because my fistula is so red and sore and big; 2: because my tummy has been killing me a lot more than usual and I’ve had regular bleeding recently, and 3: my mushroom drain Is getting sooo uncomfortable again!! I think it’s close to the surface now so it’s so sore to sit on!

 


ivy6
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Date Joined Sep 2005
Total Posts : 10404
   Posted 9/29/2009 8:52 PM (GMT -7)   
Brilliant news, Phoebe. I'm really happy for you.

Make sure you take a walkman or something in case the premeds make you drowsy :-).
Co-Moderator Crohn's Forum.

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*Phoebe*
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   Posted 9/29/2009 9:30 PM (GMT -7)   
Hey Ivy - what are the premeds usually used for?

I think my friend Becky might come to keep me company. Dad wanted to come up but I think we will save that for when I see the surgeon, in case it involves general anaesthetic

ivy6
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Date Joined Sep 2005
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   Posted 9/29/2009 9:40 PM (GMT -7)   
The premeds are often to reduce the chance of a reaction. Some of them can make you pretty drowsy - as can the med itself, if I remember rightly - so it can be helpful to have a walkman or something similar to entertain you, especially if talking / reading gets too hard. Bear in mind, too, that the infusion room might be pretty noisy so you might appreciate having some way to block out the noise so you can read / write / sleep.

I think having a friend for company is good. This is a big and important and exciting step - it's nice to have acknowledgement from others.
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*Phoebe*
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   Posted 9/29/2009 9:50 PM (GMT -7)   
Yes, it is, I'm sad that my family aren't closer, because they would love to be there, and I can't ask my sister to take more time off work than she already has to be with me at hospital..... I'm tempted to take dad up on his offer to come up, but I don't want to ask him to come up twice either, once for the remi and once for the surgeon.....

ivy6
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   Posted 9/29/2009 10:09 PM (GMT -7)   
Just an idea: what if you ask your Dad to phone the infusion ward / area while you're there, and then you can talk to him while you're being 'mabbed?

That way, he won't feel that he's missing out, and you can share the excitement with him.

How do you feel about it, yourself? Are you nervous enough about the infusion to want a relative there? I ask because I was the first person in my area & hospital to get I'mab (more than five years ago now) and the hospital was petrified about it, being a new and (then) slightly-experimental med and all, and that made *me* petrified... so I was really glad to have my Mum with me...
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


*Phoebe*
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Date Joined Sep 2005
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   Posted 9/29/2009 10:17 PM (GMT -7)   
Yeah I don’t really like the thought of being there alone at all…… even when I was just getting my iron infusion, I was so grateful that my mum was up visiting at the time, I would have been sad sitting there all alone all day I think…… I’m not really nervous, more excited to see if it works for me like it has for others, I trust that the staff will pick up and quickly sort me if I have a bad reaction, but I am anxious when I think about going there alone. My friend Becky has Monday off, but she is a bit of a drama queen sometimes, and likes to say and do embarrassing things and joke around a lot and I don’t know whether I would be comfortable with that kind of person there if you know what I mean…..

I could ask dad to call but I don’t know if they’d appreciate me using their phone for a personal call, or even if they have a cordless….. I don’t think I’d be comfortable asking them to go to extra measures …. Maybe I should just take Becky with me, but she can’t drive so she can’t help that way, and I don’t even know where to park at the royal Brisbane without paying a ridiculous amount….. ho hum! Looks like I’m going to be there by myself!

ivy6
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Date Joined Sep 2005
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   Posted 9/29/2009 10:23 PM (GMT -7)   
Oh, Phoebe. Heck, I'd come with you if I lived up your way.

You might find that you're drowsy enough to be glad not to have people with you - I remember I was glad for Mum's company but ended up falling asleep, and she just sat and read her book - but I (and I think you) would feel happier if you had someone to hold your hand at the beginning.

I still recommend asking your Dad to call. I haven't been in a ward yet where there hasn't been a cordless phone, and I can't see the nurses objecting to a fatherly "my daughter's getting her first big infusion and is a bit nervous & excited about it; is she going ok?" type of call.

If it helped, I always used to call the ward during the scarier parts of my mother's chemo infusions (if I wasn't there in person) and the nurses never seemed to mind - they'd just say "yes, she's ok; no scary drug reactions" and were happy to pass her a caring message.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


*Phoebe*
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Date Joined Sep 2005
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   Posted 9/29/2009 10:37 PM (GMT -7)   
Yeah, maybe they would be OK with me chatting on the phone….. I guess its better than nothing! Just for some reason the prospect of doing this major step all alone makes me want to cry! If I didn’t also have to see the surgeon in a few weeks I could just get dad to come up, but it’s so hard driving everyone around to and from the station and getting everyone fed and beds made up and my flat is so small….. I think it just might be easier on everyone if I go there quietly by myself and just put up with being a bit sad about it.

ivy6
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Date Joined Sep 2005
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   Posted 9/29/2009 10:49 PM (GMT -7)   
(((Phoebe))) I feel so sad for you, hon: can completely relate to what you're saying. It can be hard to be so new to a city, and so far away from your family.

More huge hugs to you.
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ivy6
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   Posted 9/29/2009 10:50 PM (GMT -7)   
Ooh! Just an idea, but what if you talk to the hospital's pastoral care worker and ask him / her to sit with you for a bit? It doesn't matter if you're not religious; their role is to be someone to talk to.
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Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


*Phoebe*
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   Posted 9/29/2009 11:02 PM (GMT -7)   
Ahh thanks Ivy…. I might take Becky with me….. or ask Kelly, another friend of mine, although I have a feeling she will have lectures first thing on a Monday morning. I’m torn between not wanting to ask anything of anyone or being a ‘burden’ to knowing that inevitably, if I spend the whole morning at the hospital alone and drive myself home to an empty flat, I will be miserable. It is very isolating living alone in this city. And nothing beats family, even when you have great friends. Just wish my dad or mum could magically be here!!

ivy6
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   Posted 9/29/2009 11:11 PM (GMT -7)   
Even if she can't be there first thing, might she be able to come half-way through?

It might also be a good idea to have a meal ready to microwave for when you get home, and some pjs out and ready to crawl into, and maybe a familiar & upbeat movie to watch. You might be feeling physically and emotionally drained afterwards.

Oh, maybe get a heating pad and hot water bottle too, if you don't have those yet. Some people get achy afterwards, and you might be glad of the comfort.

i.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


*Phoebe*
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   Posted 9/29/2009 11:23 PM (GMT -7)   
Oh definitely, that sounds like a plan….. You know just hearing you say that made me feel better already. I think if I have my jammies laid out, maybe run a hot bubble bath when I get home, have my favourite dinner ready-to-go, and a good movie (I actually have a burnt copy of slumdog millionaire that someone gave me sitting at home and still haven’t seen it!!!) – I’ll probably feel a thousand times better about coming home alone.

After all, if I take Becky, I’m going to have to chauffer her around instead of the other way around and I wont be in the mood for that!!

ivy6
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Date Joined Sep 2005
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   Posted 9/29/2009 11:30 PM (GMT -7)   
Oh, Phoebes, I'm not sure if you should be driving to and from hospital. Some of those premeds can be pretty strong, and (I'm guessing) you don't know yet what they're going to give you.

I'm glad you feel better about coming home now. Don't forget to hop online and tell us how it went too :-).

I haven't seen Slumdog either - I have a lot of catching up to do!
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

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